CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 251 - 275 of 675

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1907-C01703	C01703	Lab panel category	Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests and Tracking	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12721	C12721	Electrophysiology repetitive nerve activation technique type	Indicator of the activation technique used in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1056-C10602	C10602	Cardiac MRI ejection fraction measurement	Measurement of the ejection fraction percentage obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1038-C12416	C12416	Pulmonary blood gas partial pressure oxygen value	The numeric value of the blood gas partial pressure of oxygen (P02) in the blood	Supplemental	Measures of Gas Exchange	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12399	C12399	Respiratory support schedule use time day type	The type as it relates to the time(s) of day the ventilation device is used by the participant/subject	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12359	C12359	Respiratory other airway clearance method name	Name of airway clearance method used by the participant/subject other than mechanical in-exsufflator, manual cough assist, manual percussion, postural drainage, lung volume recruitment, and intrapulmonary percussive ventilation	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12319	C12319	Respiratory device type	Type of airway clearance or secretion mobilization device(s) used by the participant/subject	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12265	C12265	Biopsy and autopsy diagnostic abnormalities severity grade	Severity of the diagnostic muscle abnormalities	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C12605	C12605	Caregiver primary type	Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject	Supplemental	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12890	C12890	Echocardiogram left ventricle function status	Status of left ventricle function on the echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C12836	C12836	ECG left anterior hemiblock status	Status of left anterior hemiblock apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1059-C18879	C18879	Cardiovascular Holter predominant heart rhythm type other text	The free-text field related to 'Cardiovascular Holter predominant heart rhythm type', specifying other text. Type of heart rhythm the participant exhibited the majority of the time during the Holter examination	Supplemental	Holter Examination	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12367	C12367	Respiratory airway clearance medication daily frequency	Value of the daily frequency of usage of the airway clearance medication	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12327	C12327	Respiratory mechanical in-exsufflator session cycle set count	Count of the number of cycles completed per session when participant/subject used the mechanical in-exsufflator	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12273	C12273	Biopsy and autopsy normal immunoreactivity assay name	Name of the normal immunoreactivity assay used	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1835-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12898	C12898	Echocardiogram left ventricle end diastolic volume index measurement	Measurement calculated from end diastolic volume over body surface area for the left ventricle obtained by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12228	C12228	Tissue specimen name	Tissue specimen name collected from the participant	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C10728	C10728	Echocardiogram left ventricular internal dimension end systole measurement	Measurement of left ventricular end - systolic internal dimension (LVIDs) obtained by echocardiography	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12376	C12376	Respiratory positive pressure initiation age value	Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, positive pressure device	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12335	C12335	Respiratory postural drainage use frequency	Frequency of postural drainage use	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12521	C12521	Specimen type 2 fiber muscle biopsy percent result number	Result for type 2 fiber muscle biopsy percent	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1835-C19669	C19669	Family history diagnosis age value	Age at which relative was diagnosed with the disease in question	Supplemental	Family History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12906	C12906	Echocardiogram left ventricle non-compaction status	Status of non-compaction in the left ventricle on the echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12238	C12238	Biopsy and autopsy epon embedded tissue abnormalities location type	Type of abnormality observed microscopically in epon-embedded tissue specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.