CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 351 - 375 of 675

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1056-C12851	C12851	Cardiac MRI left ventricle noncompaction position anatomic site	Anatomic site or position on the left ventric le of any non-compaction observed by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12693	C12693	Electrophysiology H-reflex nerve segment name	The nerve segment used for the H-reflex test	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12348	C12348	Respiratory high frequency chest wall oscillation system vest type	Type of vest used	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C10595	C10595	Imaging parallel acquisition used type	Type of the parallel acquisition method used in imaging acquisition	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1912-C10859	C10859	Grip strength fatigue percent target value	Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12744	C12744	Electrophysiology neuromuscular jitter mean consecutive difference abnormal count	Count of pairs/endplates with abnormal mean consecutive difference (MCD) recorded for the neuromuscular jitter study being described	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1056-C12861	C12861	Cardiac MRI quality result type	Type of quality result of the cardiac magnetic resonance imaging (MRI) being reported	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C12806	C12806	Gene protein variant mutation name	Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12703	C12703	Electrophysiology sensory nerve segment length measurement	The sensory nerve segment length measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12356	C12356	Respiratory intrapulmonary percussive ventilation or MetaNeb Session Time	Time the intrapulmonary percussive ventilation or MetaNeb device was in use	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C12536	C12536	Imaging dimension type	Type of imaging dimension used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1020-C10872	C10872	Dynamometry hand held no result reason	Reason why there was no hand held dynamometry result for the muscle	Supplemental	Hand Held Dynamometry	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12755	C12755	Electrophysiology Valsalva ratio	The Valsalva ratio measured during autonomic function testing	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1059-C10876	C10876	Holter exam mean heart rate	Mean heart rate measured during the Holter examination	Supplemental	Holter Examination	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1876-C19754	C19754	Gene mutation myotonic dystrophy repeat interruption assessment indicator	Indicator of whether repeat interruptions were found	Supplemental	Mutation Analysis	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1062-C12712	C12712	Electrophysiology blink reflex test R1 latency value	Duration of R1 latency in the blink reflex test	Supplemental	Electrophysiology	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C12364	C12364	Respiratory airway clearance medication name	Name of the airway clearance medication used by the participant/subject	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1836-C00315	C00315	Medical history global assessment indicator	Indicator of whether the participant has a history of any medical problems/conditions	Supplemental	Medical History	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12913	C12913	Echocardiogram study quality type	Type of quality of the echocardiogram study	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1988-C12247	C12247	Biopsy and Autopsy tissue collection method type	The type of method used for collection of the tissue specimen	Supplemental	Muscle Biopsy and Autopsy Tissue	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1829-C10971	C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1055-C08236	C08236	Imaging scanner software name	Name of the scanner software that runs the imaging camera	Supplemental	Magnetic Resonance Imaging (MRI)	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1060-C12862	C12862	Echocardiogram left atrial enlargement status	Status of left atrial enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy
F1037-C18840	C18840	Respiratory lung volume recruitment use other text	The free-text field related to 'Respiratory lung volume recruitment use frequency' specifying other text. Frequency of lung volume recruitment use	Supplemental	Respiratory Interventions	False	Myotonic Muscular Dystrophy	Myotonic Muscular Dystrophy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.