CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 4416
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17365 Parkinson's Disease Quality of Life (PDQUALIF) - night wakeup bathroom scale

Rating scale for waking up at night due to the need to go to the bathroom as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C09304 Apathy Scale (AS) - Condition concern scale

The scale related to subject's concern for ones own condition, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab Comprehensive
C17379 Parkinson's Disease Quality of Life (PDQUALIF) - social life not affected scale

Rating scale for feeling that the social life has not been affected by the Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Parkinson's Disease
C17387 Parkinson's Disease Quality of Life (PDQUALIF) - writing speaking problem 7 days scale

Rating scale for a problem in written or spoken communication in past 7 days as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Parkinson's Disease
C17363 Parkinson's Disease Quality of Life (PDQUALIF) - difficult swallowing scale

Rating scale for difficulty swallowing while eating or drinking liquids as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Parkinson's Disease
C17371 Parkinson's Disease Quality of Life (PDQUALIF) - trouble stay asleep scale

Rating scale for trouble staying asleep as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Parkinson's Disease
C09305 Apathy Scale (AS) - Indifference scale

The scale related to subject's indifference to things, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab Comprehensive
C18107 Quality of Life in Swallowing Disorders (SWAL-QOL) - completion date

Date the subject completed this questionnaire, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C17374 Parkinson's Disease Quality of Life (PDQUALIF) - affected social life scale

Rating scale for affected social life by Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C09313 Apathy Scale (AS) - Neutral mood scale

The scale related to subject's self reflection on their own mood and attitude towards the life that surrounds them, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab Comprehensive
C18101 Quality of Life in Swallowing Disorders (SWAL-QOL) - gender indicator

Gender of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab Comprehensive
C17382 Parkinson's Disease Quality of Life (PDQUALIF) - away from social scale

Rating scale for staying away from social gatherings due to the Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C09302 Apathy Scale (AS) - Interest scale

The scale related to subject's interests, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C17390 Parkinson's Disease Quality of Life (PDQUALIF) - not sleep with spouse night 7 days scale

Rating scale for keeping you from sleeping with the spouse/partner due to the nighttime symptoms in past 7 days as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C09310 Apathy Scale (AS) - Energy scale

The scale related to the subject's energy levels, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C18099 Quality of Life in Swallowing Disorders (SWAL-QOL) - birth date

Date of the subject's birthday, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C17366 Parkinson's Disease Quality of Life (PDQUALIF) - affection ability scale

Rating scale for ability to show affection in intimate or sexual ways affected by the Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C02308 Adverse event during study indicator

Indicator of whether the participant/subject experienced any adverse events during the study

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C02304 Adverse event relatedness scale

Scale of the causality between the treatment modality/intervention and the specific adverse event

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C02307 Adverse event verbatim term text

Text that describes the adverse event word for word as described by the participant/subject

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C02311 Adverse event MedDRA lower level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C02308 Adverse event during study indicator

Indicator of whether the participant/subject experienced any adverse events during the study

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C02304 Adverse event relatedness scale

Scale of the causality between the treatment modality/intervention and the specific adverse event

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C02311 Adverse event MedDRA lower level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C02307 Adverse event verbatim term text

Text that describes the adverse event word for word as described by the participant/subject

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
Displaying 276 - 300 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.