CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 3808
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09304 Apathy Scale (AS) - Condition concern scale

The scale related to subject's concern for ones own condition, as part of the Apathy Scale (AS) form

 NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) True NeuroRehab NeuroRehab General
C09312 Apathy Scale (AS) - Start task ability no prompt scale

The scale related to subject's ability to start tasks without prompting, as part of the Apathy Scale (AS) form

 NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) True NeuroRehab NeuroRehab General
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C18768 Therapy or rehabilitation other text

The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C14639 Ambulatory status

Status that reflects the participant's ability to walk

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C19256 Study protocol name

Name of study protocol

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C57102 Sleep problem diagnosis type

Type of diagnosis for sleep problem

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C02307 Adverse event verbatim term text

Text that describes the adverse event word for word as described by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C06059 Pain location anatomic site

Anatomic site on the body where the pain is experienced

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C02310 Adverse event CTCAE low level term name

Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C52564 Data source family relation specify text

Free-text field specifying the relationship of the family member from which data on the participant was obtained

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C02311 Adverse event MedDRA lower level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C19126 Clinical trial name

Name of clinical trial in which patient/participant is enrolled

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C17402 Site name

The name of the site for the study

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C19500 Assessment performed date

The date of assessment of the examination being performed

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C02308 Adverse event during study indicator

Indicator of whether the participant/subject experienced any adverse events during the study

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C06060 Pain location indicator

Indicates if the participant experienced pain in the particular location described jointly by the laterality and anatomic site

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C53062 Diabetes mellitus medical history indicator

Indicator as to whether the participant/subject has a medical history of diabetes mellitus (type I or type II)

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C05130 Therapy or rehabilitation type

Type of therapy or rehabilitation services received by the participant/subject

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C19247 Subject ID

Subject identification ID

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C17447 Event description text

The free-text field to describe the event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C21925 Balance falls frequency

The frequency as related to falls

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
Displaying 251 - 275 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.