CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 4412
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C21939 Pediatric Quality of Life Inventory (PedsQL) - Problem low energy difficulty scale

Scale of problems with low energy, as part of the Pediatric Quality of Life Inventory (PedsQL).

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C00013 Education level primary caregiver USA type

Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received

 NeuroRehab Core Infant Pediatrics Demographics False NeuroRehab NeuroRehab General
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed.

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C21950 Pediatric Quality of Life Inventory (PedsQL) - Problem school absent unwell difficulty scale

Scale of problems with missing school because of not feeling well, as part of the Pediatric Quality of Life Inventory (PedsQL).

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C21933 Pediatric Quality of Life Inventory (PedsQL) - Problem fear scale

Scale of problems with feeling afraid or scared, as part of the Pediatric Quality of Life Inventory (PedsQL).

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab Comprehensive
C21943 Pediatric Quality of Life Inventory (PedsQL) - Problem harmony peer difficulty scale

Scale of problems with getting along with other kids, as part of the Pediatric Quality of Life Inventory (PedsQL).

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab Comprehensive
C51621 Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere friendship status

The status of interference with friendships related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ).

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C21954 Pediatric Quality of Life Inventory(PedsQL) - Psychosocial health summary score

Psychosocial Health Summary Score as a part of Pediatric Quality of Life Inventory (PedsQL).

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab Comprehensive
C51633 Strengths and Difficulties Questionnaire (SDQ) - Internalising score

The score generated by summing the 'emotional' and 'peer problems' scales, as part of the Strengths and Difficulties Questionnaire (SDQ).

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C55575 Neurological disorder indicator

Indicator as to whether the participant/subject has a neurological disorder

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C21964 Pediatric Quality of Life Inventory (PedsQL) - Problem walk greater than one block difficulty scale

Scale of problems with walking more than one block, as part of the Pediatric Quality of Life Inventory (PedsQL).

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab Comprehensive
C00013 Education level primary caregiver USA type

Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received

 NeuroRehab Core Infant Pediatrics Demographics False NeuroRehab NeuroRehab Comprehensive
C50092 Strengths and Difficulties Questionnaire (SDQ) - Distract easy scale

The scale indicating if the participant/subject is easily distracted, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C50136 Strengths and Difficulties Questionnaire (SDQ) - Many fear scale

The scale indicating if the participant/subject has many fears and is easily scared, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C51623 Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere leisure status

The status of interference with leisure activities related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ).

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C17402 Site name

The name of the site for the study

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C21959 Pediatric Quality of Life Inventory (PedsQL) - Problem sleep trouble scale

Scale of problems with trouble sleeping, as part of the Pediatric Quality of Life Inventory (PedsQL).

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C51635 Strengths and Difficulties Questionnaire (SDQ) - Conduct problem score

The conduct problem score as part of the Strengths and Difficulties Questionnaire (SDQ).

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C19500 Assessment performed date

The date of assessment of the examination being performed.

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C00035 Gender type

Self-reported gender of the participant/subject.

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C00035 Gender type

Self-reported gender of the participant/subject.

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C50084 Strengths and Difficulties Questionnaire (SDQ) - Well-behaved scale

The scale of if subject/participant is well-behaved, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C50084 Strengths and Difficulties Questionnaire (SDQ) - Well-behaved scale

The scale of if subject/participant is well-behaved, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C50092 Strengths and Difficulties Questionnaire (SDQ) - Distract easy scale

The scale indicating if the participant/subject is easily distracted, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C21940 Pediatric Quality of Life Inventory (PedsQL) - Problem memory difficulty scale

Scale of problems forgetting things, as part of the Pediatric Quality of Life Inventory (PedsQL).

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
Displaying 101 - 125 of 4412

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.