CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 4416
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C51630 Strengths and Difficulties Questionnaire (SDQ) - Person complete form type

The type of person completing form as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C21960 Pediatric Quality of Life Inventory (PedsQL) - Problem sport activity exercise participation difficulty scale

Scale of problems with participating in sports activity or exercise, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab Comprehensive
C51638 Strengths and Difficulties Questionnaire (SDQ) - Prosocial score

The prosocial score as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C21935 Pediatric Quality of Life Inventory (PedsQL) - Problem school class attention difficulty scale

Scale of problems paying attention in class, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C18684 Health insurance other text

The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

 NeuroRehab Core Infant Pediatrics Demographics False NeuroRehab NeuroRehab Comprehensive
C21946 Pediatric Quality of Life Inventory (PedsQL) - Problem play energy peer difficulty scale

Scale of problems with keeping up when playing with other children, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C18684 Health insurance other text

The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

 NeuroRehab Core Infant Pediatrics Demographics False NeuroRehab NeuroRehab General
C17402 Site name

The name of the site for the study

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C21939 Pediatric Quality of Life Inventory (PedsQL) - Problem low energy difficulty scale

Scale of problems with low energy, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab Comprehensive
C50831 Strengths and Difficulties Questionnaire (SDQ) - Signature text

The signature, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C19500 Assessment performed date

The date of assessment of the examination being performed

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
C51640 Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social overall difficulty indicator

The indicator related to having overall difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C50081 Strengths and Difficulties Questionnaire (SDQ) - Sharing scale

The scale of how often participant/subject is willing to share, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C50081 Strengths and Difficulties Questionnaire (SDQ) - Sharing scale

The scale of how often participant/subject is willing to share, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C50089 Strengths and Difficulties Questionnaire (SDQ) - Fight bully scale

The scale of whether the participant/subject fights with other children or bullies them, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C50089 Strengths and Difficulties Questionnaire (SDQ) - Fight bully scale

The scale of whether the participant/subject fights with other children or bullies them, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C50133 Strengths and Difficulties Questionnaire (SDQ) - Stop think before act scale

The scale indicating if participant/subject is able to stop and think things out before acting, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C51620 Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere daily home life status

The status of interference in home life related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C21955 Pediatric Quality of Life Inventory (PedsQL) - Problem run difficulty scale

Scale of problems with running, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C51632 Strengths and Difficulties Questionnaire (SDQ) - Externalising score

The score generated by summing the 'conduct' and 'hyperactivity' scales, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C21965 Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale

Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C21951 Pediatric Quality of Life Inventory (PedsQL) - Problem unable social activity skill peer difficulty scale

Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab Comprehensive
C51631 Strengths and Difficulties Questionnaire (SDQ) - Total difficulties score

The score generated by summing scores from all the scale (excluding the prosocial scale), as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab General
Displaying 26 - 50 of 4416

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.