CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 4296
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19493 Spinal cord injury upper extremity assistive device use frequency value

The frequency of use of assistive devices for upper extremity in spinal cord injury

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C52369 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Longer to think scale

Scale that rates the severity of how the subject now suffers from taking longer to think as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C09577 Brief Pain Inventory (BPI) - worst pain rating scale

Scale indicating the rating of the worst pain, as part of the Brief Pain Inventory (BPI) form

NeuroRehab Supplemental-Highly Recommended Brief Pain Inventory (Short Form) NeuroRehab NeuroRehab Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
C20825 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep comfortable position trouble assessment past week scale

The scale which represents how often the participant had trouble getting into a comfortable position to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Disturbance NeuroRehab NeuroRehab Comprehensive
C21040 Frontal Systems Behavior Scale (FrSBE) - Impulsiveness frequency scale

Frequency of doing things impulsively as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab Comprehensive
C54694 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale

Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health NeuroRehab NeuroRehab General
C56315 NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C10289 Quality of Life in Swallowing Disorders (SWAL-QOL) - excess saliva phlegm problem indicator

Scale assessing how true the following statement has been for the participant during the last month: Having excess saliva or phlegm. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab Comprehensive
C55307 PROMIS - Negative consequences guilty when drink scale

Scale related to the individual feeling guilty when he/she drank, as part of the PROMIS Negative Consequences

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences NeuroRehab NeuroRehab Stroke
C07100 Center for Epidemiologic Studies-Depression Scale (CES-D) - fearful indicator

Indicates how often the subject felt fearful in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

NeuroRehab Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) NeuroRehab NeuroRehab General
C20781 Quality of Life - Worry assessment past week scale

The scale which represents how often the participant felt worried in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety NeuroRehab NeuroRehab Comprehensive
C54280 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus language difference score

Difference score calculated as a subtraction of Language index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab Comprehensive
C20476 Brief Visuospatial Memory Test - Revised (BVMT-R) - Recognition discrimination index raw score

Raw score for Recognition Discrimination portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) NeuroRehab NeuroRehab General
C52379 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Light sensitivity scale

Scale that rates the severity of how the subject now suffers from light sensitivity and easily upset by bright light as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Comprehensive
C17233 Swallowing Disturbance Questionnaire (SwDQ) - difficulty swallow puree food score

Score for how frequent the participant/subject experiences difficulty swallowing pureed food, as a part of Swallowing Disturbance Questionnaire (SDQ)

NeuroRehab Supplemental-Highly Recommended Swallowing Disturbance Questionnaire (SDQ) NeuroRehab NeuroRehab Comprehensive
C21288 Quality of Life - Force awake morning past week scale

The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance

NeuroRehab Supplemental-Highly Recommended Neuro-QOL Adult Bank - Sleep Disturbance NeuroRehab NeuroRehab Comprehensive
C53844 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 49 text

The word used for Word Reading item 49, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C56347 NIH Toolbox Cognitive – Oral reading recognition english age 7 up raw score

The raw score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab Comprehensive
C21484 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest number series text

Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest

NeuroRehab Supplemental-Highly Recommended Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV) NeuroRehab NeuroRehab General
C55299 PROMIS - Negative consequences worry when drink scale

Scale related to the individual being worried when he/she drank, as part of the PROMIS Negative Consequences

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Alcohol: Negative Consequences NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C53840 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 47 text

The word used for Word Reading item 47, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C21894 Brief Test of Adult Cognition by Telephone (BTACT) - Thirty Seconds and Counting Task (30-SACT) last number reached text

Text for last number reached in the Thirty Seconds and Counting Task (30-SACT), as part of Brief Test of Adult Cognition by Telephone (BTACT)

NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) NeuroRehab NeuroRehab General
C20471 Brief Visuospatial Memory Test - Revised (BVMT-R) - Recognition hits raw score

Raw score for Recognition Hits portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) NeuroRehab NeuroRehab Comprehensive
C14699 Berg Balance Scale (BBS) - unsupport feet together scale

The scale for assessment of standing unsupported with feet together based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

NeuroRehab Supplemental-Highly Recommended Berg Balance Scale (BBS) NeuroRehab NeuroRehab Comprehensive
C20574 TBI Quality of Life (TBI-QOL) - Independence T-score

The T-Score related to perceived independence, ability to tell others about one's needs, and sense of control over one's life, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Acute Hospitalized TBI
Displaying 276 - 300 of 4296

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.