CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1062-C10778	C10778	Electrophysiology motor unit number estimation muscle studied name	Name of the muscle studied using the MUNE (motor unit number estimation) technique	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12320	C12320	Respiratory mechanical in-exsufflator device use frequency	Frequency of use of the mechanical in-exsufflator by the participant/subject	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12368	C12368	Respiratory airway clearance medication delivery method type	Type of drug delivery method the participant/subject uses for the airway clearance medication	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1907-C01714	C01714	Pregnancy test not applicable reason	Reason that performance of a pregnancy test was not applicable to the participant/subject	Supplemental	Laboratory Tests and Tracking	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12328	C12328	Respiratory mechanical in-exsufflator session cycle breath count	Count of the breaths per cycle completed per session when the participant/subject used the mechanical in-exsufflator	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12378	C12378	Respiratory support negative pressure device delivery method type	Type of non-invasive, negative pressure delivery method supported by the device	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10852	C10852	Grip strength test performed date and time	Date (and time, if applicable and known) that grip strength testing was done	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12336	C12336	Respiratory postural drainage use daily frequency	Frequency of postural drainage use if it is used daily	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12386	C12386	Respiratory tracheostomy tube timing type	Type of inflation/deflation timing settings for cuffed tubes	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12344	C12344	Respiratory lung volume recruitment pause time value	Value for the pause time setting for the lung volume recruitment device	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12862	C12862	Echocardiogram left atrial enlargement status	Status of left atrial enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12352	C12352	Respiratory high frequency chest wall oscillation system frequency value	Value of the frequency setting for the high frequency chest wall oscillation system device	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C18878	C18878	Echocardiogram result other text	The free-text field related to 'Echocardiogram result status' specifying other text. The global results of the echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12750	C12750	Electrophysiology motor unit number estimation surface motor unit action potential average count	Number of surface motor unit action potentials (sMUAPs) averaged to arrive at the average sMUAP value	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C17899	C17899	Preservation technique not used indicator	Indicates preservation technique used is not known	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12707	C12707	Electrophysiology H-reflex latency left value	The H-reflex duration of latency for the left side of the body	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12251	C12251	Biopsy and autopsy atrophy or hypotrophy type	Atrophy/ hypertrophy type	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1038-C12423	C12423	Pulmonary gas exchange end tidal transcutaneous carbon dioxide above 50 mmHg value	The percent of time the participant/subject's ETCO2 or transcutaneous CO2 (TCCO2) pressure is above 50 mmHg	Supplemental	Measures of Gas Exchange	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1056-C17928	C17928	Cardiac MRI myocardial scar anatomic site	Anatomic site where myocardial scar was/was not detected	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C17880	C17880	Respiratory support ventilation device other model name	Name of other support ventilation device used by the participant/subject	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C12538	C12538	Imaging fast indicator	Indicator of whether or not fast imaging was used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C00214	C00214	Living with persons count	Count of other people with whom the participant/subject currently lives, cohabits, or stays	Supplemental	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12759	C12759	Electrophysiology quantitative sweat function forearm measurement	The amount of sweat collected on the forearm	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12716	C12716	Electrophysiology repetitive nerve stimulation study stimulus duration	Duration, in ?s, of stimulation in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12259	C12259	Biopsy and autopsy inflammation type	Perivascular inflammation is focused around blood vessels, whereas diffuse inflammation also spreads across the muscle tissue. Inflammatory cells identified include lymphocytes, neutrophils, macrophages, and eosinophils. At times, microorganisms can be identified and should be mentioned	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.