CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C55714 PROMIS - Self Efficacy managing emotions avoid angry scale

Scale related to an individual being able to avoid becoming angry, as part of the PROMIS Self-Efficacy Managing Emotions

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions NeuroRehab NeuroRehab Comprehensive
C56498 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference ability make trip from home scale

Scale which represents how often the participant felt pain interfered with the ability to make trip from home over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C10279 Quality of Life in Swallowing Disorders (SWAL-QOL) - rare realization hunger indicator

Scale assessing how true the following statement has been for the participant during the last month: I'm rarely hungry anymore, as part of Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C14836 Activities specific Balance Confidence Scale (ABC-Scale) - bend to floor scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when bending over and pick up an object from the floor

NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) NeuroRehab NeuroRehab General
C54137 Victoria Symptom Validity Test (VSVT) - Total easy items correct number

The total number of easy items the subject correctly responded, as a part of the Victoria Symptom Validity Test (VSVT)

NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) NeuroRehab NeuroRehab General
C07054 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Inhalant concern indicator

Indicator for whether a friend or relative or anyone else has ever expressed concern for the participant/subject's use of inhalants (nitrous, glue, petrol, paint thinner, etc), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab Comprehensive
C56498 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference ability make trip from home scale

Scale which represents how often the participant felt pain interfered with the ability to make trip from home over the past seven days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Comprehensive
C56315 NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C20562 TBI Quality of Life (TBI-QOL) - Emotional behavioral dyscontrol T-score

The T-Score related to a set of injury and/or treatment related manifestations including disinhibition, emotional lability, irritability, impatience, and impulsiveness, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Concussion/Mild TBI
C52368 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Second other difficulty text

The free-text field related to 'The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)- Second other difficulty scale' specifying the second other difficulty text

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Concussion/Mild TBI
C21580 Medical Symptom Validity Test (MSVT) - Consistency percentage value

The percentage value related to consistency in the Medical Symptom Validity Test (MSVT)

NeuroRehab Supplemental-Highly Recommended Medical Symptom Validity Test (MSVT) NeuroRehab NeuroRehab General
C18634 Brief Symptom Inventory-18 (BSI18)- Numbness or tingling scale

The scale for the participant's distress from numbness or tingling in parts of their body

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C56293 NIH Toolbox Cognitive – Cognition early childhood composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab Comprehensive
C53905 Stroop Color and Word Test (SCW) - Color word age educate predict score

Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)

NeuroRehab Supplemental-Highly Recommended Stroop Test NeuroRehab NeuroRehab Comprehensive
C54277 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus language difference score

Difference score calculated as a subtraction of Language index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab Comprehensive
C20570 TBI Quality of Life (TBI-QOL) - Headache T-score

The T-Score related to various aspects of headache pain including subjective experience of headache pain, the quality and severity of headache pain, and consequences of headache pain on relevant aspects of one's day to day life, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Comprehensive
C56347 NIH Toolbox Cognitive – Oral reading recognition english age 7 up raw score

The raw score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab Comprehensive
C09350 Hamilton Anxiety Rating Scale (HAM-A) - tension score

The score of the participant's/subject's tension, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

NeuroRehab Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) NeuroRehab NeuroRehab General
C20574 TBI Quality of Life (TBI-QOL) - Independence T-score

The T-Score related to perceived independence, ability to tell others about one's needs, and sense of control over one's life, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab TBI Comprehensive
C09933 World Health Organization Quality of Life (WHOQOL-BREF) - medical treatment to function scale

Scale used to assess how much medical treatment is needed to function in daily life, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab Comprehensive
C18646 Brief Symptom Inventory-18 (BSI18)- Global Severity Index raw score

Raw score for Global Severity Index symptom scale

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Comprehensive
C54280 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus language difference score

Difference score calculated as a subtraction of Language index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab General
C56320 NIH Toolbox Cognitive – List scoring working memory age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C54467 Functional Gait Assessment (FGA) - Total score

Total score for the subject/participant's performance on all tasks, as part of the Functional Gait Assessment (FGA)

NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health NeuroRehab NeuroRehab Comprehensive
Displaying 101 - 125 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.