CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 626 - 650 of 675

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1037-C12403	C12403	Respiratory oxygen use schedule type	Type of schedule of supplemental oxygen use	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12371	C12371	Respiratory Intervention-support device brand name	The brand name of the respiratory support or assisted ventilation device used by the participant/subject, as part of the Respiratory Interventions form	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12261	C12261	Biopsy and autopsy inflammatory cell type	Type of inflammatory cells identified	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1939-C12832	C12832	ECG atrioventricular block second degree status	Status of second degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported	Supplemental	Electrocardiogram (ECG)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12381	C12381	Respiratory tracheostomy date	Date of the participant's/subject's tracheostomy	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12269	C12269	Biopsy and autopsy immunohistochemical immunofluorescence assays performed	List of stains used	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C12819	C12819	Disability benefit indicator	Indicator of whether participant/subject receives disability benefit payments	Supplemental	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12339	C12339	Respiratory lung volume recruitment use frequency	Frequency of lung volume recruitment use	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C10732	C10732	Echocardiogram right ventricular enlargement status	Status of right ventricular enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12389	C12389	Respiratory ventilation mode assist control type	Type of assist control ventilation used	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12517	C12517	Fatty replacement severity status	Severity of the Fatty replacement muscle diagnostic abnormalities	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12347	C12347	Respiratory high frequency chest wall oscillation system brand name	Name of the brand of thee high frequency chest wall oscillation system brand of device used	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C11101	C11101	Pulmonary function test mouth apparatus type	Type of mouthpiece used for the pulmonary function test	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12232	C12232	Laboratory director name	Name of laboratory director where assessment was performed	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12527	C12527	Biopsy and autopsy type 2 predominance fiber percentage value	Percentage of Type 2 predominance fiber present	Supplemental-Highly Recommended	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12355	C12355	Respiratory intrapulmonary percussive ventilation or MetaNeb daily detail type	Frequency of use of the intrapulmonary percussive ventilation or MetaNeb device on a daily basis	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12308	C12308	Pulmonary function test bronchodilator indicator	Whether the patient was taking bronchodilator during the time of testing	Supplemental	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C17901	C17901	Elevated creatine kinase Indicator	Indicator of whether participant/subject experienced elevated creatine kinase levels	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12363	C12363	Respiratory airway clearance medication category	Category or class of airway clearance medication used by the participant/subject	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F2134-C12317	C12317	Pulmonary function forced vital capacity early termination indicator	Whether or not there was early termination with a steep cutoff during the trials for forced vital capacity (FVC)	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12253	C12253	Biopsy and autopsy atrophy or hyportrophy fiber shape type	Atrophic/ hypertrophic fiber shape	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12323	C12323	Respiratory mechanical in-exsufflator exhale pressure value	Value of the exhale pressure setting for the mechanical in-exsufflator used by the participant/subject	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10856	C10856	Grip strength unit of measure	Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1833-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Core	Social Status	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1020-C10872	C10872	Dynamometry hand held no result reason	Reason why there was no hand held dynamometry result for the muscle	Supplemental	Hand Held Dynamometry	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

Displaying 626 - 650 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.