CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 126 - 150 of 4412
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09311 Apathy Scale (AS) - Unconcern scale

The scale related to how concerned with the ongoings of life the subject is, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C53728 Wide Range Achievement Test 4 (WRAT-4) - Letter 1 score

Score for Letter Recognition item 1, as a part of the Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C20584 TBI Quality of Life (TBI-QOL) - Stigma T-score

The T-Score related to others' perceptions of oneself and publically enacted negativity, prejudice, and discrimination as a result of injury-related manifestations, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab TBI Epidemiology
C53857 Wide Range Achievement Test 4 Revision 4 (WRAT) - total raw score

Word reading total raw score for the Wide Range Achievement Test Revision 4 (WRAT)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C18632 Brief Symptom Inventory-18 (BSI18)- Feeling worthless scale

The scale for the participant's distress from feelings of worthlessness

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C07026 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Desire sedative sleep pill frequency

Frequency for how often the particpant/subject had a strong desire to use sedative or sleeping pills (Valium, Serepax, Rohypnol, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab Comprehensive
C21651 Upper extremity orthosis type

Type of upper extremity orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs) the participant/subject uses

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C52366 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for items 1-16 excluding ratings of 1

Sum of the ratings for items 1-16 of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Subacute Sport Related Concussion
C09948 World Health Organization Quality of Life (WHOQOL-BREF) - ability satisfaction scale

Scale used to assess ability satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C20773 Patient-Reported Outcome Measurement Information System (PROMIS) - Heart rate fast assessment past week scale

The scale which represents how often the participant had a racing or pounding heart in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and PHQ-15 - Feeling your heart pount or race

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety NeuroRehab NeuroRehab General
C20982 Frontal Systems Behavior Scale (FrSBE) - Interrupt conversation frequency scale

Frequency of talking out of turn, interrupts others in conversations as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab Comprehensive
C18182 Therapy rehabilitation frequency

Frequency the participant/subject received the therapy or rehabilitation

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C07071 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Total b score

Score for the total sum of all the question B scores (alcoholic beverages), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab General
C20805 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restfulness assessment past week scale

The scale which represents how often the participant's sleep was restful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance NeuroRehab NeuroRehab Comprehensive
C18644 Brief Symptom Inventory-18 (BSI18)- Anxiety raw score

Raw score for anxiety symptom scale

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Comprehensive
C07097 Center for Epidemiologic Studies-Depression Scale (CES-D) - everything effort indicator

Indicates how often the subject felt that everything he/she did was an effort in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

NeuroRehab Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) NeuroRehab NeuroRehab Comprehensive
C55726 PROMIS - Self Efficacy managing emotions manage anger other dont understand scale

Scale related to an individual being able to manage his/her anger when others don't understand what he/she is going through, as part of the PROMIS Self-Efficacy Managing Emotions

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions NeuroRehab NeuroRehab General
C07088 Alcohol Use Disorders Identification Test (AUDIT) - Drink injury indicator score

Score for the indicator of whether someone that the subject knows was injured due to his or her drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)

NeuroRehab Supplemental-Highly Recommended Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) NeuroRehab NeuroRehab Comprehensive
C12685 Wheelchair use frequency

Frequency with which the participant/subject uses their wheelchair, if applicable

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C55677 PROMIS - Dyspnea Functional limitations put socks stockings on scale

Scale related to an individual being able to put on socks or stockings, as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Stroke
C17834 Quality of Life in Swallowing Disorders (SWAL-QOL) - age number

Age of subject/participant

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C20849 Patient-Reported Outcome Measurement Information System (PROMIS) - Emotional control difficulty poor sleep past week scale

The scale which represents how often the participant had a hard time controlling his emotions because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment NeuroRehab NeuroRehab Stroke
C11867 Frontal Behavioral Inventory (FBI) - utilization behavior score

The score the caregiver gives for the participant's/subject's utilization behavior, as part of the Frontal Behavioral Inventory (FBI) form

NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) NeuroRehab NeuroRehab Comprehensive
C55307 PROMIS - Negative consequences guilty when drink scale

Scale related to the individual feeling guilty when he/she drank, as part of the PROMIS Negative Consequences

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences NeuroRehab NeuroRehab Comprehensive
C54451 Dynamic Gait Index (DGI) - Gait head turn horizontal task score

Score for the subject/participant's performance on the Gait with Horizontal Head Turns task, as part of the Dynamic Gait Index (DGI)

NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
Displaying 126 - 150 of 4412

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.