CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 4412
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C18623 Brief Symptom Inventory-18 (BSI18)- No interest scale

A scale to indicate how much a participant is distressed by feeling no interest in things

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C07017 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Hallucinogen use frequency

Frequency for how often the participant/subject has used hallucinogens (LSD

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab Comprehensive
C19500 Assessment performed date

The date of assessment of the examination being performed

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Subacute Sport Related Concussion
C09939 World Health Organization Quality of Life (WHOQOL-BREF) - energy daily scale

Scale used to assess whether the participant has enough energy for daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab General
C19140 Discipline types

The types of disciplines relevant to rehabilitation services

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C20964 Frontal Systems Behavior Scale (FrSBE) - Speech only with verbal prompt frequency scale

Frequency of speaking only when spoken to as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab Comprehensive
C20793 Quality of Life - Tension assessment past week scale

The scale which represents how often the participant felt tense in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety True NeuroRehab NeuroRehab Comprehensive
C07062 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Cocaine fail control indicator

Indicator for whether the participant/subject has ever tried, but failed to control, cut down or stop using cocaine (coke, crack, etc), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab General
C14292 Durable medical equipment indicator

Indicates if the participant/ subject was provided with any durable medical equipment

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C18635 Brief Symptom Inventory-18 (BSI18)- Hopeless scale

The scale for the participant's distress from feeling hopeless about the future

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Comprehensive
C20440 Beck Depression Inventory II (BDI-II) - Tiredness fatigue scale

Scale identifying level of tiredness or fatigue, as part of the Beck Depression Inventory II (BDI-II)

 NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True NeuroRehab NeuroRehab General
C21292 Quality of Life - Middle night physical tension past week scale

The scale representing how often the participant felt physically tense during the middle of the night or early morning hours in the past 7 days, as part of Neuro-QOL Sleep Disturbance

 NeuroRehab Supplemental-Highly Recommended Neuro-QOL Adult Bank - Sleep Disturbance True NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C21105 Frontal Systems Behavior Scale (FrSBE) - Invalid score indicator

Indicator if Frontal Systems Behavior Scale (FrSBE) is invalid (has more than 5 questions missing)

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C55717 PROMIS - Self Efficacy managing emotions avoid upset thoughts scale

Scale related to an individual being able to avoid upsetting thoughts, as part of the PROMIS Self-Efficacy Managing Emotions

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions False NeuroRehab NeuroRehab General
C10315 Quality of Life in Swallowing Disorders (SWAL-QOL) - troubling falling asleep indicator

Scale assessing how true the following statement has been for the participant during the last month: Have trouble falling asleep? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C55668 PROMIS - Dyspnea Functional limitations prepare meals scale

Scale related to an individual being able to prepare meals, as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Stroke
C11858 Frontal Behavioral Inventory (FBI) - hoarding score

The score the caregiver gives for the participant's/subject's hoarding, as part of the Frontal Behavioral Inventory (FBI) form

 NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) True NeuroRehab NeuroRehab Comprehensive
C20840 Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken ready start day past week scale

The scale which represents the extent to which the participant felt ready to start the day upon waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment True NeuroRehab NeuroRehab Stroke
C54139 Victoria Symptom Validity Test (VSVT) - Total items correct number

The total number of easy and difficult items the subject correctly responded, as a part of the Victoria Symptom Validity Test (VSVT)

 NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) True NeuroRehab NeuroRehab General
C55157 PROMIS - Alcohol use drink consumption indicator

Indicator of an individual's consumption of an alcoholic beverage within 30 days, as part of the PROMIS Alcohol Use

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences False NeuroRehab NeuroRehab Comprehensive
C20422 Beck Depression Inventory II (BDI-II) - Agitation scale

Scale identifying level of agitation, as part of the Beck Depression Inventory II (BDI-II)

 NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True NeuroRehab NeuroRehab Comprehensive
C56496 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference participate social activity ability scale

Scale which represents how often the participant felt pain interfered with participant's ability to participate in social activity over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference False NeuroRehab NeuroRehab Stroke
C21854 Brief Test of Adult Cognition by Telephone (BTACT) - Number series response type text

Text for type of responses in the Number Series Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)

 NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) False NeuroRehab NeuroRehab Comprehensive
C53897 Stroop Color and Word Test (SCW) - Word age educate predict score

Score (Age/Edu. Predict) of the word test, as part of the Stroop Color and Word Test (SCW)

 NeuroRehab Supplemental-Highly Recommended Stroop Test True NeuroRehab NeuroRehab General
C10275 Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Dealing with my swallowing problem is very difficult, as part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
Displaying 176 - 200 of 4412

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.