CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2134-C12304	C12304	Pulmonary function test equipment model name	Name of model of the pulmonary function test equipment	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12305	C12305	Pulmonary function test equipment software program name	The software program used in the pulmonary function test equipment	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12306	C12306	Ulna length measurement	The length of the ulna of the participant/subject	Supplemental	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12307	C12307	Ulna length measure tool name	Instrument used to measure ulna length	Supplemental	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12308	C12308	Pulmonary function test bronchodilator indicator	Whether the patient was taking bronchodilator during the time of testing	Supplemental	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12310	C12310	Pulmonary function complete exhalation indicator	Whether the complete amount of air was exhaled from the participant/subject	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12311	C12311	Pulmonary function index of lung function type	The different functions of the lungs tested during pulmonary function test (PFT)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12312	C12312	Pulmonary function index of lung function best trial measurement	The best trial of the index of lung function trials performed for pulmonary function test (PFT) measures	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12313	C12313	Pulmonary function maximal pressure trial difference indicator	Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12314	C12314	Pulmonary function forced vital capacity cough exhalation indicator	Whether or not the participant coughed during the first second of exhalation in any trial for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12315	C12315	Pulmonary function forced vital capacity leak indicator	Whether or not there was a leak during exhalation in any trial for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12316	C12316	Pulmonary function forced vital capacity large value range indicator	Whether the two largest values of forced vital capacity (FVC) are within 10% of each other	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12317	C12317	Pulmonary function forced vital capacity early termination indicator	Whether or not there was early termination with a steep cutoff during the trials for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12318	C12318	Pulmonary function forced vital capacity peak flow indicator	Whether or not there was a clearly defined peak flow during any of the trials for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12516	C12516	Pulmonary function lung function measurement	Numeric result of index function of the lungs tested	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C17874	C17874	Pulmonary function test not done indicator	Was the pulmonary function test not done	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C17876	C17876	Pulmonary function test not done text	If the PFT was not performed on the participant/subject, specify other reason	Supplemental	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C18833	C18833	Pulmonary function test not done other text	The free-text field related to 'Pulmonary function test not done reason' specifying other text. Reason the pulmonary function test was attempted but not completed	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C18834	C18834	Ulna length measure tool other text	The free-text field related to 'Ulna length measure tool name' specifying other text. Instrument used to measure ulna length	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant, assigned at birth	Core	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth	Supplemental	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Supplemental	General Core	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1056-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1059-C59694	C59694	Tachycardia episode unit of measure	Unit of measure for the episode of tachycardia	Supplemental	Holter Examination	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.