CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	NeuroRehab	NeuroRehab Comprehensive
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	NeuroRehab	NeuroRehab General
C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
C54131	Victoria Symptom Validity Test (VSVT) - Easy items correct number	The number of easy items the subject correctly responded, as a part of the Victoria Symptom Validity Test (VSVT)	NeuroRehab Supplemental-Highly Recommended	Victoria Symptom Validity Test (VSVT)	True	NeuroRehab	NeuroRehab General
C13206	Generalized Anxiety Disorder (GAD-7) - not stop worry scale	Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)	NeuroRehab Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	NeuroRehab	NeuroRehab General
C56488	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference feel emotion tense pain scale	Scale related to how often an individual felt emotionally tense because of his/her pain in the past 7 days, as part of the PROMIS Pain Interference	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.1 - Pain Interference	False	NeuroRehab	NeuroRehab Stroke
C52361	The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the first 3 items excluding ratings of 1	Sum of the ratings for the first three items of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1	NeuroRehab Supplemental-Highly Recommended	Rivermead Post-Concussive Symptoms Questionnaire (RPQ)	False	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C53905	Stroop Color and Word Test (SCW) - Color word age educate predict score	Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)	NeuroRehab Supplemental-Highly Recommended	Stroop Test	True	NeuroRehab	NeuroRehab Comprehensive
C18101	Quality of Life in Swallowing Disorders (SWAL-QOL) - gender indicator	Gender of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab Comprehensive
C55686	PROMIS - Dyspnea Functional limitations lift something weigh 5 10 pound scale	Scale related to an individual being able to lift something weighing 5-10 lbs (about 2-4.5 kg, like a basket of clothes), as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Comprehensive
C54283	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	NeuroRehab Supplemental-Highly Recommended	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	NeuroRehab	NeuroRehab General
C21579	Medical Symptom Validity Test (MSVT) - Delay recall percentage value	The percentage value related to delayed recall in the Medical Symptom Validity Test (MSVT)	NeuroRehab Supplemental-Highly Recommended	Medical Symptom Validity Test (MSVT)	True	NeuroRehab	NeuroRehab Comprehensive
C20559	TBI Quality of Life (TBI-QOL) - Communication comprehension T-score	The T-Score related to perceived difficulties related to oral expression, language production, articulation, comprehension, and organization, as part of the TBI Quality of Life (TBI-QOL)	NeuroRehab Supplemental-Highly Recommended	Traumatic Brain Injury - Quality of Life (TBI-QOL)	False	NeuroRehab	NeuroRehab Moderate/Severe TBI: Rehabilitation
C52371	The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the 13 items (4-16) excluding ratings of 1	Sum of the ratings for the 13 items (4-16) of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1	NeuroRehab Supplemental-Highly Recommended	Rivermead Post-Concussive Symptoms Questionnaire (RPQ)	False	NeuroRehab	NeuroRehab Comprehensive
C56320	NIH Toolbox Cognitive List scoring working memory age 7 up unadjusted scale score	The unadjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery	NeuroRehab Supplemental-Highly Recommended	NIH Toolbox Cognitive Battery	False	NeuroRehab	NeuroRehab General
C54252	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Digit span total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Digit Span Subtest	NeuroRehab Supplemental-Highly Recommended	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	NeuroRehab	NeuroRehab Comprehensive
C17382	Parkinson's Disease Quality of Life (PDQUALIF) - away from social scale	Rating scale for staying away from social gatherings due to the Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form	NeuroRehab Supplemental-Highly Recommended	Parkinson's Disease Quality of Life Scale (PDQUALIF)	True	NeuroRehab	NeuroRehab Comprehensive
C58485	Dynamic lower extremity stretch orthosis splint use anatomic site	Anatomic site of the dynamic lower extremity stretching orthosis/splints use	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
C18630	Brief Symptom Inventory-18 (BSI18)- Suddenly scared scale	The scale for the participant's distress from suddenly scared for no reason	NeuroRehab Supplemental-Highly Recommended	Brief Symptom Inventory-18 (BSI-18)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C14696	Berg Balance Scale (BBS) - stand sit scale	The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	NeuroRehab Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	NeuroRehab	NeuroRehab General
C53816	Wide Range Achievement Test 4 (WRAT-4) - Word reading item 34 text	The word used for Word Reading item 34, as part of Wide Range Achievement Test 4 (WRAT-4)	NeuroRehab Supplemental-Highly Recommended	Word Reading Subtest of the Wide Range Achievement Test (WRAT-4)	True	NeuroRehab	NeuroRehab General
C09302	Apathy Scale (AS) - Interest scale	The scale related to subject's interests, as part of the Apathy Scale (AS) form	NeuroRehab Supplemental-Highly Recommended	Apathy Scale (AS)	True	NeuroRehab	NeuroRehab General

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.