CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 4412
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False NeuroRehab NeuroRehab Comprehensive
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False NeuroRehab NeuroRehab General
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core General Core False NeuroRehab NeuroRehab Comprehensive
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core General Core False NeuroRehab NeuroRehab General
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core General Core False NeuroRehab NeuroRehab General
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core General Core False NeuroRehab NeuroRehab Comprehensive
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core General Core False NeuroRehab NeuroRehab General
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core General Core False NeuroRehab NeuroRehab Comprehensive
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core General Core False NeuroRehab NeuroRehab Comprehensive
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core General Core False NeuroRehab NeuroRehab General
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False NeuroRehab NeuroRehab Comprehensive
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False NeuroRehab NeuroRehab General
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False NeuroRehab NeuroRehab Comprehensive
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False NeuroRehab NeuroRehab General
C50081 Strengths and Difficulties Questionnaire (SDQ) - Sharing scale

The scale of how often participant/subject is willing to share, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C50089 Strengths and Difficulties Questionnaire (SDQ) - Fight bully scale

The scale of whether the participant/subject fights with other children or bullies them, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C50089 Strengths and Difficulties Questionnaire (SDQ) - Fight bully scale

The scale of whether the participant/subject fights with other children or bullies them, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C50133 Strengths and Difficulties Questionnaire (SDQ) - Stop think before act scale

The scale indicating if participant/subject is able to stop and think things out before acting, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C50133 Strengths and Difficulties Questionnaire (SDQ) - Stop think before act scale

The scale indicating if participant/subject is able to stop and think things out before acting, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab General
C51620 Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social difficulty interfere daily home life status

The status of interference in home life related to having difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C51632 Strengths and Difficulties Questionnaire (SDQ) - Externalising score

The score generated by summing the 'conduct' and 'hyperactivity' scales, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C19126 Clinical trial name

Name of clinical trial in which patient/participant is enrolled

 NeuroRehab Core Assessments and Examinations Demographic and Clinical Conditions False NeuroRehab NeuroRehab Comprehensive
C21965 Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale

Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL)

 NeuroRehab Core Pediatric Quality of Life Inventory (PedsQL) True NeuroRehab NeuroRehab General
C51640 Strengths and Difficulties Questionnaire (SDQ) - Emotional concentration behavior social overall difficulty indicator

The indicator related to having overall difficulties with emotions, concentration, behavior, and being able to get along with other people, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
C50081 Strengths and Difficulties Questionnaire (SDQ) - Sharing scale

The scale of how often participant/subject is willing to share, as part of the Strengths and Difficulties Questionnaire (SDQ)

 NeuroRehab Core Strengths and Difficulties Questionnaire (SDQ), combined Full and Followup versions False NeuroRehab NeuroRehab Comprehensive
Displaying 1 - 25 of 4412

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.