CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 675
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12308 Pulmonary function test bronchodilator indicator

Whether the patient was taking bronchodilator during the time of testing

Supplemental Pulmonary Function Testing Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12696 Electrophysiology motor nerve segment name

The name of the segment used for the motor nerve conduction study

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17506 Cardiac MRI result comment text

Free-text field describing the results comments on the cardiac magnetic resonance imaging (MRI) results

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12357 Respiratory medication nebulized type

Type of the medication(s) nebulized

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12537 Imaging fat signal suppressor used method type

Type of method used to suppress fat signal in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10860 Grip strength fatigue percent target hold duration

Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded

Supplemental Grip Strength Fatigue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17790 Dynamometry hand held time

Time the hand held dynamometry was performed

Supplemental Hand Held Dynamometry Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12745 Electrophysiology neuromuscular jitter study blocking count

Count of pairs/endplates with blocking recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12944 Variant mutational analysis performed indicator

Indicator of whether the variant or mutational analysis was performed on the participant

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12704 Electrophysiology sensory nerve onset or peak latency value

The onset or peak latency measured during the sensory nerve conduction study

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10877 Holter exam heart block episode type

Type of episode(s) of heart block assessed during the Holter examination

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12365 Respiratory airway clearance medication concentration value

Value of the concentration of the airway clearance medication used

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12325 Respiratory mechanical in-exsufflator exhale duration

Value of the exhale time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12756 Electrophysiology blood pressure response Valsalva phase II early result

The blood pressure response to valsalva maneuver during Phase II early

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19755 Gene mutation myotonic dystrophy repeat interruption assessment text

The type of repeat interruptions assessed

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12713 Electrophysiology blink reflex test ipsilateral R2 latency value

Duration of ipsilateral R2 latency in the blink reflex test

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12931 Cardiovascular Holter exam premature ventricular contraction percentage value

Value of the percent of premature ventricular contractions the participant experienced during the Holter examination

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12374 Respiratory support positive pressure device delivery method type

Type of non-invasive, positive pressure delivery method supported by the device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10602 Cardiac MRI ejection fraction measurement

Measurement of the ejection fraction percentage obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12333 Respiratory manual percussion use daily frequency

Frequency of use of manual percussion therapy on a daily basis

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12764 Electrophysiology tilt study blood pressure change result

Blood Pressure changes experienced from a tilt test

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01703 Lab panel category

Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)

Supplemental Laboratory Tests and Tracking Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12721 Electrophysiology repetitive nerve activation technique type

Indicator of the activation technique used in the repetitive nerve study being recorded

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17954 Cardiovascular Holter exam atrial dysrhythmia episode duration

Duration, in seconds, of the atrial dysrhythmia episode

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 226 - 250 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.