CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 4412
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C13246 National Institutes of Health Stroke Scale (NIHSS) Supplemental - intervention present type

Were any of the following present during the NIHSS assessment?

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C13232 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness primary question score

Level of consciousness assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C17402 Site name

The name of the site for the study

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C13241 National Institutes of Health Stroke Scale (NIHSS) - sensory score

Sensory abilities assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C20416 National Institutes of Health Stroke Scale (NIHSS) - Motor arm amputation text

The text field for explaining the amputation or joint fusion for question related to motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C17409 Visit date

Date of interview or visit (actually the date when data in the form were captured)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C13239 National Institutes of Health Stroke Scale (NIHSS) - Motor leg score

Motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C13247 National Institutes of Health Stroke Scale (NIHSS) Supplemental - limb ataxia status

The indicator to determine if ataxia is present in the limbs

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C13233 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness secondary question score

Level of consciousness (LOC) questions assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C13242 National Institutes of Health Stroke Scale (NIHSS) - best language score

Language ability assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C13232 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness primary question score

Level of consciousness assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C13240 National Institutes of Health Stroke Scale (NIHSS) - limb ataxia score

Limb ataxia assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C14286 Therapy or rehabilitation received status

If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C13248 National Institutes of Health Stroke Scale (NIHSS) Supplemental - limb sensory loss status

The indicator to determine if any limbs have sensory loss

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C18914 Durable medical equipment other text

The free-text field related to 'Durable medical equipment type' specifying other text. If the participant/ subject was provided with any durable medical equipment, describes the type(s) of equipment received

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C13234 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness tertiary question score

Level of consciousness (LOC) commands assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C10713 Walking cane or crutches pair use age started value

Age of the participant/subject when he/she began using two canes or crutches for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10713 Walking cane or crutches pair use age started value

Age of the participant/subject when he/she began using two canes or crutches for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C10702 Walking own unable reason

Reason why the participant/subject is unable to walk on his/her own

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10709 Walking assistive device indicator

Indicator of whether the participant/subject uses an assistive device for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C10706 Walking difficulty age support first needed value

Age of participant/subject when intermittent support first needed for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10714 Walker use indicator

Indicator whether the participant/subject uses a walker

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10710 Walking 1 cane use indicator

Indicator whether the participant/subject uses one cane for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
Displaying 101 - 125 of 4412

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.