CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C53793 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 22 score

The score for Word Reading item 22, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C21855 Beck Anxiety Inventory (BAI) - Feel shaky bother scale

Scale that represents how much the participant has been bothered by feeling shaky as part of the Beck Anxiety Inventory (BAI)

NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) NeuroRehab NeuroRehab Comprehensive
C07011 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Alcoholic beverage frequency

Frequency for how often the participant/subject has consumed alcoholic beverages (beer, wine, spirits, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab General
C58511 Nonspeak communication device type other text

Text describing the presence of any other type of non-speaking communication device used

NeuroRehab Supplemental-Highly Recommended Devices: Communication NeuroRehab NeuroRehab Comprehensive
C52381 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - First other difficulty scale

Scale that rates the severity of how the subject now suffers from other difficulties as compared with before the accident. Rate the first other difficulty

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Concussion/Mild TBI
C17383 Parkinson's Disease Quality of Life (PDQUALIF) - family friends view change scale

Rating scale for feeing that your spouse/children/friends' view of you has changed because of your illness as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Parkinson's Disease
C58623 Number days week count

Count of days per week a stander used by the participant/subject

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C54455 Dynamic Gait Index (DGI) - Gait turn pivot task score

Score for the subject/participant's performance on the Gait And Pivot Turn task, as part of the Dynamic Gait Index (DGI)

NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C20991 Frontal Systems Behavior Scale (FrSBE) - Anger easily frequency scale

Frequency of being easily angered or irritated, having emotional outbursts without good reason as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab General
C55614 PROMIS - Emotional Distress depression trouble making decision scale

Scale related to the individual having trouble making decisions, as part of the PROMIS Emotional Distress Depression

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) NeuroRehab NeuroRehab General
C52366 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for items 1-16 excluding ratings of 1

Sum of the ratings for items 1-16 of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Comprehensive
C08519 36-item Short Form Health Survey (SF-36) - Work not carefully emotional problems indicator

Indicator for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) NeuroRehab NeuroRehab Comprehensive
C58493 Activity Daily Living device type other text

Text describing the presence of any other activity of daily living device used

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C09359 Hamilton Depression Rating Scale (HDRS) - anxiety psychic difficulty indicator

Score for the participant/subject's degree of psychic anxiety, as part of the Hamilton Depression Rating Scale (HDRS)

NeuroRehab Supplemental-Highly Recommended Hamilton Depression Rating Scale (HDRS) NeuroRehab NeuroRehab Comprehensive
C20816 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale

The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance NeuroRehab NeuroRehab Stroke
C07051 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Cannabis concern indicator

Indicator for whether a friend or relative or anyone else has ever expressed concern for the participant/subject's use of cannabis (marijuana, pot, grass, hash, etc), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab Comprehensive
C02311 Adverse event MedDRA lower level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C09578 Brief Pain Inventory (BPI) - least pain rating scale

Scale indicating the rating of the least pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

NeuroRehab Supplemental-Highly Recommended Brief Pain Inventory (Short Form) NeuroRehab NeuroRehab Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C56485 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain interfere ability concentrate scale

Scale related to how much pain interfered with an individual's ability to concentrate in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C21041 Frontal Systems Behavior Scale (FrSBE) - Benefit accept criticism frequency scale

Frequency of benefitting from feedback, accepting constructive criticism from others as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab Comprehensive
C55602 PROMIS - Emotional Distress depression withdrew from people scale

Scale related to the individual withdrawing from other people, as part of the PROMIS Emotional Distress Depression

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) NeuroRehab NeuroRehab Comprehensive
C56316 NIH Toolbox Cognitive ? Flanker inhibitory control and attention age 3 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C10290 Quality of Life in Swallowing Disorders (SWAL-QOL) - clear throat problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Having to clear your throat. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab Comprehensive
C55308 PROMIS - Negative consequences headache after drink scale

Scale related to the individual having a headache after he/she drank, as part of the PROMIS Negative Consequences

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences NeuroRehab NeuroRehab Stroke
C07101 Center for Epidemiologic Studies-Depression Scale (CES-D) - Restless sleep indicator

Indicates how often the subject had restless sleep in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

NeuroRehab Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) NeuroRehab NeuroRehab General
Displaying 176 - 200 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.