CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2940-C00013	C00013	Education level primary caregiver USA type	Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21939	C21939	Pediatric Quality of Life Inventory (PedsQL) - Problem low energy difficulty scale	Scale of problems with low energy, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2940-C00013	C00013	Education level primary caregiver USA type	Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab General
F2939-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab General
F2909-C51623	C51623	Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere leisure status	The status of interference with leisure activities related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C17402	C17402	Site name	The name of the site for the study	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21959	C21959	Pediatric Quality of Life Inventory (PedsQL) - Problem sleep trouble scale	Scale of problems with trouble sleeping, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2909-C51635	C51635	Strengths and Difficulties Questionnaire (SDQ) - Conduct problem score	The conduct problem score as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C00035	C00035	Gender type	Self-reported gender of the participant/subject	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C00035	C00035	Gender type	Self-reported gender of the participant/subject	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2909-C50084	C50084	Strengths and Difficulties Questionnaire (SDQ) - Well-behaved scale	The scale of if subject/participant is well-behaved, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C50084	C50084	Strengths and Difficulties Questionnaire (SDQ) - Well-behaved scale	The scale of if subject/participant is well-behaved, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2909-C50092	C50092	Strengths and Difficulties Questionnaire (SDQ) - Distract easy scale	The scale indicating if the participant/subject is easily distracted, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C50092	C50092	Strengths and Difficulties Questionnaire (SDQ) - Distract easy scale	The scale indicating if the participant/subject is easily distracted, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2909-C50136	C50136	Strengths and Difficulties Questionnaire (SDQ) - Many fear scale	The scale indicating if the participant/subject has many fears and is easily scared, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21951	C21951	Pediatric Quality of Life Inventory (PedsQL) - Problem unable social activity skill peer difficulty scale	Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2908-C21934	C21934	Pediatric Quality of Life Inventory (PedsQL) - Problem angry scale	Scale of problems with feeling mad, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2909-C50135	C50135	Strengths and Difficulties Questionnaire (SDQ) - Gets along better adults than children scale	The scale indicating if the participant/subject gets along better with adults than with other children, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2908-C21945	C21945	Pediatric Quality of Life Inventory (PedsQL) - Problem schoolwork difficulty scale	Scale of problems keeping up with schoolwork, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2909-C51622	C51622	Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere learn status	The status of interference with learning related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2939-C19256	C19256	Study protocol name	Name of study protocol	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21955	C21955	Pediatric Quality of Life Inventory (PedsQL) - Problem run difficulty scale	Scale of problems with running, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2909-C51634	C51634	Strengths and Difficulties Questionnaire (SDQ) - Emotional problem score	The emotional problems score as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2908-C21965	C21965	Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale	Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2940-C00205	C00205	Family income range	Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.