CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

Displaying 4151 - 4175 of 4296

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2939-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2909-C50134	C50134	Strengths and Difficulties Questionnaire (SDQ) - Spiteful scale	The scale indicating if the participant/subject can be spiteful to others, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2909-C51621	C51621	Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere friendship status	The status of interference with friendships related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C08147	C08147	Data source	Source of the data provided on the case report form	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C51621	C51621	Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere friendship status	The status of interference with friendships related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2909-C51633	C51633	Strengths and Difficulties Questionnaire (SDQ) - Internalising score	The score generated by summing the 'emotional' and 'peer problems' scales, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C19247	C19247	Subject ID	Subject identification ID	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C51633	C51633	Strengths and Difficulties Questionnaire (SDQ) - Internalising score	The score generated by summing the 'emotional' and 'peer problems' scales, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2909-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2939-C55575	C55575	Neurological disorder indicator	Indicator as to whether the participant/subject has a neurological disorder	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C50084	C50084	Strengths and Difficulties Questionnaire (SDQ) - Well-behaved scale	The scale of if subject/participant is well-behaved, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21962	C21962	Pediatric Quality of Life Inventory(PedsQL) - Total score	Total Score as a part of Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2909-C50092	C50092	Strengths and Difficulties Questionnaire (SDQ) - Distract easy scale	The scale indicating if the participant/subject is easily distracted, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21938	C21938	Pediatric Quality of Life Inventory (PedsQL) - Problem house chore difficulty scale	Scale of problems with doing chores around the house, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2909-C50136	C50136	Strengths and Difficulties Questionnaire (SDQ) - Many fear scale	The scale indicating if the participant/subject has many fears and is easily scared, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21949	C21949	Pediatric Quality of Life Inventory (PedsQL) - Problem doctor hospital appointment school absent difficulty scale	Scale of problems with missing school to go to the doctor or hospital, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2940-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab General
F2908-C21959	C21959	Pediatric Quality of Life Inventory (PedsQL) - Problem sleep trouble scale	Scale of problems with trouble sleeping, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2908-C21942	C21942	Pediatric Quality of Life Inventory (PedsQL) - Problem gain friend difficulty scale	Scale of problems with other kids not wanting to be their friend, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2909-C00035	C00035	Gender type	Self-reported gender of the participant/subject	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21953	C21953	Pediatric Quality of Life Inventory(PedsQL) - Physical health summary score	Summary Score of the Physical Functioning Scale Score as a part of Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2940-C00205	C00205	Family income range	Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C50083	C50083	Strengths and Difficulties Questionnaire (SDQ) - solitary scale	The scale of if subject/participant is rather solitary/prefers to play alone, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2940-C00205	C00205	Family income range	Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab General
F2909-C50091	C50091	Strengths and Difficulties Questionnaire (SDQ) - Generally like scale	The scale indicating if the participant/subject is generally liked by other children, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General

Displaying 4151 - 4175 of 4296

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.