CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 675

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1988-C17900	C17900	Age presentation year value	Age (in years) of participant/subject at presentation	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C17963	C17963	Cardiovascular mitral valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12252	C12252	Biopsy and autopsy fiber size variation result type	Distribution of the atrophic fibers	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C02498	C02498	Imaging scanner software version number text	Free-text field specifying the version number of the imaging scanner software	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1829-C18816	C18816	Manual muscle testing position other text	The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12866	C12866	Echocardiogram left atrial area measurement	Measurement of the left atrial area from the apical 4-chamber view obtained by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C18839	C18839	Respiratory postural drainage use other text	The free-text field related to 'Respiratory postural drainage use frequency' specifying other text. Frequency of postural drainage use	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1836-C19523	C19523	Muscle disease inflammatory type specify text	Specify text for type of inflammatory muscle disease	Supplemental	Medical History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C01539	C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12260	C12260	Biopsy and autopsy perivascular inflammation type	Evidence of vascular damage includes damaged vessels in association with perivascular inflammation and the presence of fibrin thrombi located within vascular spaces	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C00214	C00214	Living with persons count	Count of other people with whom the participant/subject currently lives, cohabits, or stays	Supplemental	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12874	C12874	Echocardiogram pulmonic valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C12831	C12831	ECG atrioventricular block first degree status	Status of first degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C18847	C18847	Respiratory support device other text	the free-text field related to 'Respiratory support device type' specifying other text. Type of respiratory support or assisted ventilation device used	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12268	C12268	Immunohistochemical stain used muscle biopsy and autopsy type	Which immunohistochemical stains were used on muscle biopsy?	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C10586	C10586	Imaging bandwidth value	Value, in Hertz per pixel, of bandwidth used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C12609	C12609	Education level paternal USA type	Indicator of the highest level of education completed by the participant/subject's father	Supplemental	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12893	C12893	Echocardiogram right ventricle wall motion abnormal indicator	Indicator of wall motion abnormalities in the right ventricle on the echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C18776	C18776	ECG atrial arrhythmia type other text	The free-text field related to 'ECG atrial arrhythmia type', specifying other text. Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1038-C12400	C12400	Respiratory oxygen administration method name	Name of method of administration of supplemental oxygen used	Supplemental	Measures of Gas Exchange	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1059-C59694	C59694	Tachycardia episode unit of measure	Unit of measure for the episode of tachycardia	Supplemental	Holter Examination	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12276	C12276	Biopsy and autopsy mitochondria abnormality type	Type of mitochondria abnormality in muscle biopsy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1835-C12663	C12663	Family history member with medical condition count	Count of family members with history of medical condition	Supplemental	Family History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12901	C12901	Echocardiogram right ventricle end systolic volume measurement	Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.