CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 3751 - 3775 of 3808
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17841 Quality of Life in Swallowing Disorders (SWAL-QOL) - questionnaire general comment text

Text regarding the subject's/participant's comments about the Quality of Life in Swallowing Disorders (SWAL-QOL) questionnaire

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C53759 Wide Range Achievement Test 4 (WRAT-4) - Word reading item 3 score

The score for Word Reading item 3, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C54279 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True NeuroRehab NeuroRehab General
C52367 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Second other difficulty scale

Scale that rates the severity of how the subject now suffers from other difficulties as compared with before the accident. Rate the second other difficulty

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C21480 Rey Auditory Verbal Learning Test (RAVLT) - Word list A type

The type as related to word used as part of List A in the Rey Auditory Verbal Learning Test (RAVLT)

 NeuroRehab Supplemental-Highly Recommended Rey Auditory Verbal Learning Test (RAVLT) True NeuroRehab NeuroRehab General
C20553 TBI Quality of Life (TBI-QOL) - Anger T-score

The T-Score related to verbal and non-verbal components of self-reported angry mood (irritability, frustration), negative social cognitions (interpersonal sensitivity, envy, disagreeableness), and efforts to control anger, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Moderate/Severe TBI: Rehabilitation
C07179 The Galveston Orientation and Amnesia Test (GOAT) - Live location score

Scored ability to accurately state place of residence, as part of the Galveston Orientation and Amnesia Test (GOAT)

 NeuroRehab Supplemental-Highly Recommended Galveston Orientation and Amnesia Test (GOAT) True NeuroRehab NeuroRehab Comprehensive
C17378 Parkinson's Disease Quality of Life (PDQUALIF) - difficulty adjust change scale

Rating scale for feeling difficult to adjust to the changes which have taken place in the body as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Comprehensive
C53880 Wide Range Achievement Test 4 (WRAT-4) - Stanine score

The subject's scaled score on a nine point standard scale (with a mean of five and a standard deviation of two), as part of the Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C17769 Rater name

Name of rater

 NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) True NeuroRehab NeuroRehab Comprehensive
C20562 TBI Quality of Life (TBI-QOL) - Emotional behavioral dyscontrol T-score

The T-Score related to a set of injury and/or treatment related manifestations including disinhibition, emotional lability, irritability, impatience, and impulsiveness, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab TBI Epidemiology
C54449 Dynamic Gait Index (DGI) - Gait speed change task score

Score for the change in gait speed task, as part of the Dynamic Gait Index (DGI)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Persistent/Chronic Sport Related Concussion
C07013 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Cocaine use frequency

Frequency for how often the participant/subject has used cocaine (coke, crack, etc.) in the past 3 months, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab Comprehensive
C09935 World Health Organization Quality of Life (WHOQOL-BREF) - life meaningful scale

Scale used to assess the extent to which the participant feels life is meaningful, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab General
C11867 Frontal Behavioral Inventory (FBI) - utilization behavior score

The score the caregiver gives for the participant's/subject's utilization behavior, as part of the Frontal Behavioral Inventory (FBI) form

 NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) True NeuroRehab NeuroRehab General
C07058 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Other substance concern indicator

Indicator for whether a friend or relative or anyone else has ever expressed concern for the participant/subject's use of other substances not previously listed before, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab General
C52377 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Sleep disturbance scale

Scale that rates the severity of how the subject now suffers from sleep disturbance as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C54457 Dynamic Gait Index (DGI) - Step over obstacle task score

Score for the subject/participant's performance on the Step Over Obstacles task, as part of the Dynamic Gait Index (DGI)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Comprehensive
C20436 Beck Depression Inventory II (BDI-II) - Sleep pattern change scale

Scale identifying level of change in sleep pattern, as part of the Beck Depression Inventory II (BDI-II)

 NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True NeuroRehab NeuroRehab General
C18183 Wheelchair driven subject indicator

Indicator for whether the power wheelchair is driven by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C21099 Frontal Systems Behavior Scale (FrSBE) - Missing answer subscale E count

Count of unanswered or missing questions for Executive Dysfunction subscale as part of Frontal Systems Behavior Scale (FrSBE) form

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C53752 Wide Range Achievement Test 4 (WRAT-4) - Letter 15 score

Score for Letter Recognition item 15, as a part of the Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C10311 Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem changed activities indicator

Scale assessing how true the following statement has been for the participant during the last month: My usual work or leisure activities have changed because of my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C10715 Walker use age started value

Age of the participant/subject when he/she began using a walker

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
Displaying 3751 - 3775 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.