CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 4412
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core NeuroRehab NeuroRehab General
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core NeuroRehab NeuroRehab Comprehensive
C09307 Apathy Scale (AS) - Seek work scale

The scale related to subject's desire to partake in projects, as part of the Apathy Scale (AS) form.

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
C22899 Gross Motor Function Classification System (GMFCS) - Level scale

The scale level as reference to the Gross Motor Function Classification System (GMFCS).

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C19247 Subject ID

Subject identification ID

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C20580 TBI Quality of Life (TBI-QOL) - Pain interference T-score

The T-Score related to consequences of pain on relevant aspects of one's life, including the extent to which pain hinders engagement with social, cognitive, emotional, physical, and recreational activities, as part of the TBI Quality of Life (TBI-QOL).

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab TBI Epidemiology
C18628 Brief Symptom Inventory-18 (BSI18)- Nausea scale

The scale for the participant's distress from nausea or upset stomach.

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C07022 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Desire cannabis frequency

Frequency for how often the participant/subject had a strong desire to use cannabis (marijuana, pot, grass, hash, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST).

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab Comprehensive
C52362 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Poor concentration scale

Scale that rates the severity of how the subject now suffers from poor concentration as compared with before the accident, as part of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ).

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Subacute Sport Related Concussion
C09944 World Health Organization Quality of Life (WHOQOL-BREF) - get around scale

Scale used to assess the ability of the participant to get around, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) NeuroRehab NeuroRehab General
C21644 Orthosis stander type

Type of stander the participant/subject uses

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C20975 Frontal Systems Behavior Scale (FrSBE) - Sits around doing nothing frequency

Frequency of sitting around doing nothing as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab Comprehensive
C20766 Quality of Life - Anxiousness assessment past week scale

The scale which represents how often the participant felt anxious in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Emotional Distress - Anxiety NeuroRehab NeuroRehab General
C07067 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Opioid fail control indicator

Indicator for whether the participant/subject has ever tried, but failed to control, cut down or stop using opioids (heroin, morphine, methadone, codeine, etc), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST).

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab General
C17970 Positioning device text

Text specification of any positioning device currently used by the participant/subject

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C18640 Brief Symptom Inventory-18 (BSI18)- Somatization raw score

Raw score for somatization symptom scale.

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Comprehensive
C07093 Center for Epidemiologic Studies-Depression Scale (CES-D) - blues family friend indicator

Indicates how often the subject felt like not able to shake off blues even with help from family and friends in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D).

NeuroRehab Supplemental-Highly Recommended Center for Epidemiologic Studies-Depression Scale (CES-D) NeuroRehab NeuroRehab Comprehensive
C21289 Quality of Life - Bad dream sleep trouble past week scale

The scale representing how often the participant had trouble sleeping because of dreams in the past 7 days, as part of Neuro-QOL Sleep Disturbance.

NeuroRehab Supplemental-Highly Recommended Neuro-QOL Adult Bank - Sleep Disturbance NeuroRehab NeuroRehab Stroke
C07084 Alcohol Use Disorders Identification Test (AUDIT) - Fail normal activity drink frequency score

The frequency with which the subject found himself or herself unable to perform normal tasks due to drinking, as part of the Alcohol Use Disorders Identification Test (AUDIT)

NeuroRehab Supplemental-Highly Recommended Alcohol Use Disorders Identification Test: Self-Report Version (AUDIT) NeuroRehab NeuroRehab Comprehensive
C55722 PROMIS - Self Efficacy managing emotions handle stress of treatment scale

Scale related to an individual being able to manage his/her stress of going for treatment of his/her medical condition, as part of the PROMIS Self-Efficacy Managing Emotions

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions NeuroRehab NeuroRehab General
C54454 Functional Gait Assessment (FGA) - Gait turn pivot task score

Score for the subject/participant's performance on the Gait And Pivot Turn task, as part of the Functional Gait Assessment (FGA)

NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C10320 Quality of Life in Swallowing Disorders (SWAL-QOL) - consistency texture food indicator

Category of consistency or texture of the food the participant has been eating most often in the last week. As part of Quality of Life in Swallowing Disorders (SWAL-QOL).

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab General
C55673 PROMIS - Dyspnea Functional limitations carry something 10 20 pound scale

Scale related to an individual being able to carry something weighing 10-20 pounds (about 4.5-9 kg, like a large bag of groceries), as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Stroke
C11863 Frontal Behavioral Inventory (FBI) - irritability score

The score the caregiver gives for the participant's/subject's irritability, as part of the Frontal Behavioral Inventory (FBI) form.

NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) NeuroRehab NeuroRehab Comprehensive
C20845 Patient-Reported Outcome Measurement Information System (PROMIS) - Day problem poor sleep past week scale

The scale which represents how often the participant had problems during the day because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Sleep Related Impairment NeuroRehab NeuroRehab Stroke
Displaying 1 - 25 of 4412

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.