CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 3808
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C52370 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Dizziness scale

Scale that rates the severity of how the subject now suffers from dizziness as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab TBI Comprehensive
C21492 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest number series text

Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest

 NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False NeuroRehab NeuroRehab General
C54695 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale

Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health True NeuroRehab NeuroRehab General
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C21920 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest number series text

Series of numbers, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

 NeuroRehab Supplemental-Highly Recommended Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) True NeuroRehab NeuroRehab General
C20585 TBI Quality of Life (TBI-QOL) - Upper extremity function T-score

The T-Score related to ability to carry out various activities involving digital, manual, and reach-related functions, ranging from fine motor to self-care (activities of daily living), as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Acute Hospitalized TBI
C18647 Brief Symptom Inventory-18 (BSI18)- Global Severity Index normalized T score

Normalized T score for Global Severity Index symptom scale

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Acute Sport Related Concussion
C52380 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Irritable scale

Scale that rates the severity of how the subject now suffers from being irritable, easily angered as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C09931 World Health Organization Quality of Life (WHOQOL-BREF) - health satisfaction scale

Scale used to assess health satisfaction, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab Comprehensive
C21831 Beck Anxiety Inventory (BAI) - Feel hot bother scale

Scale that represents how much the participant has been bothered by feeling hot as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab General
C07026 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Desire sedative sleep pill frequency

Frequency for how often the particpant/subject had a strong desire to use sedative or sleeping pills (Valium, Serepax, Rohypnol, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab General
C20558 TBI Quality of Life (TBI-QOL) - Attention concentration T-score

The T-Score related to attention/concentration, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Comprehensive
C18633 Brief Symptom Inventory-18 (BSI18)- terror or panic scale

The scale for the participant's distress from spells of terror or panic

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Comprehensive
C21024 Frontal Systems Behavior Scale (FrSBE) - Misbehavior apology frequency scale

Frequency of apologizing for misbehaviour (for example, apologizes for swearing) as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C08534 36-item Short Form Health Survey (SF-36) - Healthy as anybody score

Score of how true or false surveyee perceived the statement: I am as healthy as anybody I know, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True NeuroRehab NeuroRehab Comprehensive
C20576 TBI Quality of Life (TBI-QOL) - Learning memory T-score

The T-Score related to learning and memory, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Moderate/Severe TBI: Rehabilitation
C09374 Hamilton Depression Rating Scale (HDRS) - retardation indicator

Score for any retardation in the participant/subject's mental or physical behavior, as part of the Hamilton Depression Rating Scale (HDRS)

 NeuroRehab Supplemental-Highly Recommended Hamilton Depression Rating Scale (HDRS) False NeuroRehab NeuroRehab Comprehensive
C58630 Crutch use laterality type

Laterality type with which the participant/subject uses their crutches

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C07066 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Hallucinogen fail control indicator

Indicator for whether the participant/subject has ever tried, but failed to control, cut down or stop using hallucinogens (LSD, acid, mushrooms, PCP, Special K, etc), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab Comprehensive
C07433 Patient Health Questionnaire (PHQ) - Tired little energy score

Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 NeuroRehab Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True NeuroRehab NeuroRehab Comprehensive
C58496 Toilet device type other text

Text describing the presence of any other toileting device used

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C21076 Frontal Systems Behavior Scale (FrSBE) - Total raw score

Total raw score as part of Frontal Systems Behavior Scale (FrSBE)

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab Comprehensive
C18027 Comment text

Provide any additional information that pertains to the question

 NeuroRehab Supplemental-Highly Recommended Stroop Test True NeuroRehab NeuroRehab General
C10305 Quality of Life in Swallowing Disorders (SWAL-QOL) - careful diet annoy problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Having to be so careful when I eat or drink annoys me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C53769 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 8 score

The score for Word Reading item 8, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
Displaying 51 - 75 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.