CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 501 - 525 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C55693 PROMIS - Dyspnea Functional limitations moderate intensity leisure scale

Scale related to an individual being able to do a moderate-intensity leisure activity (bicycling on level terrain, etc.), as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Comprehensive
C53770 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 9 text

The word used for Word Reading item 9, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C20501 Grooved Pegboard Test (GPT) - Dominant hand time duration

Duration of time for hand to place pegs as part of Grooved Pegboard Test (GPT)

 NeuroRehab Supplemental-Highly Recommended Grooved Pegboard Test True NeuroRehab NeuroRehab General
C21581 Medical Symptom Validity Test (MSVT) - Pair associate percentage value

The percentage value related to paired associates in the Medical Symptom Validity Test (MSVT)

 NeuroRehab Supplemental-Highly Recommended Medical Symptom Validity Test (MSVT) True NeuroRehab NeuroRehab General
C53766 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 7 text

The word used for Word Reading item 7, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C07190 The Galveston Orientation and Amnesia Test (GOAT) - Month score

Scored ability to identify the current month, as part of the Galveston Orientation and Amnesia Test (GOAT)

 NeuroRehab Supplemental-Highly Recommended Galveston Orientation and Amnesia Test (GOAT) True NeuroRehab NeuroRehab Comprehensive
C56328 NIH Toolbox Cognitive – Dimensional change card sort age 3 up age adjusted scale score

The age adjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab General
C52379 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Light sensitivity scale

Scale that rates the severity of how the subject now suffers from light sensitivity and easily upset by bright light as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab TBI Comprehensive
C17389 Parkinson's Disease Quality of Life (PDQUALIF) - usual share interfered 7 days scale

Rating scale for the ability to do usual share in the home interfered by the Parkinson's symptoms in past 7 days as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Comprehensive
C53730 Wide Range Achievement Test 4 (WRAT-4) - Letter 2 score

Score for Letter Recognition item 2, as a part of the Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C54250 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Picture naming total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Picture Naming Subtest

 NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True NeuroRehab NeuroRehab General
C09309 Apathy Scale (AS) - Motivation scale

The scale related to the subject's self motivation, as part of the Apathy Scale (SC) form

 NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) True NeuroRehab NeuroRehab General
C22908 Physical therapy adaptive equipment orthotic session type

The type of session related to adaptive equipment or orthotics related to the physical therapy

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C53726 Wide Range Achievement Test 4 (WRAT-4) - Word reading test type

The type of sub-test performed, as part of the Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C20582 TBI Quality of Life (TBI-QOL) - Satisfaction social roles activities T-score

The T-Score related to satisfaction with involvement in one's usual social roles, activities, and responsibilities, including work, family, friends, and leisure, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab TBI Epidemiology
C53855 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 55 score

The score for Word Reading item 55, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C18630 Brief Symptom Inventory-18 (BSI18)- Suddenly scared scale

The scale for the participant's distress from suddenly scared for no reason

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C07024 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Desire amphetamine type stimulant frequency

Frequency for how often the participant/subject had a strong desire to use amphetamine type stimulants (speed, diet pills, ecstasy, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab Comprehensive
C52364 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Headaches scale

Scale that rates the severity of how the subject now suffers from headaches as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Subacute Sport Related Concussion
C09946 World Health Organization Quality of Life (WHOQOL-BREF) - ability perform daily scale

Scale used to assess how satisfied the participant is with his ability to perform daily living activities, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab General
C21648 Walker wheel number

Designates the number of wheels the walker has that the participant/subject uses

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C53851 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 53 score

The score for Word Reading item 53, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C20978 Frontal Systems Behavior Scale (FrSBE) - No concern urine bowel control loss frequency scale

Frequency of losing control of urine or bowels and seems unconcerned as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab Comprehensive
C20770 Patient-Reported Outcome Measurement Information System (PROMIS) - Mental health concern past week scale

The scale which represents how often the participant was concerned about his mental health in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety True NeuroRehab NeuroRehab General
C07069 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Drug by injection indicator

Indicator for whether the participant/subject has ever taken a drug via injection before, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab General
Displaying 501 - 525 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.