CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2899-C09308	C09308	Apathy Scale (AS) - Goal scale	The scale related to whether or not the subject has goals and plans for the future, as part of the Apathy Scale (AS) form	NeuroRehab Supplemental-Highly Recommended	Apathy Scale (AS)	True	NeuroRehab	NeuroRehab General
F2899-C09303	C09303	Apathy Scale (AS) - Personal instruction indicator	The scale related to subject's ability to start new tasks without prodding, as part of the Apathy Scale (AS)	NeuroRehab Supplemental-Highly Recommended	Apathy Scale (AS)	True	NeuroRehab	NeuroRehab Comprehensive
F2939-C02304	C02304	Adverse event relatedness scale	Scale of the causality between the treatment modality/intervention and the specific adverse event	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C52564	C52564	Data source family relation specify text	Free-text field specifying the relationship of the family member from which data on the participant was obtained	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C19247	C19247	Subject ID	Subject identification ID	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C55575	C55575	Neurological disorder indicator	Indicator as to whether the participant/subject has a neurological disorder	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C02311	C02311	Adverse event MedDRA lower level term code	Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C17402	C17402	Site name	The name of the site for the study	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C02307	C02307	Adverse event verbatim term text	Text that describes the adverse event word for word as described by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C06059	C06059	Pain location anatomic site	Anatomic site on the body where the pain is experienced	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C18768	C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C53062	C53062	Diabetes mellitus medical history indicator	Indicator as to whether the participant/subject has a medical history of diabetes mellitus (type I or type II)	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C19256	C19256	Study protocol name	Name of study protocol	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C57102	C57102	Sleep problem diagnosis type	Type of diagnosis for sleep problem	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C05130	C05130	Therapy or rehabilitation type	Type of therapy or rehabilitation services received by the participant/subject	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C17447	C17447	Event description text	The free-text field to describe the event	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C02308	C02308	Adverse event during study indicator	Indicator of whether the participant/subject experienced any adverse events during the study	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C06060	C06060	Pain location indicator	Indicates if the participant experienced pain in the particular location described jointly by the laterality and anatomic site	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C19126	C19126	Clinical trial name	Name of clinical trial in which patient/participant is enrolled	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C55568	C55568	Arthritis Indicator	Indicator as to whether the participant/subject has been diagnosed with arthritis	NeuroRehab Supplemental-Highly Recommended	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2939-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.