CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Disease Name

Sub Domain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C13233	National Institutes of Health Stroke Scale (NIHSS) - level of consciousness secondary question score	Level of consciousness (LOC) questions assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Comprehensive
C14639	Ambulatory status	Status that reflects the participant's/subject's ability to walk	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
C13241	National Institutes of Health Stroke Scale (NIHSS) - sensory score	Sensory abilities assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Comprehensive
C14293	Durable medical equipment type	If the participant/ subject was provided with any durable medical equipment, describes the type(s) of equipment received	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
C13236	National Institutes of Health Stroke Scale (NIHSS) - Visual field score	Visual fields assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Stroke
C13244	National Institutes of Health Stroke Scale (NIHSS) - extinction and inattention score	Extinction and inattention assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Stroke
C17402	Site name	The name of the site for the study	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab General
C14286	Therapy or rehabilitation received status	If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
C13234	National Institutes of Health Stroke Scale (NIHSS) - level of consciousness tertiary question score	Level of consciousness (LOC) commands assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Comprehensive
C17402	Site name	The name of the site for the study	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
C13242	National Institutes of Health Stroke Scale (NIHSS) - best language score	Language ability assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Comprehensive
C13237	National Institutes of Health Stroke Scale (NIHSS) - Facial palsy score	Facial palsy assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Stroke
C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Stroke
C17409	Visit date	Date of interview or visit (actually the date when data in the form were captured)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab General
C14292	Durable medical equipment indicator	Indicates if the participant/ subject was provided with any durable medical equipment	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
C13235	National Institutes of Health Stroke Scale (NIHSS) - Best gaze score	Best gaze assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Comprehensive
C13243	National Institutes of Health Stroke Scale (NIHSS) - dysarthria score	Dysarthria assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Comprehensive
C13238	National Institutes of Health Stroke Scale (NIHSS) - Motor arm score	Motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Stroke
C13246	National Institutes of Health Stroke Scale (NIHSS) Supplemental - intervention present type	Were any of the following present during the NIHSS assessment?	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Stroke
C14293	Durable medical equipment type	If the participant/ subject was provided with any durable medical equipment, describes the type(s) of equipment received	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
C13236	National Institutes of Health Stroke Scale (NIHSS) - Visual field score	Visual fields assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Comprehensive
C13244	National Institutes of Health Stroke Scale (NIHSS) - extinction and inattention score	Extinction and inattention assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Comprehensive
C13239	National Institutes of Health Stroke Scale (NIHSS) - Motor leg score	Motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Stroke
C13247	National Institutes of Health Stroke Scale (NIHSS) Supplemental - limb ataxia status	The indicator to determine if ataxia is present in the limbs	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Stroke
C13237	National Institutes of Health Stroke Scale (NIHSS) - Facial palsy score	Facial palsy assessed using the NIH Stroke Scale (NIHSS)	NeuroRehab Stroke Core	NIH Stroke Scale (NIHSS)	True	NeuroRehab	NeuroRehab Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.