CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 3526 - 3550 of 3808
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17733 Person completing form name

Name of person completing the form

 NeuroRehab Supplemental-Highly Recommended Stroop Test True NeuroRehab NeuroRehab Comprehensive
C14835 Activities specific Balance Confidence Scale (ABC-Scale) - walk stairs scale

Using the Activities-specific Balance Confidence (ABC) Scale, the level of confidence that the participant/subject reports for being able to maintain balance and remain steady when walking up or down stairs

 NeuroRehab Supplemental-Highly Recommended Activities Specific Balance Confidence Scale (ABC-Scale) True NeuroRehab NeuroRehab Comprehensive
C54465 Functional Gait Assessment (FGA) - Gait task stair score

Score for the subject/participant's performance walking up stairs for the Steps task, as part of the Functional Gait Assessment (FGA)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Sport Related Concussion Comprehensive
C52376 The Rivermead Post-Concussion Symptoms Questionnaire (RPQ) - Fatigue scale

Scale that rates the severity of how the subject now suffers from fatigue and/or tiring more easily as compared with before the accident, as part of The Rivermead Post-Concussion Symptoms Questionnaire (RPQ)

 NeuroRehab Supplemental-Highly Recommended Rivermead Post-Concussive Symptoms Questionnaire (RPQ) False NeuroRehab NeuroRehab Comprehensive
C20581 TBI Quality of Life (TBI-QOL) - Resilience T-score

The T-Score related to subjective experience of the process and outcome of successfully adapting to difficult or challenging life experiences, especially highly stressful or traumatic events, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab Concussion/Mild TBI
C17371 Parkinson's Disease Quality of Life (PDQUALIF) - trouble stay asleep scale

Rating scale for trouble staying asleep as part of Parkinson's Disease Quality of Life (PDQUALIF) form

 NeuroRehab Supplemental-Highly Recommended Parkinson's Disease Quality of Life Scale (PDQUALIF) True NeuroRehab NeuroRehab Comprehensive
C54449 Dynamic Gait Index (DGI) - Gait speed change task score

Score for the change in gait speed task, as part of the Dynamic Gait Index (DGI)

 NeuroRehab Supplemental-Highly Recommended Functional Gait Assessment False NeuroRehab NeuroRehab Comprehensive
C09310 Apathy Scale (AS) - Energy scale

The scale related to the subject's energy levels, as part of the Apathy Scale (AS) form

 NeuroRehab Supplemental-Highly Recommended Apathy Scale (AS) True NeuroRehab NeuroRehab Comprehensive
C20551 TBI Quality of Life (TBI-QOL) - Ability participate social role activity T-score

The T-Score related to degree of involvement in one's usual social roles, activities, and responsibilities, including work, family, friends, and leisure, as part of the TBI Quality of Life (TBI-QOL)

 NeuroRehab Supplemental-Highly Recommended Traumatic Brain Injury - Quality of Life (TBI-QOL) False NeuroRehab NeuroRehab TBI Epidemiology
C58875 Therapy or rehabilitation received status other text

The free-text field related to 'Therapy or rehabilitation received status' specifying other text. Status of therapy or rehabilitation services received by the participant/subject

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C07006 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Sedative sleep pill indicator

Indicator for whether the participant/subject has ever used any sedatives or sleeping pills (Valium, Serepax, Rohypnol, etc.) for non-medical use, as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab Comprehensive
C09956 World Health Organization Quality of Life (WHOQOL-BREF) - form assistance indicator

Indicator of whether someone helped the participant filled out the questionnaire, as part of the World Health Organization Quality of Life (WHQOL-BREF) questionnaire

 NeuroRehab Supplemental-Highly Recommended World Health Organization Quality of Life Assessment (WHOQOL-BREF) True NeuroRehab NeuroRehab Comprehensive
C58498 Transfer transportation device type other text

Text describing the presence of any other transfer/transportation device used

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C11860 Frontal Behavioral Inventory (FBI) - excessive jocularity score

The score the caregiver gives for the participant's/subject's excessive jocularity, as part of the Frontal Behavioral Inventory (FBI) form

 NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) True NeuroRehab NeuroRehab General
C07051 Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST) - Cannabis concern indicator

Indicator for whether a friend or relative or anyone else has ever expressed concern for the participant/subject's use of cannabis (marijuana, pot, grass, hash, etc), as part of the Alcohol Smoking and Substance Use Involvement Screening Test (ASSIST)

 NeuroRehab Supplemental-Highly Recommended Alcohol, Smoking, and Substance Use Involvement Screening Test (ASSIST) False NeuroRehab NeuroRehab General
C06060 Pain location indicator

Indicates if the participant experienced pain in the particular location described jointly by the laterality and anatomic site

 NeuroRehab Supplemental-Highly Recommended Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C56282 NIH Toolbox Cognitive – Cognition crystallized composite fully adjusted scale score

The fully adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

 NeuroRehab Supplemental-Highly Recommended NIH Toolbox Cognitive Battery False NeuroRehab NeuroRehab General
C58484 Dynamic lower extremity stretch orthosis splint use frequency type

Frequency type with which the participant/subject uses their dynamic lower extremity stretching orthosis/splints, if applicable

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C20429 Beck Depression Inventory II (BDI-II) - Suicidal thought wish scale

Scale identifying level of suicidal thoughts or wishes, as part of the Beck Depression Inventory II (BDI-II)

 NeuroRehab Supplemental-Highly Recommended Beck Depression Inventory II (BDI-II) True NeuroRehab NeuroRehab General
C21080 Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale T score

T score for Disinhibition subscale as part of Frontal Systems Behavior Scale (FrSBE)

 NeuroRehab Supplemental-Highly Recommended Frontal Systems Behavioral Scale (FrSBe) True NeuroRehab NeuroRehab General
C54251 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Semantic fluency total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Semantic Fluency Subtest

 NeuroRehab Supplemental-Highly Recommended Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True NeuroRehab NeuroRehab Comprehensive
C20465 Brief Visuospatial Memory Test - Revised (BVMT-R) - Delayed recall T-score

T-score for Delayed Recall portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

 NeuroRehab Supplemental-Highly Recommended Brief Visuospatial Memory Test Revised (BVMT-R) True NeuroRehab NeuroRehab Comprehensive
C21655 Back brace frequency type

Describes how long the participant/subject wears the body jacket/back brace/TSLO

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10304 Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem depress indicator

Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem depresses me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL)

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C11847 Frontal Behavioral Inventory (FBI) - inflexibility score

The score the caregiver gives for the participant's/subject's inflexibility, as part of the Frontal Behavioral Inventory (FBI) form

 NeuroRehab Supplemental-Highly Recommended Frontal Behavioral Inventory (FBI) True NeuroRehab NeuroRehab Comprehensive
Displaying 3526 - 3550 of 3808

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.