CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 4412
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C20470 Brief Visuospatial Memory Test - Revised (BVMT-R) - Percent retained percentage value

Percentile for Percent Retained portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) True NeuroRehab NeuroRehab General
C55696 PROMIS - Dyspnea Functional limitations sing hum scale

Scale related to an individual being able to sing or hum, as part of the PROMIS Dyspnea Functional Limitations

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False NeuroRehab NeuroRehab Stroke
C53839 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 46 score

The score for Word Reading item 46, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C56342 NIH Toolbox Cognitive – Picture sequence memory age 3 up computed score

The computed score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab Comprehensive
C55330 PROMIS - Negative consequences poor judgment when drink scale

Scale related to an individual having poor judgment when he/she drank, as part of the PROMIS Negative Consequences

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences False NeuroRehab NeuroRehab Comprehensive
C53835 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 44 score

The score for Word Reading item 44, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C21867 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task reverse baseline score

Total number correct in reverse baseline condition, as part of Brief Test of Adult Cognition by Telephone(BTACT)

 NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) False NeuroRehab NeuroRehab General
C14694 Berg Balance Scale (BBS) - unsupport stand scale

The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 NeuroRehab Supplemental-Highly Recommended Berg Balance Scale (BBS) False NeuroRehab NeuroRehab Comprehensive
C20564 TBI Quality of Life (TBI-QOL) - Cognition executive function T-score

The T-Score related to perceived difficulties in applications of mental function related to planning, organizing, calculating, and problem solving, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Acute Hospitalized TBI
C53799 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 25 score

The score for Word Reading item 25, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C21117 Subject name

Name of subject/participant

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C08525 36-item Short Form Health Survey (SF-36) - Times down score

Score of times feeling so down in the dumps that nothing could cheer up during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True NeuroRehab NeuroRehab General
C10708 Wheelchair primary mobility means age value

Age of participant/subject when they first began to use a wheelchair as their primary means of mobility

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C53795 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 23 score

The score for Word Reading item 23, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C21859 Beck Anxiety Inventory (BAI) - Total score

Total score as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab Comprehensive
C07013 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Cocaine use frequency

Frequency for how often the participant/subject has used cocaine (coke, crack, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab General
C58513 Access communication device type other text

Text describing the presence of any other type of access communication device used

 NeuroRehab Supplemental-Highly Recommended Devices: Communication False NeuroRehab NeuroRehab Comprehensive
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

 NeuroRehab Supplemental-Highly Recommended Glasgow Coma Scale (GCS) False NeuroRehab NeuroRehab Comprehensive
C17385 Parkinson's Disease Quality of Life (PDQUALIF) - hygiene independence 7 days scale

Rating scale for personal hygiene (bathing, hair care, make up, shaving, or toileting) independence in past 7 days as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Parkinson's Disease
C58626 Transfer device type other text

Text describing the presence of any other transfer device used

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C54457 Dynamic Gait Index (DGI) - Step over obstacle task score

Score for the subject/participant's performance on the Step Over Obstacles task, as part of the Dynamic Gait Index (DGI)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C20996 Frontal Systems Behavior Scale (FrSBE) - Lack interest fun important frequency scale

Frequency of losing interest in things that used to be fun or important to him/her as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C55616 PROMIS - Emotional Distress depression thing in life overwhelm scale

Scale related to the individual finding things in his/her life were overwhelming, as part of the PROMIS Emotional Distress Depression

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) False NeuroRehab NeuroRehab General
C52368 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Second other difficulty text

The free-text field related to 'The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)- Second other difficulty scale' specifying the second other difficulty text

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Comprehensive
C08521 36-item Short Form Health Survey (SF-36) - Bodily pain score

Score of bodily pain during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True NeuroRehab NeuroRehab Comprehensive
Displaying 301 - 325 of 4412

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.