CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 576 - 600 of 675

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1988-C12257	C12257	Biopsy and autopsy nemaline rod type	Rod-shaped structures, visible at high magnification, which are most visible on Gomori trichrome stain and on EM preparations	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C00205	C00205	Family income range	Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member	Supplemental	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12871	C12871	Echocardiogram aortic valve stenosis degree status	Status of the degree of aortic valve stenosis as assessed by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12265	C12265	Biopsy and autopsy diagnostic abnormalities severity grade	Severity of the diagnostic muscle abnormalities	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C12605	C12605	Caregiver primary type	Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject	Supplemental	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12890	C12890	Echocardiogram left ventricle function status	Status of left ventricle function on the echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C12836	C12836	ECG left anterior hemiblock status	Status of left anterior hemiblock apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1059-C18879	C18879	Cardiovascular Holter predominant heart rhythm type other text	The free-text field related to 'Cardiovascular Holter predominant heart rhythm type', specifying other text. Type of heart rhythm the participant exhibited the majority of the time during the Holter examination	Supplemental	Holter Examination	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12273	C12273	Biopsy and autopsy normal immunoreactivity assay name	Name of the normal immunoreactivity assay used	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1835-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12898	C12898	Echocardiogram left ventricle end diastolic volume index measurement	Measurement calculated from end diastolic volume over body surface area for the left ventricle obtained by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12228	C12228	Tissue specimen name	Tissue specimen name collected from the participant	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C10728	C10728	Echocardiogram left ventricular internal dimension end systole measurement	Measurement of left ventricular end - systolic internal dimension (LVIDs) obtained by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12521	C12521	Specimen type 2 fiber muscle biopsy percent result number	Result for type 2 fiber muscle biopsy percent	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1835-C19669	C19669	Family history diagnosis age value	Age at which relative was diagnosed with the disease in question	Supplemental	Family History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12906	C12906	Echocardiogram left ventricle non-compaction status	Status of non-compaction in the left ventricle on the echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12238	C12238	Biopsy and autopsy epon embedded tissue abnormalities location type	Type of abnormality observed microscopically in epon-embedded tissue specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1823-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C10742	C10742	Echocardiogram mitral valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12531	C12531	Biopsy autopsy excessive glycogen severity result	Severe glycogen storage pathology involves excess PAS+ material that is easily identifiable on light microscopy and is evident on other stains including H and E. Mild glycogen storage pathology is difficult to determine at the light microscopic level and may only be evident on PAS stain or electron microscopy	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1836-C00316	C00316	Medical history condition end date and time	Date (and time, if applicable and known) for the end of an event in the participant's medical history	Supplemental	Medical History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12914	C12914	Echocardiogram result status	Status of the global results of the echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12248	C12248	Pathologist name	Name of pathologist who diagnosed the case	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1829-C10972	C10972	Manual muscle testing position type	The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12333	C12333	Respiratory manual percussion use daily frequency	Frequency of use of manual percussion therapy on a daily basis	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

Displaying 576 - 600 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.