CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20423 Beck Depression Inventory II (BDI-II) - Past failure scale

Scale identifying level of past failure, as part of the Beck Depression Inventory II (BDI-II)

NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) NeuroRehab NeuroRehab General
C55725 PROMIS - Self Efficacy managing emotions manage anger insensitive comment scale

Scale related to an individual being able to manage his/her anger when others make insensitive comments about his/her health problems, as part of the PROMIS Self-Efficacy Managing Emotions

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions NeuroRehab NeuroRehab Comprehensive
C21067 Frontal Systems Behavior Scale (FrSBE) - Inappropriate sexual comment frequency scale

Frequency of making inappropriate sexual comments and advances, is too flirtatious as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab General
C20458 Brief Visuospatial Memory Test - Revised (BVMT-R) - Total recall t-score

T-score for Total Recall portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) NeuroRehab NeuroRehab Comprehensive
C55684 PROMIS - Dyspnea Functional limitations scrub floor counter scale

Scale related to an individual being able to scrub the floor or counter, as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C10298 Quality of Life in Swallowing Disorders (SWAL-QOL) - people hard understanding problem indicator

Scale assessing how true the following statement has been for the participant during the last month: People have a hard time understanding me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C20839 Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken alert past week scale

The scale which represents how often the participant felt alert when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C09374 Hamilton Depression Rating Scale (HDRS) - retardation indicator

Score for any retardation in the participant/subject's mental or physical behavior, as part of the Hamilton Depression Rating Scale (HDRS)

NeuroRehab Supplemental-Highly Recommended Hamilton Depression Rating Scale (HDRS) NeuroRehab NeuroRehab General
C56287 NIH Toolbox Cognitive – Cognition fluid composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab Comprehensive
C54145 Victoria Symptom Validity Test (VSVT) - P score

The probability, under the assumption of a hypothesis , of obtaining a result equal to or more extreme than what was actually observed, as a part of the Victoria Symptom Validity Test (VSVT)

NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) NeuroRehab NeuroRehab Comprehensive
C56519 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain prevent sit 1 hour more scale

Scale related to how often an individual's pain prevented him/her from sitting for more than one hour in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
C13205 Generalized Anxiety Disorder (GAD-7) - feeling nervous scale

Scale describing how often participant/subject has been bothered by feeling nervous, anxious or on edge, as a part of Generalized Anxiety Disorder (GAD-7)

NeuroRehab Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) NeuroRehab NeuroRehab Comprehensive
C07140 JFK Coma Recovery Scale Revised (JFK CRS-R) - visual function scale score

Score on the visual function scale, as part of JFK Coma Recovery Scale Revised (JFK CRS-R)

NeuroRehab Supplemental-Highly Recommended JFK Coma Recovery Scale- Revised NeuroRehab NeuroRehab Comprehensive
C53896 Stroop Color and Word Test (SCW) - Word raw score

Score (raw) of the word test, as part of the Stroop Color and Word Test (SCW)

NeuroRehab Supplemental-Highly Recommended Stroop Test NeuroRehab NeuroRehab Comprehensive
C55677 PROMIS - Dyspnea Functional limitations put socks stockings on scale

Scale related to an individual being able to put on socks or stockings, as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Comprehensive
C53754 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 1 text

The word used for Word Reading item 1, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C54274 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab General
C20583 TBI Quality of Life (TBI-QOL) - Self esteem T-score

The T-Score related to assessment of one's emotional, evaluative, and cognitive perceptions of competence and worth, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Concussion/Mild TBI
C53750 Wide Range Achievement Test 4 (WRAT-4) - Letter 14 score

Score for Letter Recognition item 14, as a part of the Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C53879 Wide Range Achievement Test 4 (WRAT-4) - Normal curve equivalents score

The subject's normal curve equivalents score, as part of the Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C17373 Parkinson's Disease Quality of Life (PDQUALIF) - feel burden scale

Rating scale for feeling a burden to other people due to the Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C58475 Mobility device use location type

Use location type where the participant/subject uses their mobility device(s), if applicable

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C52363 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Nausea scale

Scale that rates the severity of how the subject now suffers from nausea and/or vomiting as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab TBI Comprehensive
C53875 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 41 text

The word used for Word Reading item 41, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C09312 Apathy Scale (AS) - Start task ability no prompt scale

The scale related to subject's ability to start tasks without prompting, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab Comprehensive
Displaying 251 - 275 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.