CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 675
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12899 Echocardiogram right ventricle end diastolic volume index measurement

Measurement calculated from end diastolic volume over body surface area for the right ventricle obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12416 Pulmonary blood gas partial pressure oxygen value

The numeric value of the blood gas partial pressure of oxygen (P02) in the blood

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10729 Echocardiogram left atrial antero - posterior dimension measurement

Measurement of the left atrial antero-posterior dimension obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12399 Respiratory support schedule use time day type

The type as it relates to the time(s) of day the ventilation device is used by the participant/subject

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12524 Inflammation severity status

Severity of Inflammation muscle diagnostic abnormalities

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19670 Family history diagnosis age unknown status

Status related to whether the participant knows the age of the relative when diagnosed

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12366 Respiratory airway clearance medication dose value

Value of the dose of the airway clearance medication used

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12758 Electrophysiology blood pressure response Valsalva phase IV result

The blood pressure response to valsalva maneuver during Phase IV

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12326 Respiratory mechanical in-exsufflator pause duration

Value of the pause time setting for the mechanical in-exsufflator

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12917 Cardiovascular Holter predominant heart rhythm type

Type of heart rhythm the participant exhibited the majority of the time during the Holter examination

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19757 Gene mutation myotonic dystrophy other variant indicator

The indicator related to whether there were any additional variants/mutations in the specified genes

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12715 Electrophysiology repetitive nerve stimulation study stimulation rate value

Value, in Hz, of the stimulation rate used in the repetitive nerve study being recorded

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18697 Imaging fat signal suppressor used method other text

The free-text field related to 'Imaging fat signal suppressor used method type' specifying other text. Type of method used to suppress fat signal in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12375 Respiratory positive pressure device initiation date

Date of initiation of the non-invasive, positive pressure device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10758 ECG WPW syndrome status

Status of whether ventricular preexcitation / Wolff-Parkinson-White syndrome (WPW) is present or absent on the electrocardiogram (EKG) being reported

Supplemental Electrocardiogram (ECG) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12766 Electrophysiology short pre-exercise compound muscle action potential measurement

The compound muscle action potential (CMAP) values measured at the pre-exercise intervals

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12334 Respiratory manual percussion session duration

Time of manual percussion use per session

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12934 Cardiovascular Holter exam ventricular contraction count

Number of occurrences of the specific type of ventricular contraction

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental Laboratory Tests and Tracking Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12723 Electrophysiology repetitive nerve activation duration

Duration, in sec, of the activation technique used in the repetitive nerve study being recorded

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12837 Cardiac MRI ventricle systolic function result status

Status of the result of the cardiac magnetic resonance imaging (MRI) evaluation of the selected ventricle's systolic function

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12384 Respiratory tracheostomy tube length measurement

Measurement of the length of the tracheostomy tube

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18808 Electrophysiology motor unit number estimation method used other text

The free-text field related to 'Electrophysiology motor unit number estimation method used type' specifying other text. Type of method or technique used for MUNE (motor unit number estimation)

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12342 Respiratory lung volume recruitment inhale pressure value

Value of the inhale pressure setting for the lung volume recruitment device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17956 Cardiovascular ventricular dysrhythmia episode duration

Duration, in seconds, of a specific ventricular dysrhythmia episode recorded during the Holter examination

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 226 - 250 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.