CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 4416
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core NeuroRehab NeuroRehab Comprehensive
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core NeuroRehab NeuroRehab General
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core NeuroRehab NeuroRehab Comprehensive
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core NeuroRehab NeuroRehab Comprehensive
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core NeuroRehab NeuroRehab General
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core NeuroRehab NeuroRehab General
C54131 Victoria Symptom Validity Test (VSVT) - Easy items correct number

The number of easy items the subject correctly responded, as a part of the Victoria Symptom Validity Test (VSVT)

NeuroRehab Supplemental-Highly Recommended Victoria Symptom Validity Test (VSVT) NeuroRehab NeuroRehab General
C13206 Generalized Anxiety Disorder (GAD-7) - not stop worry scale

Scale describing how often participant/subject has not been able to stop or control worrying, as a part of Generalized Anxiety Disorder (GAD-7)

NeuroRehab Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) NeuroRehab NeuroRehab General
C56488 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference feel emotion tense pain scale

Scale related to how often an individual felt emotionally tense because of his/her pain in the past 7 days, as part of the PROMIS Pain Interference

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.1 - Pain Interference NeuroRehab NeuroRehab Stroke
C52361 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the first 3 items excluding ratings of 1

Sum of the ratings for the first three items of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C53905 Stroop Color and Word Test (SCW) - Color word age educate predict score

Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)

NeuroRehab Supplemental-Highly Recommended Stroop Test NeuroRehab NeuroRehab Comprehensive
C18101 Quality of Life in Swallowing Disorders (SWAL-QOL) - gender indicator

Gender of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab Comprehensive
C55686 PROMIS - Dyspnea Functional limitations lift something weigh 5 10 pound scale

Scale related to an individual being able to lift something weighing 5-10 lbs (about 2-4.5 kg, like a basket of clothes), as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Comprehensive
C54283 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab General
C21579 Medical Symptom Validity Test (MSVT) - Delay recall percentage value

The percentage value related to delayed recall in the Medical Symptom Validity Test (MSVT)

NeuroRehab Supplemental-Highly Recommended Medical Symptom Validity Test (MSVT) NeuroRehab NeuroRehab Comprehensive
C20559 TBI Quality of Life (TBI-QOL) - Communication comprehension T-score

The T-Score related to perceived difficulties related to oral expression, language production, articulation, comprehension, and organization, as part of the TBI Quality of Life (TBI-QOL)

NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) NeuroRehab NeuroRehab Moderate/Severe TBI: Rehabilitation
C52371 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the 13 items (4-16) excluding ratings of 1

Sum of the ratings for the 13 items (4-16) of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Comprehensive
C56320 NIH Toolbox Cognitive – List scoring working memory age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery NeuroRehab NeuroRehab General
C54252 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Digit span total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Digit Span Subtest

NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) NeuroRehab NeuroRehab Comprehensive
C17382 Parkinson's Disease Quality of Life (PDQUALIF) - away from social scale

Rating scale for staying away from social gatherings due to the Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Comprehensive
C58485 Dynamic lower extremity stretch orthosis splint use anatomic site

Anatomic site of the dynamic lower extremity stretching orthosis/splints use

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C18630 Brief Symptom Inventory-18 (BSI18)- Suddenly scared scale

The scale for the participant's distress from suddenly scared for no reason

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C14696 Berg Balance Scale (BBS) - stand sit scale

The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

NeuroRehab Supplemental-Highly Recommended Berg Balance Scale (BBS) NeuroRehab NeuroRehab General
C53816 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 34 text

The word used for Word Reading item 34, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab General
C09302 Apathy Scale (AS) - Interest scale

The scale related to subject's interests, as part of the Apathy Scale (AS) form

NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) NeuroRehab NeuroRehab General
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.