CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09370 Hamilton Depression Rating Scale (HDRS) - early night insomnia indicator

Score for the participant/subject's difficulty, if any, with early-night insomnia, as part of the Hamilton Depression Rating Scale (HDRS)

NeuroRehab Supplemental-Highly Recommended Hamilton Depression Rating Scale (HDRS) NeuroRehab NeuroRehab General
C20851 Patient-Reported Outcome Measurement Information System (PROMIS) - sleepy during daytime past week scale

The scale which represents how often the participant was sleepy during the daytime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment NeuroRehab NeuroRehab Comprehensive
C56283 NIH Toolbox Cognitive – Cognition fluid composite raw score

The raw score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab Comprehensive
C54141 Victoria Symptom Validity Test (VSVT) - Total difficult item latency value

The subject's total average response latency for the difficult item types of the Victoria Symptom Validity Test (VSVT)

NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) NeuroRehab NeuroRehab Comprehensive
C56515 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 30 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 30 minutes in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C07192 The Galveston Orientation and Amnesia Test (GOAT) - Total score

Total score, as part of the Galveston Orientation and Amnesia Test (GOAT)

NeuroRehab Supplemental-Highly Recommended Galveston Orientation and Amnesia Test (GOAT) NeuroRehab NeuroRehab General
C56352 NIH Toolbox Cognitive – Oral reading recognition english age 7 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C53750 Wide Range Achievement Test 4 (WRAT-4) - Letter 14 score

Score for Letter Recognition item 14, as a part of the Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C54270 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Statistical significance value

Statistical significance, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab General
C53746 Wide Range Achievement Test 4 (WRAT-4) - Letter 12 score

Score for Letter Recognition item 12, as a part of the Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C20578 TBI Quality of Life (TBI-QOL) - Mobility T-score

The T-Score related to ability to carry out various activities involving the trunk region and increasing degrees of bodily movement, ambulation, balance, or endurance, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Concussion/Mild TBI
C53875 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 41 text

The word used for Word Reading item 41, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C52359 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Double vision scale

Scale that rates the severity of how the subject now suffers from double vision as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab TBI Comprehensive
C17369 Parkinson's Disease Quality of Life (PDQUALIF) - constipation scale

Rating scale for constipation problem as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C58470 Transfer transportation device use indicator

Indicator of whether the participant/subject uses any transfer/transportation devices

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C53871 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 9 score

The score for Word Reading item 9, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C09308 Apathy Scale (AS) - Goal scale

The scale related to whether or not the subject has goals and plans for the future, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab Comprehensive
C19141 Discipline other text

The free text field related to "Discipline types" specifying other text. The type of discipline

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C21901 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest item number

Item number, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

NeuroRehab Supplemental-Highly Recommended Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) NeuroRehab NeuroRehab Comprehensive
C20585 TBI Quality of Life (TBI-QOL) - Upper extremity function T-score

The T-Score related to ability to carry out various activities involving digital, manual, and reach-related functions, ranging from fine motor to self-care (activities of daily living), as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab TBI Comprehensive
C18636 Brief Symptom Inventory-18 (BSI18)- Restless scale

The scale for the participant's distress from feeling so restless they couldn't sit still

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Acute Sport Related Concussion
C07004 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Amphetamine type stimulant use indicator

Indicator for whether the participant/subject has ever used any amphetamine type stimulants (speed, diet pills, ecstasy, etc.) for non-medical use, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab Comprehensive
C54693 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale

Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health NeuroRehab NeuroRehab General
C52369 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Longer to think scale

Scale that rates the severity of how the subject now suffers from taking longer to think as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C09954 World Health Organization Quality of Life (WHOQOL-BREF) - mode transportation scale

Scale used to assess transportation mode satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab Comprehensive
Displaying 126 - 150 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.