CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 3808
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13245 National Institutes of Health Stroke Scale (NIHSS) - severity total score

The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C13235 National Institutes of Health Stroke Scale (NIHSS) - Best gaze score

Best gaze assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C13244 National Institutes of Health Stroke Scale (NIHSS) - extinction and inattention score

Extinction and inattention assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C14286 Therapy or rehabilitation received status

If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C13238 National Institutes of Health Stroke Scale (NIHSS) - Motor arm score

Motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C13246 National Institutes of Health Stroke Scale (NIHSS) Supplemental - intervention present type

Were any of the following present during the NIHSS assessment?

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C13236 National Institutes of Health Stroke Scale (NIHSS) - Visual field score

Visual fields assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C13245 National Institutes of Health Stroke Scale (NIHSS) - severity total score

The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C14292 Durable medical equipment indicator

Indicates if the participant/ subject was provided with any durable medical equipment

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C13239 National Institutes of Health Stroke Scale (NIHSS) - Motor leg score

Motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C13247 National Institutes of Health Stroke Scale (NIHSS) Supplemental - limb ataxia status

The indicator to determine if ataxia is present in the limbs

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C17402 Site name

The name of the site for the study

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C13237 National Institutes of Health Stroke Scale (NIHSS) - Facial palsy score

Facial palsy assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C18914 Durable medical equipment other text

The free-text field related to 'Durable medical equipment type' specifying other text. If the participant/ subject was provided with any durable medical equipment, describes the type(s) of equipment received

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10713 Walking cane or crutches pair use age started value

Age of the participant/subject when he/she began using two canes or crutches for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C10713 Walking cane or crutches pair use age started value

Age of the participant/subject when he/she began using two canes or crutches for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10718 Wheelchair use indicator

Indicator whether the participant/subject uses a wheelchair

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C10706 Walking difficulty age support first needed value

Age of participant/subject when intermittent support first needed for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10714 Walker use indicator

Indicator whether the participant/subject uses a walker

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10707 Walking difficulty age permanent support started value

Age of participant/subject when permanent support first needed walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10715 Walker use age started value

Age of the participant/subject when he/she began using a walker

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10709 Walking assistive device indicator

Indicator of whether the participant/subject uses an assistive device for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C10720 Walking other assistive device use indicator

Indicator whether the participant/subject uses any other assistive device for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
Displaying 101 - 125 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.