CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 501 - 525 of 675
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19750 Gene mutation myotonic dystrophy detected type

Type mutations detected

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19751 Gene mutation myotonic dystrophy repeat length assessment indicator

Indicator of whether the mutated repeated allele's length was analyzed

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19752 Gene mutation myotonic dystrophy repeat assessment count

Count of copy numbers of the mutated allele length

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19753 Gene mutation myotonic dystrophy repeat assessment length value

Length of the mutated allele

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19754 Gene mutation myotonic dystrophy repeat interruption assessment indicator

Indicator of whether repeat interruptions were found

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19755 Gene mutation myotonic dystrophy repeat interruption assessment text

The type of repeat interruptions assessed

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19756 Gene mutation myotonic dystrophy detect method type

The type of methods used to detect detect repeat interruptions

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19757 Gene mutation myotonic dystrophy other variant indicator

The indicator related to whether there were any additional variants/mutations in the specified genes

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19758 Target RNA alternative splicing indicator

The indicator of whether there were target RNA species for alternative splicing investigated

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19759 Target RNA alternative splicing text

Text identifying the type of target RNA species were investigated and in which tissue

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01700 Specimen accession number

Number with which the specimen taken for the tests being reported was accessioned to the record storage facility

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01702 Pregnancy test date and time

The date (and time if applicable and known) when the pregnancy test was performed

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01703 Lab panel category

Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01704 Pregnancy test specimen type

Type of specimen collected to perform the pregnancy test

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01706 Lab test result text

Result of the laboratory test

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01707 Lab test abnormality significance type

Indicator as to whether or not the abnormal lab result for the associated test was considered clinically significant for the participant/subject

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01708 Lab test performed indicator

Indicator of whether the lab test has been performed on the participant/subject

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01710 Pregnancy test qualitative result value

Result of the pregnancy test

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01713 Lab test result unit of measure UCUM code

Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01720 Lab test LOINC code

Identifier name given to a test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental Laboratory Tests and Tracking False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 501 - 525 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.