CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C21422	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Nervousness score	The subject's current nervousness rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21366	Immediate Post-Concussion Assessment Testing (ImPACT) - Attention deficit disorder hyperactivity problem indicator	Indicator of whether the subject has problems with ADD/hyperactivity, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C21117	Subject name	Name of subject/participant	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C21417	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Drowsiness score	The subject's current drowsiness rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C00025	Language primary text	Text for the language the participant/subject speaks most often	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C55274	Post Concussion Symptom Scale (PCSS) - Nervousness symptom score	The score for nervousness symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21414	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Falling asleep trouble score	The subject's current trouble falling asleep rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C21377	Immediate Post-Concussion Assessment Testing (ImPACT) - Concussion five most recent month year text	The month/year text of the 5 most recent concussions, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C00004	Birth country ISO code	Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C21430	Immediate Post-Concussion Assessment Testing (ImPACT) - Total symptom score	The subject's total symptom score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21374	Immediate Post-Concussion Assessment Testing (ImPACT) - Memory loss post injury concussion result count	Number of concussions that resulted in loss of memory of events immediately after injury, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C55266	Post Concussion Symptom Scale (PCSS) - Trouble fall asleep symptom score	The score for having trouble asleep symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C21425	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Slowed down assessment score	The subject's current feeling slowed down rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C21369	Immediate Post-Concussion Assessment Testing (ImPACT) - Primary position event class text	Primary type of position/event/class, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C55282	Post Concussion Symptom Scale (PCSS) - Total score	The total score as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21422	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Nervousness score	The subject's current nervousness rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C21385	Immediate Post-Concussion Assessment Testing (ImPACT) - Autism diagnosis indicator	Indicator of whether the subject has been diagnosed with autism, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C21366	Immediate Post-Concussion Assessment Testing (ImPACT) - Attention deficit disorder hyperactivity problem indicator	Indicator of whether the subject has problems with ADD/hyperactivity, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C21438	Immediate Post-Concussion Assessment Testing (ImPACT) - Design memory immediate hit count	The number of immediate hits on the design memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21382	Immediate Post-Concussion Assessment Testing (ImPACT) - Substance alcohol abuse treatment administered indicator	Indicator of whether the subject has received treatment for substance or alcohol abuse, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Acute Sport Related Concussion
C21453	Immediate Post-Concussion Assessment Testing (ImPACT) - Symbol match hidden average correct reaction time duration	The hidden average reaction time total correct duration, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Comprehensive
C21416	Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS) - Sleep less than normal duration score	The subject's current sleep less than usual rating score, as part of the Immediate Post-Concussion Assessment Testing (ImPACT), the Post -Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Persistent/Chronic Sport Related Concussion
C55273	Post Concussion Symptom Scale (PCSS) - Sadness symptom score	The score for sadness symptoms as part of the Post Concussion Symptom Scale (PCSS)	NeuroRehab Sport Related Concussion Core	Post Concussion Symptom Scale	False	NeuroRehab	NeuroRehab Subacute Sport Related Concussion
C00024	Language primary ISO code	Code (ISO 639-2) for the language the participant/subject speaks most often	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Sport Related Concussion Comprehensive
C21432	Immediate Post-Concussion Assessment Testing (ImPACT) - Word memory immediate correct distractor count	The number of immediate correct distractors identified on the word memory module, as part of the Immediate Post-Concussion Assessment Testing (ImPACT)	NeuroRehab Sport Related Concussion Core	Immediate Post-Concussion Assessment and Cognitive Testing (imPACT)	True	NeuroRehab	NeuroRehab Subacute Sport Related Concussion

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.