CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 4412
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C07003 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Cocaine use indicator

Indicator for whether the participant/subject has ever used any cocaine products (coke, crack, etc.) for non-medical use, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab General
C58577 Eat drink assistive device type

Type of eating / drinking device currently used by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C52373 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - First other difficulty text

The free-text field related to 'The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)- First other difficulty scale' specifying the first other difficulty text

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Concussion/Mild TBI
C17375 Parkinson's Disease Quality of Life (PDQUALIF) - worry future scale

Rating scale for worrying about what the future has in store as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Parkinson's Disease
C54447 Functional Gait Assessment (FGA) - Gait level surface task duration

Time taken by the subject/participant to ambulate 20 feet for the level-surface gait task, as part of the Functional Gait Assessment (FGA)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C07440 Patient Health Questionnaire - (PHQ) - Depression questionnaire total score

Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)

 NeuroRehab Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True NeuroRehab NeuroRehab General
C55606 PROMIS - Emotional Distress depression give up on everything scale

Scale related to the individual feeling that he/she wanted to give up on everything, as part of the PROMIS Emotional Distress Depression

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) False NeuroRehab NeuroRehab General
C20973 Frontal Systems Behavior Scale (FrSBE) - Hyperactivity frequency scale

Frequency of being unable to sit still, is hyperactive as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C58485 Dynamic lower extremity stretch orthosis splint use anatomic site

Anatomic site of the dynamic lower extremity stretching orthosis/splints use

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C21117 Subject name

Name of subject/participant

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Comprehensive
C08511 36-item Short Form Health Survey (SF-36) - Health limited walking one block score

Score of surveyee-reported limited walking one block due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True NeuroRehab NeuroRehab Comprehensive
C55675 PROMIS - Dyspnea Functional limitations take bath without help scale

Scale related to an individual being able to take a bath without help, as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Comprehensive
C10322 Quality of Life in Swallowing Disorders (SWAL-QOL) - general health indicator

Scale assessing the general health of the participant. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C20808 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restlessness assessment past week scale

The scale which represents how often the participant's sleep was restless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance True NeuroRehab NeuroRehab Stroke
C09351 Hamilton Anxiety Rating Scale (HAM-A) - somatic sensory score

The score of the participant's/subject's somatic (sensory) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 NeuroRehab Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) False NeuroRehab NeuroRehab General
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C07043 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Amphetamine type stimulant fail frequency

Frequency for how often the participant/subject has used failed to do what was normally expected because of the use of amphetamine type stimulants (speed, diet pills, ecstasy, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab Comprehensive
C21480 Rey Auditory Verbal Learning Test (RAVLT) - Word list A type

The type as related to word used as part of List A in the Rey Auditory Verbal Learning Test (RAVLT)

 NeuroRehab Supplemental-Highly Recommended Rey Auditory Verbal Learning Test (RAVLT) True NeuroRehab NeuroRehab Comprehensive
C56517 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference hard to plan social activities unsure pain scale

Scale related to how often it was hard to plan social activities because an individual didn't know if he/she would be in pain in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference False NeuroRehab NeuroRehab Comprehensive
C09585 Brief Pain Inventory (BPI) - pain walking ability interference scale

Scale assessing how much the pain has interfered with walking ability, as part of the Brief Pain Inventory (BPI) form

 NeuroRehab Supplemental-Highly Recommended Brief Pain Inventory (Short Form) True NeuroRehab NeuroRehab Comprehensive
C53876 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 41 score

The score for Word Reading item 41, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C58471 ADL device use indicator

Indicator of whether the participant/subject uses any ADL (activities of daily living) devices

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C52360 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Forgetfulness scale

Scale that rates the severity of how the subject now suffers from forgetfulness/poor memory as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab TBI Comprehensive
C17370 Parkinson's Disease Quality of Life (PDQUALIF) - trouble fall asleep scale

Rating scale for trouble falling asleep, or waking early due to the Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Comprehensive
C53872 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 10 text

The word used for Word Reading item 10, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
Displaying 201 - 225 of 4412

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.