CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 4201 - 4225 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21525 Language secondary ISO code

Code (ISO 639-2) for the language the participant/subject speaks second-most often

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Subacute Sport Related Concussion
C21447 Immediate Post-Concussion Assessment Testing (ImPACT) - X and O interference average correct reaction time duration

The interference average correct reaction time duration on the X's and O's module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Comprehensive
C21410 Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Vomiting score

The subject's current vomiting rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C21463 Immediate Post-Concussion Assessment Testing (ImPACT) - Three letter average correct count

The average number of correctly counted items on the three letters module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Acute Sport Related Concussion
C21407 Immediate Post-Concussion Assessment Testing (ImPACT) - Sleep last night hour duration

Duration (in hours) the subject slept last night, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Comprehensive
C21458 Immediate Post-Concussion Assessment Testing (ImPACT) - Three letters total sequence correct count

The number of total sequence items correct on the three letters module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)

NeuroRehab Sport Related Concussion Core Immediate Post-Concussion Assessment and Cognitive Testing (imPACT) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C05130 Therapy or rehabilitation type

Type of therapy or rehabilitation services received by the participant/subject

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C21948 Pediatric Quality of Life Inventory (PedsQL) - Problem heavy lift difficulty scale

Scale of problems with lifting something heavy, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab General
C21620 Gestational age value range

Range of time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

NeuroRehab Core Infant Pediatrics Demographics NeuroRehab NeuroRehab General
C50107 Strengths and Difficulties Questionnaire (SDQ) - Help other people scale

The scale indicating how often the participant offers to help others, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C21940 Pediatric Quality of Life Inventory (PedsQL) - Problem memory difficulty scale

Scale of problems forgetting things, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab Comprehensive
C50832 Strengths and Difficulties Questionnaire (SDQ) - Nervous new situation scale

The scale indicating if the participant/subject is nervous in new situations, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C21951 Pediatric Quality of Life Inventory (PedsQL) - Problem unable social activity skill peer difficulty scale

Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab Comprehensive
C51631 Strengths and Difficulties Questionnaire (SDQ) - Total difficulties score

The score generated by summing scores from all the scale (excluding the prosocial scale), as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C21961 Pediatric Quality of Life Inventory (PedsQL) - Problem peer teasing difficulty scale

Scale of problems with getting teased by other teen/kids, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab Comprehensive
C51639 Strengths and Difficulties Questionnaire (SDQ) - Impact score

The impact score related to overal distress and impairment, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C21936 Pediatric Quality of Life Inventory (PedsQL) - Problem bath shower alone scale

Scale of problems with taking a bath or shower by themselves, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab General
C21620 Gestational age value range

Range of time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

NeuroRehab Core Infant Pediatrics Demographics NeuroRehab NeuroRehab Comprehensive
C50090 Strengths and Difficulties Questionnaire (SDQ) - Unhappy scale

The scale of the participant/subject feeling unhappy, depressed or tearful, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab General
C50134 Strengths and Difficulties Questionnaire (SDQ) - Spiteful scale

The scale indicating if the participant/subject can be spiteful to others, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab Comprehensive
C51621 Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere friendship status

The status of interference with friendships related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)

NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions NeuroRehab NeuroRehab Comprehensive
C08147 Data source

Source of the data provided on the case report form

NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C21956 Pediatric Quality of Life Inventory (PedsQL) - Problem sad difficulty scale

Scale of problems with feeling sad or blue, as part of the Pediatric Quality of Life Inventory (PedsQL)

NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) NeuroRehab NeuroRehab General
Displaying 4201 - 4225 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.