CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 3808
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09306 Apathy Scale (AS) - Effort scale

The scale related to subject's desire to put effort into things, as part of the Apathy Scale (AS) form

 NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) True NeuroRehab NeuroRehab Comprehensive
C09314 Apathy Scale (AS) - Apathetic scale

The scale related to subject's self reflection on personal apathetic state, as part of the Apathy Scale (AS) form

 NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) True NeuroRehab NeuroRehab Comprehensive
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C05454 Hypertension indicator

Indicator of hypertension. In adults, hypertension is defined as a systolic pressure >= 140 and a diastolic >= 90. In children, it is defined as systolic blood pressure >95th percentile for age

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C02308 Adverse event during study indicator

Indicator of whether the participant experienced any adverse events during the study

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C06060 Pain location indicator

Indicates if the participant experienced pain in the particular location described jointly by the laterality and anatomic site

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C22804 Pain present eleven point intensity scale

Scale for the participant's current pain intensity based on an a scale of 0-10

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C19126 Clinical trial name

Name of clinical trial in which patient/participant is enrolled

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C55568 Arthritis Indicator

Indicator as to whether the participant/subject has been diagnosed with arthritis

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C02304 Adverse event study intervention relatedness investigator assessment grade

Grade of the causality between the treatment modality/intervention and the specific adverse event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C02309 Serious adverse event indicator

Indicator of whether the adverse event is serious

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C08147 Data source

Source of the data provided on the case report form

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C19247 Subject ID

Subject identification ID

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C55575 Neurological disorder indicator

Indicator as to whether the participant/subject has a neurological disorder

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C02307 Adverse event verbatim term text

The free-text field that describes the adverse event word for word as described by the participant

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C06059 Pain location anatomic site

Anatomic site on the body where the pain is experienced

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C02310 Adverse event CTCAE term name

Name that represents the Common Terminology Criteria for Adverse Events (CTCAE) term for an adverse event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C18768 Therapy or rehabilitation other text

The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C14639 Ambulatory status

Status that reflects the participant's ability to walk

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C19256 Study protocol name

Name of study protocol

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
Displaying 251 - 275 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.