CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 4176 - 4200 of 4416

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2912-C56485	C56485	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere ability concentrate scale	Scale related to how much pain interfered with an individual's ability to concentrate in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2912-C56493	C56493	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain sleep difficulty scale	Scale related to how difficult pain made it to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56493	C56493	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain sleep difficulty scale	Scale related to how difficult pain made it to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2912-C56501	C56501	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference ability remember scale	Scale which represents how often pain interfered with participant's ability to remember things over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56501	C56501	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference ability remember scale	Scale which represents how often pain interfered with participant's ability to remember things over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2912-C56509	C56509	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make anxious scale	Scale related to how often pain made an individual feel anxious in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56509	C56509	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make anxious scale	Scale related to how often pain made an individual feel anxious in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2912-C56516	C56516	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 10 minute more scale	Scale related to how often pain prevented an individual from sitting for more than 10 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56484	C56484	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference personal relationship scale	Scale which represents how often the participant felt pain interfered in close personal relationships in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
F2912-C56492	C56492	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference work ability scale	Scale related to how much pain interfered with an individual's ability to work (including work at home) in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
F2912-C56500	C56500	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference household chore ability scale	Scale which represents how often the participant felt pain interfered with ability to do household chores over the past seven days, as a part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
F2912-C56508	C56508	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make discourage scale	Scale related to how often pain made an individual feel discouraged in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
F2912-C56516	C56516	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 10 minute more scale	Scale related to how often pain prevented an individual from sitting for more than 10 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
F2912-C56518	C56518	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain restrict social life home scale	Scale related to how often an individual's pain restrict his/her social life to his/her home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2912-C56486	C56486	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference day to day activity scale	Scale which represents how much the participant felt pain interfered with day to day activities over the past seven days as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56486	C56486	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference day to day activity scale	Scale which represents how much the participant felt pain interfered with day to day activities over the past seven days as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2912-C56494	C56494	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain feel burden scale	Scale related to how much pain felt like a burden to an individual in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56494	C56494	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain feel burden scale	Scale related to how much pain felt like a burden to an individual in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2912-C56502	C56502	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference irritable pain scale	Scale which represents how irritable the participant felt because of pain in the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56502	C56502	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference irritable pain scale	Scale which represents how irritable the participant felt because of pain in the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2912-C56510	C56510	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain avoid social activity because more hurt scale	Scale related to how often an individual avoided social activities because it might make him/her hurt more in the past 7 days, as part of Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56510	C56510	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain avoid social activity because more hurt scale	Scale related to how often an individual avoided social activities because it might make him/her hurt more in the past 7 days, as part of Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Comprehensive
F2912-C56517	C56517	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference hard to plan social activities unsure pain scale	Scale related to how often it was hard to plan social activities because an individual didn't know if he/she would be in pain in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
F2912-C56517	C56517	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference hard to plan social activities unsure pain scale	Scale related to how often it was hard to plan social activities because an individual didn't know if he/she would be in pain in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Congenital Muscular Dystrophy (CMD)
F2912-C56485	C56485	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere ability concentrate scale	Scale related to how much pain interfered with an individual's ability to concentrate in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke

Displaying 4176 - 4200 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.