CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C07027 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Desire hallucinogen frequency

Frequency for how often the participant/subject had a strong desire to use hallucinogens (LSD, acid, mushrooms, PCP, Special K, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab Comprehensive
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C09949 World Health Organization Quality of Life (WHOQOL-BREF) - personal relationship scale

Scale used to assess personal relationship satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C21652 Elbow wrist orthosis type

Type of elbow or wrist orthosis the participant/subject uses

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C18647 Brief Symptom Inventory-18 (BSI18)- Global Severity Index normalized T score

Normalized T score for Global Severity Index symptom scale

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Comprehensive
C52367 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Second other difficulty scale

Scale that rates the severity of how the subject now suffers from other difficulties as compared with before the accident. Rate the second other difficulty

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Subacute Sport Related Concussion
C53854 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 55 text

The word used for Word Reading item 55, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C20985 Frontal Systems Behavior Scale (FrSBE) - Poor judgment problem solver frequency scale

Frequency of showing poor judgment, is a poor problem solver as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab Comprehensive
C20774 Patient-Reported Outcome Measurement Information System (PROMIS) - Alter normal routine anxiety assessment past week scale

The scale which represents how often the participant was anxious if his normal routine was disturbed in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety NeuroRehab NeuroRehab General
C07072 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Total c score

Score for the total sum of all the question C scores (cannabis), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab General
C18183 Wheelchair driven subject indicator

Indicator for whether the power wheelchair is driven by the participant/subject

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C20558 TBI Quality of Life (TBI-QOL) - Attention concentration T-score

The T-Score related to attention/concentration, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab TBI Comprehensive
C14698 Berg Balance Scale (BBS) - unsupport stand closed eyes scale

The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

NeuroRehab Supplemental-Highly Recommended Berg Balance Scale (BBS) NeuroRehab NeuroRehab General
C07098 Center for Epidemiologic Studies-Depression Scale (CES-D) - hopeful future indicator

Indicates how often the subject felt hopefully about the future in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

NeuroRehab Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) NeuroRehab NeuroRehab Comprehensive
C20806 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep lightness assessment past week scale

The scale which represents how often the participant's sleep was light in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance NeuroRehab NeuroRehab Comprehensive
C07089 Alcohol Use Disorders Identification Test (AUDIT) - Relative friend doctor concern indicator score

Score for the indicator of whether a relative, friend, doctor, or other health care workers has been concerned about the subject's drinking or suggested the subject cut down, as part of the Alcohol Use Disorders Identification Test (AUDIT)

NeuroRehab Supplemental-Highly Recommended Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) NeuroRehab NeuroRehab Comprehensive
C55727 PROMIS - Self Efficacy managing emotions stay positive scale

Scale related to an individual being able to stay positive when he/she feels like he/she is the only one going through this, as part of the PROMIS Self-Efficacy Managing Emotions

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions NeuroRehab NeuroRehab General
C09937 World Health Organization Quality of Life (WHOQOL-BREF) - safe feel daily scale

Scale used to assess how safe the participant feels on a daily basis, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab Comprehensive
C12686 Orthosis type use indicator

Indicator whether the participant/subject currently uses the selected types of orthosis

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C54451 Dynamic Gait Index (DGI) - Gait head turn horizontal task score

Score for the subject/participant's performance on the Gait with Horizontal Head Turns task, as part of the Dynamic Gait Index (DGI)

NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C17836 Quality of Life in Swallowing Disorders (SWAL-QOL) - education level status

Participant's highest education level

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C55678 PROMIS - Dyspnea Functional limitations stand for 5 minute scale

Scale related to an individual being able to stand for at least 5 minutes, as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Stroke
C11868 Frontal Behavioral Inventory (FBI) - incontinence score

The score the caregiver gives for the participant's/subject's incontinence, as part of the Frontal Behavioral Inventory (FBI) form

NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) NeuroRehab NeuroRehab Comprehensive
C20850 Patient-Reported Outcome Measurement Information System (PROMIS) - Energy sufficient past week scale

The scale which represents how often the participant had enough energy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment NeuroRehab NeuroRehab Stroke
C58632 Access communication device type another body part specify text

Text describing the presence of another body part for type of access communication device used

NeuroRehab Supplemental-Highly Recommended Devices: Communication NeuroRehab NeuroRehab General
Displaying 226 - 250 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.