CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	NeuroRehab	NeuroRehab General
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
F2892-C07100	C07100	Center for Epidemiologic Studies-Depression Scale (CES-D) - fearful indicator	Indicates how often the subject felt fearful in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	NeuroRehab Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	NeuroRehab	NeuroRehab General
F2942-C22908	C22908	Physical therapy adaptive equipment orthotic session type	The type of session related to adaptive equipment or orthotics related to the physical therapy	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2870-C07178	C07178	The Galveston Orientation and Amnesia Test (GOAT) - Born date score	Scored ability to accurately state date of birth, as part of the Galveston Orientation and Amnesia Test (GOAT)	NeuroRehab Supplemental-Highly Recommended	Galveston Orientation and Amnesia Test (GOAT)	True	NeuroRehab	NeuroRehab General
F2877-C56336	C56336	NIH Toolbox Cognitive Pattern comparison processing speed age 7 up age adjusted scale score	The age adjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab General
F2887-C17233	C17233	Swallowing Disturbance Questionnaire (SwDQ) - difficulty swallow puree food score	Score for how frequent the participant/subject experiences difficulty swallowing pureed food, as a part of Swallowing Disturbance Questionnaire (SDQ)	NeuroRehab Supplemental-Highly Recommended	Swallowing Disturbance Questionnaire (SDQ)	True	NeuroRehab	NeuroRehab Comprehensive
F2942-C18914	C18914	Durable medical equipment other text	The free-text field related to 'Durable medical equipment type' specifying other text. If the participant/ subject was provided with any durable medical equipment, describes the type(s) of equipment received	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F2863-C52360	C52360	The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Forgetfulness scale	Scale that rates the severity of how the subject now suffers from forgetfulness/poor memory as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)	NeuroRehab Supplemental-Highly Recommended	Rivermead Post-Concussive Symptoms Questionnaire (RPQ)	False	NeuroRehab	NeuroRehab Concussion/Mild TBI
F2869-C53736	C53736	Wide Range Achievement Test 4 (WRAT-4) - Letter 5 score	Score for Letter Recognition item 5, as a part of the Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab General
F2873-C54256	C54256	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Recall Subtest	NeuroRehab Supplemental-Highly Recommended	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	NeuroRehab	NeuroRehab General
F2884-C21484	C21484	Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest number series text	Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest	NeuroRehab Supplemental-Highly Recommended	Processing Speed Index of the Wechsler Adult Intelligence Scale-Fourth Edition (WAIS-IV)	False	NeuroRehab	NeuroRehab General
F2919-C58681	C58681	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale	Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab Comprehensive
F2869-C53732	C53732	Wide Range Achievement Test 4 (WRAT-4) - Letter 3 score	Score for Letter Recognition item 3, as a part of the Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab Comprehensive
F2869-C53861	C53861	Wide Range Achievement Test 4 (WRAT-4) - Reading grade equivalence score	The subject's grade equivalence score for reading, as part of the Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab General
F2862-C18636	C18636	Brief Symptom Inventory-18 (BSI18)- Restless scale	The scale for the participant's distress from feeling so restless they couldn't sit still	NeuroRehab Supplemental-Highly Recommended	Brief Symptom Inventory-18 (BSI-18)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
F2863-C52370	C52370	The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Dizziness scale	Scale that rates the severity of how the subject now suffers from dizziness as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)	NeuroRehab Supplemental-Highly Recommended	Rivermead Post-Concussive Symptoms Questionnaire (RPQ)	False	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
F2903-C20574	C20574	TBI Quality of Life (TBI-QOL) - Independence T-score	The T-Score related to perceived independence, ability to tell others about one's needs, and sense of control over one's life, as part of the TBI Quality of Life (TBI-QOL)	NeuroRehab Supplemental-Highly Recommended	Traumatic Brain Injury - Quality of Life (TBI-QOL)	False	NeuroRehab	NeuroRehab Acute Hospitalized TBI
F2869-C53857	C53857	Wide Range Achievement Test 4 Revision 4 (WRAT) - total raw score	Word reading total raw score for the Wide Range Achievement Test Revision 4 (WRAT)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab Comprehensive
F2900-C08530	C08530	36-item Short Form Health Survey (SF-36) - Times happy score	Score of times being a happy person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	NeuroRehab Supplemental-Highly Recommended	Short Form 36-Item Health Survey (SF-36)	True	NeuroRehab	NeuroRehab General
F2866-C14701	C14701	Berg Balance Scale (BBS) - retrieve floor object scale	The scale for assessment of picking up object from the floor from a standing position based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	NeuroRehab Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	NeuroRehab	NeuroRehab General

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.