CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 4416
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17402 Site name

The name of the site for the study

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C13239 National Institutes of Health Stroke Scale (NIHSS) - Motor leg score

Motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C13247 National Institutes of Health Stroke Scale (NIHSS) Supplemental - limb ataxia status

The indicator to determine if ataxia is present in the limbs

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C13233 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness secondary question score

Level of consciousness (LOC) questions assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C13241 National Institutes of Health Stroke Scale (NIHSS) - sensory score

Sensory abilities assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C20416 National Institutes of Health Stroke Scale (NIHSS) - Motor arm amputation text

The text field for explaining the amputation or joint fusion for question related to motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C17409 Visit date

Date of interview or visit (actually the date when data in the form were captured)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C13240 National Institutes of Health Stroke Scale (NIHSS) - limb ataxia score

Limb ataxia assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C14286 Therapy or rehabilitation received status

If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C13248 National Institutes of Health Stroke Scale (NIHSS) Supplemental - limb sensory loss status

The indicator to determine if any limbs have sensory loss

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C18914 Durable medical equipment other text

The free-text field related to 'Durable medical equipment type' specifying other text. If the participant/ subject was provided with any durable medical equipment, describes the type(s) of equipment received

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C13234 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness tertiary question score

Level of consciousness (LOC) commands assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C13242 National Institutes of Health Stroke Scale (NIHSS) - best language score

Language ability assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C13232 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness primary question score

Level of consciousness assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C13241 National Institutes of Health Stroke Scale (NIHSS) - sensory score

Sensory abilities assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C14292 Durable medical equipment indicator

Indicates if the participant/ subject was provided with any durable medical equipment

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C20416 National Institutes of Health Stroke Scale (NIHSS) - Motor arm amputation text

The text field for explaining the amputation or joint fusion for question related to motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C13235 National Institutes of Health Stroke Scale (NIHSS) - Best gaze score

Best gaze assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C13243 National Institutes of Health Stroke Scale (NIHSS) - dysarthria score

Dysarthria assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C13233 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness secondary question score

Level of consciousness (LOC) questions assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C17402 Site name

The name of the site for the study

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C13242 National Institutes of Health Stroke Scale (NIHSS) - best language score

Language ability assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Comprehensive
C14293 Durable medical equipment type

If the participant/ subject was provided with any durable medical equipment, describes the type(s) of equipment received

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C13236 National Institutes of Health Stroke Scale (NIHSS) - Visual field score

Visual fields assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
C13244 National Institutes of Health Stroke Scale (NIHSS) - extinction and inattention score

Extinction and inattention assessed using the NIH Stroke Scale (NIHSS)

 NeuroRehab Stroke Core NIH Stroke Scale (NIHSS) True NeuroRehab NeuroRehab Stroke
Displaying 76 - 100 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.