CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 4296
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core NeuroRehab NeuroRehab Comprehensive
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core NeuroRehab NeuroRehab General
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core NeuroRehab NeuroRehab Comprehensive
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core NeuroRehab NeuroRehab Comprehensive
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core NeuroRehab NeuroRehab General
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core NeuroRehab NeuroRehab General
C52371 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the 13 items (4-16) excluding ratings of 1

Sum of the ratings for the 13 items (4-16) of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Acute Sport Related Concussion
C08513 36-item Short Form Health Survey (SF-36) - Cut time on work activities physical health indicator

Indicator for surveyee-reported cut down time on work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) NeuroRehab NeuroRehab General
C58569 Static upper extremity orthosis splint frequency use laterality type

Laterality type of static upper extremity orthosis splints frequency used by participant/subject

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C53783 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 16 score

The score for Word Reading item 16, as part of Wide Range Achievement Test 4 (WRAT-4)

NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) NeuroRehab NeuroRehab Comprehensive
C21829 Beck Anxiety Inventory (BAI) - Fear lose control bother scale

Scale that represents how much the participant has been bothered by fear of losing control as part of the Beck Anxiety Inventory (BAI)

NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) NeuroRehab NeuroRehab Comprehensive
C07001 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Alcoholic beverage indicator

Indicator for whether the participant/subject has ever drank any sort of alcoholic beverages (beer, wine, spirits, etc.) for non-medical use, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) NeuroRehab NeuroRehab General
C58477 Cane stick use laterality type

Laterality type with which the participant/subject uses their cane/stick

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab Comprehensive
C52371 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sum of the ratings for the 13 items (4-16) excluding ratings of 1

Sum of the ratings for the 13 items (4-16) of the Rivermead Post-Concussion Symptoms Questionnaire (RPQ) excluding ratings of 1

NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) NeuroRehab NeuroRehab Concussion/Mild TBI
C17373 Parkinson's Disease Quality of Life (PDQUALIF) - feel burden scale

Rating scale for feeling a burden to other people due to the Parkinson's symptoms as part of Parkinson's Disease Quality of Life (PDQUALIF) form

NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) NeuroRehab NeuroRehab Parkinson's Disease
C54445 Functional Gait Assessment (FGA) - Gait level surface task score

Score for the level-surface gait task, as part of the Functional Gait Assessment (FGA)

NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C07438 Patient Health Questionnaire (PHQ) - Movement speech impairment score

Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

NeuroRehab Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale NeuroRehab NeuroRehab General
C20967 Frontal Systems Behavior Scale (FrSBE) - Action speech embarassment frequency scale

Frequency of doing or saying embarrassing things as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) NeuroRehab NeuroRehab General
C53062 Diabetes mellitus medical history indicator

Indicator as to whether the participant/subject has a medical history of diabetes mellitus (type I or type II)

NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions NeuroRehab NeuroRehab Comprehensive
C18647 Brief Symptom Inventory-18 (BSI18)- Global Severity Index normalized T score

Normalized T score for Global Severity Index symptom scale

NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C08509 36-item Short Form Health Survey (SF-36) - Health limited walking miles score

Score of surveyee-reported limited walking more than one mile due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) NeuroRehab NeuroRehab Comprehensive
C22899 Gross Motor Function Classification System (GMFCS) - Level scale

The scale level as reference to the Gross Motor Function Classification System (GMFCS)

NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation NeuroRehab NeuroRehab General
C10320 Quality of Life in Swallowing Disorders (SWAL-QOL) - consistency texture food indicator

Category of consistency or texture of the food the participant has been eating most often in the last week. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) NeuroRehab NeuroRehab Comprehensive
C55673 PROMIS - Dyspnea Functional limitations carry something 10 20 pound scale

Scale related to an individual being able to carry something weighing 10-20 pounds (about 4.5-9 kg, like a large bag of groceries), as part of the PROMIS Dyspnea Functional Limitations

NeuroRehab Supplemental-Highly Recommended PROMIS Item Bank v1.0 - Dyspnea Functional Limitations NeuroRehab NeuroRehab Comprehensive
C09349 Hamilton Anxiety Rating Scale (HAM-A) - somatic muscular score

The score of the participant's/subject's somatic (muscular) levels, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

NeuroRehab Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) NeuroRehab NeuroRehab General
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.