CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

4296 results.
Operations
Selected 21 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22613 Home modification durable medical equipment type

If the participant/ subject was provided with any home modification durable medical equipment, describes the type(s) of equipment received

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C22613 Home modification durable medical equipment type

If the participant/ subject was provided with any home modification durable medical equipment, describes the type(s) of equipment received

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C00311 Birth weight report value

Birth weight according to the participant's medical report or reported by the parent or legal guardian

NeuroRehab Core Infant Pediatrics Demographics NeuroRehab NeuroRehab Comprehensive
C00311 Birth weight report value

Birth weight according to the participant's medical report or reported by the parent or legal guardian

NeuroRehab Core Infant Pediatrics Demographics NeuroRehab NeuroRehab General
C52564 Data source family relation specify text

Free-text field specifying the relationship of the family member from which data on the participant was obtained

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C52564 Data source family relation specify text

Free-text field specifying the relationship of the family member from which data on the participant was obtained

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Subacute Sport Related Concussion
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Acute Sport Related Concussion
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab Comprehensive
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

NeuroRehab Sport Related Concussion Core Post Concussion Symptom Scale NeuroRehab NeuroRehab Comprehensive
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C14639 Ambulatory status

Status that reflects the participant's ability to walk

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C14639 Ambulatory status

Status that reflects the participant's ability to walk

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
4296 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.