CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

4416 results.

Operations

Selected 16 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2919-C54690	C54690	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health mental health rate scale	Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	NeuroRehab	NeuroRehab Comprehensive
F2863-C52381	C52381	The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - First other difficulty scale	Scale that rates the severity of how the subject now suffers from other difficulties as compared with before the accident. Rate the first other difficulty	NeuroRehab Supplemental-Highly Recommended	Rivermead Post-Concussive Symptoms Questionnaire (RPQ)	False	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
F2901-C09941	C09941	World Health Organization Quality of Life (WHOQOL-BREF) - enough money scale	Scale used to assess financial stability, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire	NeuroRehab Supplemental-Highly Recommended	World Health Organization Quality of Life Assessment (WHOQOL-BREF)	True	NeuroRehab	NeuroRehab Comprehensive
F2942-C14292	C14292	Durable medical equipment indicator	Indicates if the participant/ subject was provided with any durable medical equipment	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab General
F2886-C17841	C17841	Quality of Life in Swallowing Disorders (SWAL-QOL) - questionnaire general comment text	Text regarding the subject's/participant's comments about the Quality of Life in Swallowing Disorders (SWAL-QOL) questionnaire	NeuroRehab Supplemental-Highly Recommended	Quality of Life in Swallowing Disorders (SWAL-QOL)	True	NeuroRehab	NeuroRehab General
F2911-C55682	C55682	PROMIS - Dyspnea Functional limitations walk 10 stairs without stop scale	Scale related to an individual being able to walk up 10 stairs (1 flight) without stopping, as part of the PROMIS Dyspnea Functional Limitations	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Dyspnea Functional Limitations	False	NeuroRehab	NeuroRehab Stroke
F2895-C11845	C11845	Frontal Behavioral Inventory (FBI) - aspontaneity score	The score the caregiver gives for the participant's/subject's aspontaneity, as part of the Frontal Behavioral Inventory (FBI) form	NeuroRehab Supplemental-Highly Recommended	Frontal Behavioral Inventory (FBI)	True	NeuroRehab	NeuroRehab General
F2916-C20762	C20762	Patient-Reported Outcome Measurement Information System (PROMIS) - Fright assessment past week scale	The scale which represents how often the participant felt frightened in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	NeuroRehab Supplemental-Highly Recommended	PROMIS Item Bank v1.0 - Emotional Distress - Anxiety	True	NeuroRehab	NeuroRehab Comprehensive
F2898-C07036	C07036	Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Sedative sleep pill problem frequency	Frequency for how often the participant/subject has used sedatives or sleeping pills (Valium, Serepax, Rohypnol, etc.) which led to health, social, legal, or financial problems in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)	NeuroRehab Supplemental-Highly Recommended	Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST)	False	NeuroRehab	NeuroRehab General
F2942-C10702	C10702	Walking own unable reason	Reason why the participant/subject is unable to walk on his/her own	NeuroRehab Supplemental-Highly Recommended	Devices: Mobility and Manipulation	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab General
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	NeuroRehab	NeuroRehab Comprehensive
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	NeuroRehab	NeuroRehab General

4416 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.