CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 426 - 450 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10319 Quality of Life in Swallowing Disorders (SWAL-QOL) - intake feeding tube indicator

Scale assessing how true the following statement has been for the participant during the last month: Do you now take any food or liquid through a feeding tube? As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C52374 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Frustrated scale

Scale that rates the severity of how the subject now suffers from feeling frustrated or impatient as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C54143 Victoria Symptom Validity Test (VSVT) - Right-Left preference value

The number that expresses the proportion of right-side responses made minus the number of left-side responses made, divided by the total number of responses made, as a part of the Victoria Symptom Validity Test (VSVT)

 NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) True NeuroRehab NeuroRehab General
C20426 Beck Depression Inventory II (BDI-II) - Punishment feeling scale

Scale identifying level of punishment feelings, as part of the Beck Depression Inventory II (BDI-II)

 NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True NeuroRehab NeuroRehab Comprehensive
C21922 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest trial score

Trial score, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

 NeuroRehab Supplemental-Highly Recommended Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) True NeuroRehab NeuroRehab General
C10279 Quality of Life in Swallowing Disorders (SWAL-QOL) - rare realization hunger indicator

Scale assessing how true the following statement has been for the participant during the last month: I'm rarely hungry anymore, as part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C21864 Beck Anxiety Inventory (BAI) - Unable relax bother scale

Scale that represents how much the participant has been bothered by unable to relax as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab General
C52359 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Double vision scale

Scale that rates the severity of how the subject now suffers from double vision as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Acute Sport Related Concussion
C54126 Test item number (numeric)

The test (or assessment) item number representing the sequence for the items/questions of each test/assessmet/questionnaire being asked

 NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) True NeuroRehab NeuroRehab Comprehensive
C20580 TBI Quality of Life (TBI-QOL) - Pain interference T-score

The T-Score related to consequences of pain on relevant aspects of one's life, including the extent to which pain hinders engagement with social, cognitive, emotional, physical, and recreational activities, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Comprehensive
C54447 Functional Gait Assessment (FGA) - Gait level surface task duration

Time taken by the subject/participant to ambulate 20 feet for the level-surface gait task, as part of the Functional Gait Assessment (FGA)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C53827 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 39 score

The score for Word Reading item 39, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C58624 Transfer transportation device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C08510 36-item Short Form Health Survey (SF-36) - Health limited walking several blocks score

Score of surveyee-reported limited walking several blocks due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True NeuroRehab NeuroRehab General
C21825 Beck Anxiety Inventory (BAI) - Face flush bother scale

Scale that represents how much the participant has been bothered by face flushed as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab Comprehensive
C53823 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 37 score

The score for Word Reading item 37, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C14705 Berg Balance Scale (BBS) - unsupport stand front foot scale

The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 NeuroRehab Supplemental-Highly Recommended Berg Balance Scale (BBS) False NeuroRehab NeuroRehab Comprehensive
C10307 Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem frustrating indicator

Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem frustrates me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C09350 Hamilton Anxiety Rating Scale (HAM-A) - tension score

The score of the participant's/subject's tension, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 NeuroRehab Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) False NeuroRehab NeuroRehab Comprehensive
C17236 Swallowing Disturbance Questionnaire (SwDQ) - cough swallow solid food score

Score for how frequent the participant/subject coughs while swallowing solid foods, as a part of Swallowing Disturbance Questionnaire (SDQ)

 NeuroRehab Supplemental-Highly Recommended Swallowing Disturbance Questionnaire (SDQ) True NeuroRehab NeuroRehab Parkinson's Disease
C14838 Activities specific Balance Confidence Scale (ABC-Scale) - reach above head scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when standing on tip toes and reach for something above the head

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C21502 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest trial number

Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

 NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) False NeuroRehab NeuroRehab General
C20568 TBI Quality of Life (TBI-QOL) - Grief loss T-score

The T-Score related to emotional reactions of grief (the natural process of reacting to a loss) such as anger, guilt, anxiety, sadness, and despair, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Concussion/Mild TBI
C56951 Walker use type

Type of walker which the participant/subject uses, if applicable

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C17365 Parkinson's Disease Quality of Life (PDQUALIF) - night wakeup bathroom scale

Rating scale for waking up at night due to the need to go to the bathroom as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Comprehensive
Displaying 426 - 450 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.