CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 3726 - 3750 of 3808
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54268 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Total scale index score

Total scale index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest

 NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True NeuroRehab NeuroRehab Comprehensive
C20461 Brief Visuospatial Memory Test - Revised (BVMT-R) - Learning raw score

Raw score for Learning portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) True NeuroRehab NeuroRehab General
C18182 Therapy rehabilitation frequency

Frequency the participant/subject received the therapy or rehabilitation

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C56332 NIH Toolbox Cognitive – Pattern comparison processing speed age 7 up raw score

The raw score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab Comprehensive
C21854 Brief Test of Adult Cognition by Telephone (BTACT) - Number series response type text

Text for type of responses in the Number Series Task, as part of Brief Test of Adult Cognition by Telephone (BTACT)

 NeuroRehab Supplemental-Highly Recommended Brief Test of Adult Cognition by Telephone (BTACT) False NeuroRehab NeuroRehab General
C20553 TBI Quality of Life (TBI-QOL) - Anger T-score

The T-Score related to verbal and non-verbal components of self-reported angry mood (irritability, frustration), negative social cognitions (interpersonal sensitivity, envy, disagreeableness), and efforts to control anger, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Acute Hospitalized TBI
C07181 The Galveston Orientation and Amnesia Test (GOAT) - building location score

Scored ability to accurately identify the building they are currently located, as part of the Galveston Orientation and Amnesia Test (GOAT)

 NeuroRehab Supplemental-Highly Recommended Galveston Orientation and Amnesia Test (GOAT) True NeuroRehab NeuroRehab General
C08518 36-item Short Form Health Survey (SF-36) - Less accomplished emotional problems indicator

Indicator for surveyee-reported less accomplishment as a result of emotional problems during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True NeuroRehab NeuroRehab General
C21848 Beck Anxiety Inventory (BAI) - Hot cold sweat bother scale

Scale that represents how much the participant has been bothered by hot/cold sweats as part of the Beck Anxiety Inventory (BAI)

 NeuroRehab Supplemental-Highly Recommended Beck Anxiety Inventory (BAI) True NeuroRehab NeuroRehab Comprehensive
C53739 Wide Range Achievement Test 4 (WRAT-4) - Letter 9 text

The letter used for Letter Recognition item 9, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C07006 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Sedative sleep pill indicator

Indicator for whether the participant/subject has ever used any sedatives or sleeping pills (Valium, Serepax, Rohypnol, etc.) for non-medical use, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab General
C17378 Parkinson's Disease Quality of Life (PDQUALIF) - difficulty adjust change scale

Rating scale for feeling difficult to adjust to the changes which have taken place in the body as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Parkinson's Disease
C53735 Wide Range Achievement Test 4 (WRAT-4) - Letter 5 text

The letter used for Letter Recognition item 5, as part of Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C53864 Wide Range Achievement Test 4 (WRAT-4) - Word reading performance level category

The category to describe the subject's word-reading performance, as part of the Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab General
C20976 Frontal Systems Behavior Scale (FrSBE) - Disorganized frequency scale

Frequency of being disorganized as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C08514 36-item Short Form Health Survey (SF-36) - Less accomplished physical health indicator

Indicator for surveyee-reported less accomplishment as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 NeuroRehab Supplemental-Highly Recommended Short Form 36-Item Health Survey (SF-36) True NeuroRehab NeuroRehab Comprehensive
C18639 Brief Symptom Inventory-18 (BSI18)- Fearful scale

The scale for the participant's distress from feeling fearful

 NeuroRehab Supplemental-Highly Recommended Brief Symptom Inventory-18 (BSI-18) True NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C52373 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - First other difficulty text

The free-text field related to 'The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)- First other difficulty scale' specifying the first other difficulty text

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Subacute Sport Related Concussion
C53860 Wide Range Achievement Test 4 (WRAT-4) - Word reading percentile rank number

The subject's percentile rank of performance for word reading, as part of the Wide Range Achievement Test 4 (WRAT-4)

 NeuroRehab Supplemental-Highly Recommended Word Reading Subtest of the Wide Range Achievement Test (WRAT-4) True NeuroRehab NeuroRehab Comprehensive
C09354 Hamilton Anxiety Rating Scale (HAM-A) - gastrointestinal symptom score

The score of the participant's/subject's gastrointestinal symptoms, as part of the Hamilton Anxiety Rating Scale (HAM-A) form.

 NeuroRehab Supplemental-Highly Recommended Hamilton Anxiety Rating Scale (HAM-A) False NeuroRehab NeuroRehab General
C58567 Dynamic upper extremity orthosis splint frequency use laterality type

Laterality type of dynamic upper extremity orthosis splints frequency used by participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C07046 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Hallucinogen fail frequency

Frequency for how often the participant/subject has used failed to do what was normally expected because of the use of hallucinogens (LSD, acid, mushrooms, PCP, Special K, etc.) in the past 3 months., as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab Comprehensive
C21476 Rey Auditory Verbal Learning Test (RAVLT) - Correct recall trial total count

Total number of words from List A correctly recalled during all trials as part of Rey Auditory Verbal Learning Test (RAVLT)

 NeuroRehab Supplemental-Highly Recommended Rey Auditory Verbal Learning Test (RAVLT) True NeuroRehab NeuroRehab General
C14704 Berg Balance Scale (BBS) - alternate foot step up scale

The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 NeuroRehab Supplemental-Highly Recommended Berg Balance Scale (BBS) False NeuroRehab NeuroRehab General
C09588 Brief Pain Inventory (BPI) - pain sleep interference scale

Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form

 NeuroRehab Supplemental-Highly Recommended Brief Pain Inventory (Short Form) True NeuroRehab NeuroRehab Comprehensive
Displaying 3726 - 3750 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.