CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 251 - 275 of 4412
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C14842 Activities specific Balance Confidence Scale (ABC-Scale) - enter exit car scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when getting into or out of a car

NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) NeuroRehab NeuroRehab General
C18100 Quality of Life in Swallowing Disorders (SWAL-QOL) - age value

Age of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab Comprehensive
C55685 PROMIS - Dyspnea Functional limitations lift something less 5 pound scale

Scale related to an individual being able to lift something weighing less than 5 lbs (about 2 kg, like a houseplant), as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Comprehensive
C53762 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 5 text

The word used for Word Reading item 5, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C54282 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab General
C21578 Medical Symptom Validity Test (MSVT) - Immediate recall percentage value

The percentage value related to immediate recall in the Medical Symptoms Validity Test (MSVT)

NeuroRehab Supplemental-Highly Recommended Medical Symptom Validity Test (MSVT) NeuroRehab NeuroRehab Comprehensive
C20558 TBI Quality of Life (TBI-QOL) - Attention concentration T-score

The T-Score related to attention/concentration, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Moderate/Severe TBI: Rehabilitation
C07182 The Galveston Orientation and Amnesia Test (GOAT) - Hospital admittance date score

Scored ability to accurately identify hospital admittance date, as part of the Galveston Orientation and Amnesia Test (GOAT)

NeuroRehab Supplemental-Highly Recommended Galveston Orientation and Amnesia Test (GOAT) NeuroRehab NeuroRehab Comprehensive
C52374 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Frustrated scale

Scale that rates the severity of how the subject now suffers from feeling frustrated or impatient as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Concussion/Mild TBI
C17381 Parkinson's Disease Quality of Life (PDQUALIF) - family role affected scale

Rating scale for family role and relationship affected by the Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C58484 Dynamic lower extremity stretch orthosis splint use frequency type

Frequency type with which the participant/subject uses their dynamic lower extremity stretching orthosis/splints, if applicable

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C17402 Site name

The name of the site for the study

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C09301 Apathy Scale (AS) - Learn eagerness scale

The scale related to subject's eagerness to learn new things, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C21655 Back brace frequency type

Describes how long the participant/subject wears the body jacket/back brace/TSLO

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C20567 TBI Quality of Life (TBI-QOL) - Cognition general concerns T-score

The T-Score related to perceived difficulties in everyday cognitive abilities such as learning, memory, attention, and concentration, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab TBI Epidemiology
C07016 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Sedative sleep pill frequency

Frequency for how often the participant/subject has used sedatives or sleeping pills (Valium, Serepax, Rohypnol, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab Comprehensive
C02311 Adverse event MedDRA lower level term code

Code that corresponds to the Medical Dictionary for Regulatory Activities (MedDRA) Lower Level Term (LLT) for an adverse event

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C09938 World Health Organization Quality of Life (WHOQOL-BREF) - physical enviornment health scale

Scale used to assess the health of the participant's physical environment, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C19136 Rehabilitation services assessment/reception indicator

Indicator for the assessment for or reception of rehabilitation services

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C11870 Frontal Behavioral Inventory (FBI) - frontal behavioral inventory total score value

The value of the sum of answers for Questions 1 - 24, indicating the Frontal Behavioral Inventory Score Total, as part of the Frontal Behavioral Inventory (FBI) form

NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) NeuroRehab NeuroRehab General
C20792 Quality of Life - Uneasiness assessment past week scale

The scale which represents how often the participant felt uneasy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety NeuroRehab NeuroRehab Comprehensive
C07061 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Cannabis fail control indicator

Indicator for whether the participant/subject has ever tried, but failed to control, cut down or stop using cannabis (marijuana, pot, grass, hash, etc), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab General
C14286 Therapy or rehabilitation received status

If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C20439 Beck Depression Inventory II (BDI-II) - Concentration difficulty scale

Scale identifying level of difficulty concentrating, as part of the Beck Depression Inventory II (BDI-II)

NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) NeuroRehab NeuroRehab General
C21291 Quality of Life - Cancel friend activity bad sleep past week scale

The scale representing how often the participant avoided or cancelled activities with their friends because they were tired from having a bad night's sleep in the past 7 days, as part of Neuro-QOL Sleep Disturbance

NeuroRehab Supplemental-Highly Recommended Neuro-QOL Adult Bank - Sleep Disturbance NeuroRehab NeuroRehab Congenital Muscular Dystrophy (CMD)
Displaying 251 - 275 of 4412

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.