CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 4416
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C53795 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 23 score

The score for Word Reading item 23, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C55324 PROMIS - Negative consequences look sloppy when drink scale

Scale related to an individual looking sloppy when he/she drank, as part of the PROMIS Negative Consequences

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences False NeuroRehab NeuroRehab Comprehensive
C54143 Victoria Symptom Validity Test (VSVT) - Right-Left preference value

The number that expresses the proportion of right-side responses made minus the number of left-side responses made, divided by the total number of responses made, as a part of the Victoria Symptom Validity Test (VSVT)

 NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) True NeuroRehab NeuroRehab Comprehensive
C07440 Patient Health Questionnaire - (PHQ) - Depression questionnaire total score

Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)

 NeuroRehab Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True NeuroRehab NeuroRehab General
C53728 Wide Range Achievement Test 4 (WRAT-4) - Letter 1 score

Score for Letter Recognition item 1, as a part of the Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C17733 Person completing form name

Name of person completing the form

 NeuroRehab Supplemental-Highly Recommended Stroop Test True NeuroRehab NeuroRehab Comprehensive
C20559 TBI Quality of Life (TBI-QOL) - Communication comprehension T-score

The T-Score related to perceived difficulties related to oral expression, language production, articulation, comprehension, and organization, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Acute Hospitalized TBI
C08522 36-item Short Form Health Survey (SF-36) - Pain interfere work score

Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True NeuroRehab NeuroRehab General
C10702 Walking own unable reason

Reason why the participant/subject is unable to walk on his/her own

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C21853 Beck Anxiety Inventory (BAI) - Feel scared bother scale

Scale that represents how much the participant has been bothered by feeling scared as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab Comprehensive
C58510 Nonspeak communication device type

Type for all non-speaking communication devices currently used by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Communication False NeuroRehab NeuroRehab Comprehensive
C17382 Parkinson's Disease Quality of Life (PDQUALIF) - away from social scale

Rating scale for staying away from social gatherings due to the Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Parkinson's Disease
C58622 Number minutes day duration

Duration in minutes per day a stander used by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C54278 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True NeuroRehab NeuroRehab Comprehensive
C55613 PROMIS - Emotional Distress depression depressed scale

Scale related to the individual feeling depressed, as part of the PROMIS Emotional Distress Depression

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) False NeuroRehab NeuroRehab General
C08518 36-item Short Form Health Survey (SF-36) - Less accomplished emotional problems indicator

Indicator for surveyee-reported less accomplishment as a result of emotional problems during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True NeuroRehab NeuroRehab Comprehensive
C58492 Bath device type

Type for all bathing devices currently used by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C52381 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - First other difficulty scale

Scale that rates the severity of how the subject now suffers from other difficulties as compared with before the accident. Rate the first other difficulty

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Acute Sport Related Concussion
C20815 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep ease assessment past week scale

The scale which represents how often the It was easy for the participant to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance True NeuroRehab NeuroRehab Stroke
C02310 Adverse event CTCAE low level term name

Text that represents the Common Terminology Criteria for Adverse Events (CTCAE) low level term name for an adverse event

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C21891 Brief Test of Adult Cognition by Telephone (BTACT) - Stop and go task experimental task type

Type of test, as part of Brief Test of Adult Cognition by Telephone(BTACT)

 NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) False NeuroRehab NeuroRehab General
C07006 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Sedative sleep pill indicator

Indicator for whether the participant/subject has ever used any sedatives or sleeping pills (Valium, Serepax, Rohypnol, etc.) for non-medical use, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab Comprehensive
C54454 Functional Gait Assessment (FGA) - Gait turn pivot task score

Score for the subject/participant's performance on the Gait And Pivot Turn task, as part of the Functional Gait Assessment (FGA)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C56484 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference personal relationship scale

Scale which represents how often the participant felt pain interfered in close personal relationships in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference False NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C55601 PROMIS - Emotional Distress depression helpless scale

Scale related to the individual feeling helpless, as part of the PROMIS Emotional Distress Depression

 NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Depression (Calibrated Items) False NeuroRehab NeuroRehab Comprehensive
Displaying 276 - 300 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.