CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1062-C17969	C17969	Electrophysiology sensory nerve segment name	The name of the segment used in sensory nerve conduction studies	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12331	C12331	Respiratory manual cough assist session time	The duration of manual cough assist use per session	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1907-C01713	C01713	Lab test result unit of measure UCUM code	Unified Code for Units of Measure (UCUM) unit code for the result of the lab test being performed on the specimen	Supplemental	Laboratory Tests and Tracking	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12730	C12730	Needle electromyography motor unit action potential amplitude measurement	The amplitude value of the motor unit action potential (MUAP) measure during needle electromyography	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1056-C12857	C12857	Cardiac MRI myocardial scar segment anatomic site	Anatomic site or segment of the heart where myocardial scarring was observed on the cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C10837	C10837	Imaging gap between slices measurement	Measurement of the gap between slices used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12381	C12381	Respiratory tracheostomy date	Date of the participant's/subject's tracheostomy	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12339	C12339	Respiratory lung volume recruitment use frequency	Frequency of lung volume recruitment use	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10851	C10851	Grip strength test indicator	Indicator whether the grip strength testing was done	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12738	C12738	Needle electromyography interference pattern analysis result	The result of the interference pattern analysis measure during needle electromyography	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1056-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C12783	C12783	Variant mutational analysis results available indicator	Indicator of whether the variant or mutational analysis results are available on this participant	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12697	C12697	Electrophysiology motor nerve latency value	The length of time needed for the electrical impulse to travel between the stimulation and recording sites measured during the motor nerve conduction study	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C12540	C12540	Imaging T2 measurement indicator	Indicator of whether T2 measurement was used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12389	C12389	Respiratory ventilation mode assist control type	Type of assist control ventilation used	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12347	C12347	Respiratory high frequency chest wall oscillation system brand name	Name of the brand of thee high frequency chest wall oscillation system brand of device used	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C17783	C17783	Grip strength fatigue percent target not attain indicator	Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12746	C12746	Electrophysiology fiber density quantitative result value	Fiber density measured for a particular muscle and side	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1059-C12918	C12918	Cardiovascular Holter exam maximum heart rate duration	Duration of maximum heart rate recorded during the Holter examination	Supplemental	Holter Examination	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C17896	C17896	Variant mutational analysis not performed reason	Reason for why the mutational analysis was not performed	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12705	C12705	Electrophysiology sensory nerve velocity measurement	The signal transmission speed measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C18703	C18703	Imaging parallel acquisition used other text	The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12355	C12355	Respiratory intrapulmonary percussive ventilation or MetaNeb daily detail type	Frequency of use of the intrapulmonary percussive ventilation or MetaNeb device on a daily basis	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C18844	C18844	Respiratory medication nebulized other text	The free-text field related to 'Respiratory medication nebulized type' specifying other text. Type of the medication(s) nebulized	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C17898	C17898	Laboratory director unknown indicator	Indicator of unknown laboratory director	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.