CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdisease Name

Subdomain Name

CRF Name

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2908-C21951	C21951	Pediatric Quality of Life Inventory (PedsQL) - Problem unable social activity skill peer difficulty scale	Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2908-C21934	C21934	Pediatric Quality of Life Inventory (PedsQL) - Problem angry scale	Scale of problems with feeling mad, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2909-C50135	C50135	Strengths and Difficulties Questionnaire (SDQ) - Gets along better adults than children scale	The scale indicating if the participant/subject gets along better with adults than with other children, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2908-C21945	C21945	Pediatric Quality of Life Inventory (PedsQL) - Problem schoolwork difficulty scale	Scale of problems keeping up with schoolwork, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2909-C51622	C51622	Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere learn status	The status of interference with learning related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2939-C19256	C19256	Study protocol name	Name of study protocol	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21955	C21955	Pediatric Quality of Life Inventory (PedsQL) - Problem run difficulty scale	Scale of problems with running, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2909-C51634	C51634	Strengths and Difficulties Questionnaire (SDQ) - Emotional problem score	The emotional problems score as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2908-C21965	C21965	Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale	Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive
F2940-C00205	C00205	Family income range	Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21940	C21940	Pediatric Quality of Life Inventory (PedsQL) - Problem memory difficulty scale	Scale of problems forgetting things, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2940-C00205	C00205	Family income range	Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member	NeuroRehab Core	Infant Pediatrics Demographics	False	NeuroRehab	NeuroRehab General
F2909-C50137	C50137	Strengths and Difficulties Questionnaire (SDQ) - Good attention span scale	The scale indicating the participant/subject has a good attention span, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C05130	C05130	Therapy or rehabilitation type	Type of therapy or rehabilitation services received by the participant/subject	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C51628	C51628	Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty duration	The duration related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2908-C21960	C21960	Pediatric Quality of Life Inventory (PedsQL) - Problem sport activity exercise participation difficulty scale	Scale of problems with participating in sports activity or exercise, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab General
F2909-C51636	C51636	Strengths and Difficulties Questionnaire (SDQ) - Hyperactivity score	The hyperactivity score as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2909-C50085	C50085	Strengths and Difficulties Questionnaire (SDQ) -Worry scale	The scale of how worried a participant/subject is/appears, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C50085	C50085	Strengths and Difficulties Questionnaire (SDQ) -Worry scale	The scale of how worried a participant/subject is/appears, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2909-C50096	C50096	Strengths and Difficulties Questionnaire (SDQ) - Kind young child scale	The scale indicating if the participant/subject is kind to young children, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab Comprehensive
F2939-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	NeuroRehab Core	Assessments and Examinations Demographic and Clinical Conditions	False	NeuroRehab	NeuroRehab Comprehensive
F2909-C50096	C50096	Strengths and Difficulties Questionnaire (SDQ) - Kind young child scale	The scale indicating if the participant/subject is kind to young children, as part of the Strengths and Difficulties Questionnaire (SDQ)	NeuroRehab Core	Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions	False	NeuroRehab	NeuroRehab General
F2908-C21935	C21935	Pediatric Quality of Life Inventory (PedsQL) - Problem school class attention difficulty scale	Scale of problems paying attention in class, as part of the Pediatric Quality of Life Inventory (PedsQL)	NeuroRehab Core	Pediatric Quality of Life Inventory (PedsQL)	True	NeuroRehab	NeuroRehab Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.