CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2905-C21458	C21458	Immediate Post-Concussion Assessment Testing (ImPACT) - Three letters total sequence correct count	The number of total sequence items correct on the three letters module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
F2905-C21402	C21402	Immediate Post-Concussion Assessment Testing (ImPACT) - Impulse control composite score	Impulse control composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
F2906-C55269	C55269	Post Concussion Symptom Scale (PCSS) - Drowsiness symptom score	The score for drowsiness symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Acute Sport Related Concussion
F2905-C21453	C21453	Immediate Post-Concussion Assessment Testing (ImPACT) - Symbol match hidden average correct reaction time duration	The hidden average reaction time total correct duration, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
F2905-C21397	C21397	Immediate Post-Concussion Assessment Testing (ImPACT) - Visual motor speed composite percentage value	The percentile of the subject's visual motor speed composite score (if available), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
F2906-C05400	C05400	Injury date time	Date (and time, if applicable and known) of injury	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Comprehensive
F2905-C21450	C21450	Immediate Post-Concussion Assessment Testing (ImPACT) - Symbol match visible total correct count	The number of visible total correct responses on the symbol match module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
F2905-C21413	C21413	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Fatigue score	The subject's current fatigue rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
F2906-C55270	C55270	Post Concussion Symptom Scale (PCSS) - Light sensitivity symptom score	The score for light sensitivity symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
F2905-C21525	C21525	Language secondary ISO code	Code (ISO 639-2) for the language the participant/subject speaks second-most often	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
F2905-C21410	C21410	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Vomiting score	The subject's current vomiting rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
F2905-C21375	C21375	Immediate Post-Concussion Assessment Testing (ImPACT) - Memory loss prior injury concussion result count	Number of concussions that resulted in a loss of memory of the events that occurred before injury, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
F2906-C55260	C55260	Post Concussion Symptom Scale (PCSS) - Headache symptom score	The score for headache symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
F2905-C21428	C21428	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Memory difficulty assessment score	The subject's current difficulty remembering rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
F2905-C21391	C21391	Immediate Post-Concussion Assessment Testing (ImPACT) - Verbal memory composite percentage value	The percentile of the subject's verbal memory composite score (if available), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
F2905-C21372	C21372	Immediate Post-Concussion Assessment Testing (ImPACT) - Loss of consciousness concussion result count	Number of concussions that resulted in loss of consciousness (LOC), as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
F2905-C21444	C21444	Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory total correct percentage value	The total percent correct on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
F2906-C55276	C55276	Post Concussion Symptom Scale (PCSS) - Numbness symptom score	The score for numbness symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Acute Sport Related Concussion
F2905-C21388	C21388	Immediate Post-Concussion Assessment Testing (ImPACT) - Exam language type	Type of language the exam was conducted in, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
F2905-C21460	C21460	Immediate Post-Concussion Assessment Testing (ImPACT) - Three letters percent of total letters correct percentage value	The numeric percentage of total letters correct on the three letters module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
F2906-C55268	C55268	Post Concussion Symptom Scale (PCSS) - Sleep loss symptom score	The score for loss of sleep symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
F2905-C21399	C21399	Immediate Post-Concussion Assessment Testing (ImPACT) - Reaction time composite score	Reaction time composite score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
F2905-C21380	C21380	Immediate Post-Concussion Assessment Testing (ImPACT) - Epilepsy seizure treatment administered indicator	Indicator of whether the subject was treated for epilepsy/seizures, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
F2905-C21452	C21452	Immediate Post-Concussion Assessment Testing (ImPACT) - Symbol match hidden total correct count	The number of hidden total correct responses on the symbol match module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
F2906-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.