CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18108 Quality of Life in Swallowing Disorders (SWAL-QOL) - comment text

Comment from the subject regarding this questionnaire, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C17382 Parkinson's Disease Quality of Life (PDQUALIF) - away from social scale

Rating scale for staying away from social gatherings due to the Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Parkinson's Disease
C18104 Quality of Life in Swallowing Disorders (SWAL-QOL) - current marital status

Current marital status of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab Comprehensive
C17385 Parkinson's Disease Quality of Life (PDQUALIF) - hygiene independence 7 days scale

Rating scale for personal hygiene (bathing, hair care, make up, shaving, or toileting) independence in past 7 days as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C09305 Apathy Scale (AS) - Indifference scale

The scale related to subject's indifference to things, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C09313 Apathy Scale (AS) - Neutral mood scale

The scale related to subject's self reflection on their own mood and attitude towards the life that surrounds them, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C17361 Parkinson's Disease Quality of Life (PDQUALIF) - lightheaded scale

Rating scale for lightheaded symptom caused by changing positions (lying to standing, or sitting to standing) as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C09300 Apathy Scale (AS) - Comment text

Comments about the subjects apathetic rating, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab Comprehensive
C18102 Quality of Life in Swallowing Disorders (SWAL-QOL) - race indicator

Racial group of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C17369 Parkinson's Disease Quality of Life (PDQUALIF) - constipation scale

Rating scale for constipation problem as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C09308 Apathy Scale (AS) - Goal scale

The scale related to whether or not the subject has goals and plans for the future, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab Comprehensive
C17377 Parkinson's Disease Quality of Life (PDQUALIF) - independent important scale

Rating scale for feeling important to maintain independence as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C17391 Parkinson's Disease Quality of Life (PDQUALIF) - driving interfered 7 days scale

Rating scale for interfered driving ability due to Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Parkinson's Disease
C17392 Parkinson's Disease Quality of Life (PDQUALIF) - financial strain 7 days scale

Rating scale for a financial strain due to the illness in past 7 days as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C17367 Parkinson's Disease Quality of Life (PDQUALIF) - aching limb scale

Rating Scale for having aching/burning/coldness/numbness in the hand/feet as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Parkinson's Disease
C17375 Parkinson's Disease Quality of Life (PDQUALIF) - worry future scale

Rating scale for worrying about what the future has in store as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Parkinson's Disease
C17383 Parkinson's Disease Quality of Life (PDQUALIF) - family friends view change scale

Rating scale for feeing that your spouse/children/friends' view of you has changed because of your illness as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Parkinson's Disease
C18105 Quality of Life in Swallowing Disorders (SWAL-QOL) - help questionnaire indicator

Indicator of whether subject received help to complete this questionnaire or not,

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab Comprehensive
C17386 Parkinson's Disease Quality of Life (PDQUALIF) - food preparation eating independent 7 days scale

Rating scale for preparing and eating independently in the past 7 days as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C09306 Apathy Scale (AS) - Effort scale

The scale related to subject's desire to put effort into things, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C09314 Apathy Scale (AS) - Apathetic scale

The scale related to subject's self reflection on personal apathetic state, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C17362 Parkinson's Disease Quality of Life (PDQUALIF) - trouble balance scale

Rating scale for trouble keeping balance while walking as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C09301 Apathy Scale (AS) - Learn eagerness scale

The scale related to subject's eagerness to learn new things, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab Comprehensive
C18103 Quality of Life in Swallowing Disorders (SWAL-QOL) - education scale

Education level of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C17370 Parkinson's Disease Quality of Life (PDQUALIF) - trouble fall asleep scale

Rating scale for trouble falling asleep, or waking early due to the Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
Displaying 251 - 275 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.