CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 675
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12344 Respiratory lung volume recruitment pause time value

Value for the pause time setting for the lung volume recruitment device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12740 Electrophysiology neuromuscular jitter activation technique type

The activation technique used for the neuromuscular jitter test

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12312 Pulmonary function index of lung function best trial measurement

The best trial of the index of lung function trials performed for pulmonary function test (PFT) measures

Supplemental-Highly Recommended Pulmonary Function Testing Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12699 Electrophysiology motor nerve amplitude measurement

The measured amplitude of signal response to test stimulation during the motor nerve conduction study

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12352 Respiratory high frequency chest wall oscillation system frequency value

Value of the frequency setting for the high frequency chest wall oscillation system device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12750 Electrophysiology motor unit number estimation surface motor unit action potential average count

Number of surface motor unit action potentials (sMUAPs) averaged to arrive at the average sMUAP value

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17874 Pulmonary function test not done indicator

Was the pulmonary function test not done

Supplemental-Highly Recommended Pulmonary Function Testing Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12707 Electrophysiology H-reflex latency left value

The H-reflex duration of latency for the left side of the body

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12360 Respiratory other airway clearance method use frequency

Frequency of use of other airway clearance methods

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12540 Imaging T2 measurement indicator

Indicator of whether T2 measurement was used

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12320 Respiratory mechanical in-exsufflator device use frequency

Frequency of use of the mechanical in-exsufflator by the participant/subject

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12759 Electrophysiology quantitative sweat function forearm measurement

The amount of sweat collected on the forearm

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12918 Cardiovascular Holter exam maximum heart rate duration

Duration of maximum heart rate recorded during the Holter examination

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12716 Electrophysiology repetitive nerve stimulation study stimulus duration

Duration, in ?s, of stimulation in the repetitive nerve study being recorded

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12368 Respiratory airway clearance medication delivery method type

Type of drug delivery method the participant/subject uses for the airway clearance medication

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12328 Respiratory mechanical in-exsufflator session cycle breath count

Count of the breaths per cycle completed per session when the participant/subject used the mechanical in-exsufflator

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12823 ECG atrial rate

Rate measured in beats per minute of atrial contractions recorded in the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12767 Electrophysiology short post-exercise compound muscle action potential time

The time intervals used to measure compound muscle action potential (CMAP) during post-exercise for the short exercise test

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12724 Electrophysiology repetitive nerve postactivation elapsed time duration

Interval, in minutes, elapsed after nerve stimulation, at which time postactivation data are being recorded for the repetitive nerve study being recorded

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12378 Respiratory support negative pressure device delivery method type

Type of non-invasive, negative pressure delivery method supported by the device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12336 Respiratory postural drainage use daily frequency

Frequency of postural drainage use if it is used daily

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12260 Biopsy and autopsy perivascular inflammation type

Evidence of vascular damage includes damaged vessels in association with perivascular inflammation and the presence of fibrin thrombi located within vascular spaces

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10583 Imaging base resolution value

Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI)

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12831 ECG atrioventricular block first degree status

Status of first degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18852 Respiratory oxygen administration method other text

The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 251 - 275 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.