CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13237 National Institutes of Health Stroke Scale (NIHSS) - Facial palsy score

Facial palsy assessed using the NIH Stroke Scale (NIHSS)

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Comprehensive
C14639 Ambulatory status

Status that reflects the participant's/subject's ability to walk

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C13246 National Institutes of Health Stroke Scale (NIHSS) Supplemental - intervention present type

Were any of the following present during the NIHSS assessment?

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Comprehensive
C13232 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness primary question score

Level of consciousness assessed using the NIH Stroke Scale (NIHSS)

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Stroke
C13240 National Institutes of Health Stroke Scale (NIHSS) - limb ataxia score

Limb ataxia assessed using the NIH Stroke Scale (NIHSS)

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Stroke
C18914 Durable medical equipment other text

The free-text field related to 'Durable medical equipment type' specifying other text. If the participant/ subject was provided with any durable medical equipment, describes the type(s) of equipment received

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C13248 National Institutes of Health Stroke Scale (NIHSS) Supplemental - limb sensory loss status

The indicator to determine if any limbs have sensory loss

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Stroke
C17402 Site name

The name of the site for the study

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C13238 National Institutes of Health Stroke Scale (NIHSS) - Motor arm score

Motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS)

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Comprehensive
C17402 Site name

The name of the site for the study

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C13247 National Institutes of Health Stroke Scale (NIHSS) Supplemental - limb ataxia status

The indicator to determine if ataxia is present in the limbs

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Comprehensive
C13233 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness secondary question score

Level of consciousness (LOC) questions assessed using the NIH Stroke Scale (NIHSS)

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Stroke
C13241 National Institutes of Health Stroke Scale (NIHSS) - sensory score

Sensory abilities assessed using the NIH Stroke Scale (NIHSS)

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Stroke
C20416 National Institutes of Health Stroke Scale (NIHSS) - Motor arm amputation text

The text field for explaining the amputation or joint fusion for question related to motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS)

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Stroke
C17409 Visit date

Date of interview or visit (actually the date when data in the form were captured)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C13239 National Institutes of Health Stroke Scale (NIHSS) - Motor leg score

Motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)

NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) NeuroRehab NeuroRehab Comprehensive
C10713 Walking cane or crutches pair use age started value

Age of the participant/subject when he/she began using two canes or crutches for walking

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C10719 Wheelchair use age started value

Age of the participant/subject when he/she began using a wheelchair

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C10713 Walking cane or crutches pair use age started value

Age of the participant/subject when he/she began using two canes or crutches for walking

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C10707 Walking difficulty age permanent support started value

Age of participant/subject when permanent support first needed walking

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C10715 Walker use age started value

Age of the participant/subject when he/she began using a walker

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C10701 Walking difficulty level status

Status that reflects the participant's/subject's current level of walking difficulty

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C10712 Walking use 2 cane crutch indicator

Indicator whether the participant/subject uses two canes or crutches for walking

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C10722 Walking primary assistive device daily use duration

Duration for which the participant/subject uses her or his primary assistive walking device on a daily basis

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
Displaying 101 - 125 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.