CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 4412
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C11854 Frontal Behavioral Inventory (FBI) - comprehension semantic deficit score

The score the caregiver gives for the participant's/subject's comprehension (semantic) deficit, as part of the Frontal Behavioral Inventory (FBI) form

 NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) True NeuroRehab NeuroRehab Comprehensive
C20852 Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale

The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment True NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C56300 NIH Toolbox Cognitive – Cognition total composite fully adjusted scale score

The total composite fully adjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab Comprehensive
C54135 Victoria Symptom Validity Test (VSVT) - Difficult item latency value

The subject's average response latency for the difficult item types of the Victoria Symptom Validity Test (VSVT)

 NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) True NeuroRehab NeuroRehab General
C13210 Generalized Anxiety Disorder (GAD-7) - easily annoyed scale

Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7)

 NeuroRehab Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) True NeuroRehab NeuroRehab General
C56492 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference work ability scale

Scale related to how much pain interfered with an individual's ability to work (including work at home) in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference False NeuroRehab NeuroRehab Stroke
C21840 Brief Test of Adult Cognition by Telephone (BTACT) - Category fluency test category

Category of responses in the Category Fluency Test, as part of Brief Test of Adult Cognition by Telephone (BTACT)

 NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) False NeuroRehab NeuroRehab Comprehensive
C15910 Assessment date and time

The date of participant's injury

 NeuroRehab Supplemental-Highly Recommended Stroop Test True NeuroRehab NeuroRehab General
C18105 Quality of Life in Swallowing Disorders (SWAL-QOL) - help questionnaire indicator

Indicator of whether subject received help to complete this questionnaire or not,

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C55690 PROMIS - Dyspnea Functional limitations get in or out car scale

Scale related to an individual being able to get in or out of a car, as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Comprehensive
C53767 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 7 score

The score for Word Reading item 7, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C20502 Grooved Pegboard Test (GPT) - Dominant hand time T-score

Hand time T-score to determine statistical significance for the hand time and pegs placed/dropped, as part of Grooved Pegboard Test (GPT)

 NeuroRehab Supplemental-Highly Recommended Grooved Pegboard Test True NeuroRehab NeuroRehab Comprehensive
C21578 Medical Symptom Validity Test (MSVT) - Immediate recall percentage value

The percentage value related to immediate recall in the Medical Symptoms Validity Test (MSVT)

 NeuroRehab Supplemental-Highly Recommended Medical Symptom Validity Test (MSVT) True NeuroRehab NeuroRehab General
C53763 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 5 score

The score for Word Reading item 5, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C20565 TBI Quality of Life (TBI-QOL) - Fatigue T-score

The T-Score related to sensations ranging from tiredness to an overwhelming, debilitating and sustained sense of exhaustion that likely decreases one's ability to execute daily activities and function normally in family or social roles, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Moderate/Severe TBI: Rehabilitation
C07187 The Galveston Orientation and Amnesia Test (GOAT) - Time score

Scored ability to identify the current time, as part of the Galveston Orientation and Amnesia Test (GOAT)

 NeuroRehab Supplemental-Highly Recommended Galveston Orientation and Amnesia Test (GOAT) True NeuroRehab NeuroRehab Comprehensive
C56324 NIH Toolbox Cognitive – Dimensional change card sort age 3 up raw score

The raw score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab General
C52376 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Fatigue scale

Scale that rates the severity of how the subject now suffers from fatigue and/or tiring more easily as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab TBI Comprehensive
C17386 Parkinson's Disease Quality of Life (PDQUALIF) - food preparation eating independent 7 days scale

Rating scale for preparing and eating independently in the past 7 days as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Comprehensive
C58489 Seat lie position device type

Type of seated or lying position device currently used by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C53727 Wide Range Achievement Test 4 (WRAT-4) - Letter 1 text

The letter used for Letter Recognition item 1, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C09306 Apathy Scale (AS) - Effort scale

The scale related to subject's desire to put effort into things, as part of the Apathy Scale (AS) form

 NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) True NeuroRehab NeuroRehab General
C22614 Home medical equipment other text

The free-text field related to Home medical equipment type' specifying other text. If the participant/ subject was provided with any home medical equipment, describes the type(s) of equipment received

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C17409 Visit date

Date of interview or visit (actually the date when data in the form were captured)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C20578 TBI Quality of Life (TBI-QOL) - Mobility T-score

The T-Score related to ability to carry out various activities involving the trunk region and increasing degrees of bodily movement, ambulation, balance, or endurance, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab TBI Epidemiology
Displaying 126 - 150 of 4412

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.