CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 3808
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17769 Rater name

Name of rater

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C10311 Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem changed activities indicator

Scale assessing how true the following statement has been for the participant during the last month: My usual work or leisure activities have changed because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab Comprehensive
C17447 Event description text

The free-text field to describe the event

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab General
C09354 Hamilton Anxiety Rating Scale (HAM-A) - gastrointestinal symptom score

The score of the participant's/subject's gastrointestinal symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

NeuroRehab Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) NeuroRehab NeuroRehab Comprehensive
C58488 Position device type

Type for all positioning devices currently used by the participant/subject

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C21478 Rey Auditory Verbal Learning Test (RAVLT) - Trial number

The identified trial number, as part of Rey Auditory Verbal Learning Test (RAVLT)

NeuroRehab Supplemental-Highly Recommended Rey Auditory Verbal Learning Test (RAVLT) NeuroRehab NeuroRehab Comprehensive
C53814 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 33 text

The word used for Word Reading item 33, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C17240 Swallowing Disturbance Questionnaire (SwDQ) - suffer respiratory infection past year indicator

Indicator for whether the participant/subject has suffered from a respiratory infection in the past year, as a part of Swallowing Disturbance Questionnaire (SDQ)

NeuroRehab Supplemental-Highly Recommended Swallowing Disturbance Questionnaire (SDQ) NeuroRehab NeuroRehab Parkinson's Disease
C22613 Home modification durable medical equipment type

If the participant/ subject was provided with any home modification durable medical equipment, describes the type(s) of equipment received

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C56302 NIH Toolbox Cognitive – Picture vocabulary age 3 up computed score

The computed score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C21506 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest total raw score

Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) NeuroRehab NeuroRehab General
C06059 Pain location anatomic site

Anatomic site on the body where the pain is experienced

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C54271 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Standardization sample difference frequency

Frequency of difference in standardization sample, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form B

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab Comprehensive
C20464 Brief Visuospatial Memory Test - Revised (BVMT-R) - Delayed recall raw score

Score for Delayed Recall portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) NeuroRehab NeuroRehab General
C14706 Berg Balance Scale (BBS) - scale total score

The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

NeuroRehab Supplemental-Highly Recommended Berg Balance Scale (BBS) NeuroRehab NeuroRehab Comprehensive
C52361 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the first 3 items excluding ratings of 1

Sum of the ratings for the first three items of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab TBI Comprehensive
C53774 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 12 text

The word used for Word Reading item 12, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C53835 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 44 score

The score for Word Reading item 44, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C56336 NIH Toolbox Cognitive – Pattern comparison processing speed age 7 up age adjusted scale score

The age adjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab Comprehensive
C21860 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task normal baseline score

Total number correct in normal baseline condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) NeuroRehab NeuroRehab General
C14839 Activities specific Balance Confidence Scale (ABC-Scale) - chair stand scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when standing on a chair to reach for something

NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) NeuroRehab NeuroRehab Comprehensive
C21868 Beck Anxiety Inventory (BAI) - Wobbliness bother scale

Scale that represents how much the participant has been bothered by wobbliness in the legs as part of the Beck Anxiety Inventory (BAI)

NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) NeuroRehab NeuroRehab General
C52371 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the 13 items (4-16) excluding ratings of 1

Sum of the ratings for the 13 items (4-16) of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C53795 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 23 score

The score for Word Reading item 23, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C20582 TBI Quality of Life (TBI-QOL) - Satisfaction social roles activities T-score

The T-Score related to satisfaction with involvement in one's usual social roles, activities, and responsibilities, including work, family, friends, and leisure, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Comprehensive
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.