CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 4251 - 4275 of 4416

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2939-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2908-C21942	C21942	Pediatric Quality of Life Inventory (PedsQL) - Problem gain friend difficulty scale	Scale of problems with other kids not wanting to be their friend, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2909-C51620	C51620	Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere daily home life status	The status of interference in home life related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2939-C19126	C19126	Clinical trial name	Name of clinical trial in which patient/participant is enrolled	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21953	C21953	Pediatric Quality of Life Inventory(PedsQL) - Physical health summary score	Summary Score of the Physical Functioning Scale Score as a part of Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2909-C51632	C51632	Strengths and Difficulties Questionnaire (SDQ) - Externalising score	The score generated by summing the 'conduct' and 'hyperactivity' scales, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2909-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2909-C50083	C50083	Strengths and Difficulties Questionnaire (SDQ) - solitary scale	The scale of if subject/participant is rather solitary/prefers to play alone, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C50083	C50083	Strengths and Difficulties Questionnaire (SDQ) - solitary scale	The scale of if subject/participant is rather solitary/prefers to play alone, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2909-C50091	C50091	Strengths and Difficulties Questionnaire (SDQ) - Generally like scale	The scale indicating if the participant/subject is generally liked by other children, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C50091	C50091	Strengths and Difficulties Questionnaire (SDQ) - Generally like scale	The scale indicating if the participant/subject is generally liked by other children, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2909-C50135	C50135	Strengths and Difficulties Questionnaire (SDQ) - Gets along better adults than children scale	The scale indicating if the participant/subject gets along better with adults than with other children, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C51622	C51622	Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere learn status	The status of interference with learning related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C14639	C14639	Ambulatory status	Status that reflects the participant's ability to walk	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21957	C21957	Pediatric Quality of Life Inventory (PedsQL) - Problem peer school activity difficulty scale	Scale of frequency of difficulties doing the same school activities as peers, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2909-C51634	C51634	Strengths and Difficulties Questionnaire (SDQ) - Emotional problem score	The emotional problems score as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C55575	C55575	Neurological disorder indicator	Indicator as to whether the participant/subject has a neurological disorder	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21964	C21964	Pediatric Quality of Life Inventory (PedsQL) - Problem walk greater than one block difficulty scale	Scale of problems with walking more than one block, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2940-C00013	C00013	Education level primary caregiver USA type	Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21939	C21939	Pediatric Quality of Life Inventory (PedsQL) - Problem low energy difficulty scale	Scale of problems with low energy, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2940-C00013	C00013	Education level primary caregiver USA type	Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab General
F2939-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2908-C21950	C21950	Pediatric Quality of Life Inventory (PedsQL) - Problem school absent unwell difficulty scale	Scale of problems with missing school because of not feeling well, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2908-C21933	C21933	Pediatric Quality of Life Inventory (PedsQL) - Problem fear scale	Scale of problems with feeling afraid or scared, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive

Displaying 4251 - 4275 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.