CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 675
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19758 Target RNA alternative splicing indicator

The indicator of whether there were target RNA species for alternative splicing investigated

 Supplemental Mutation Analysis False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12716 Electrophysiology repetitive nerve stimulation study stimulus duration

Duration, in ?s, of stimulation in the repetitive nerve study being recorded

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18840 Respiratory lung volume recruitment use other text

The free-text field related to 'Respiratory lung volume recruitment use frequency' specifying other text. Frequency of lung volume recruitment use

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17900 Age presentation year value

Age (in years) of participant/subject at presentation

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12931 Cardiovascular Holter exam premature ventricular contraction percentage value

Value of the percent of premature ventricular contractions the participant experienced during the Holter examination

 Supplemental Holter Examination False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17963 Cardiovascular mitral valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the mitral valve

 Supplemental Echocardiogram False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12252 Biopsy and autopsy fiber size variation result type

Distribution of the atrophic fibers

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12374 Respiratory support positive pressure device delivery method type

Type of non-invasive, positive pressure delivery method supported by the device

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10602 Cardiac MRI ejection fraction measurement

Measurement of the ejection fraction percentage obtained by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12866 Echocardiogram left atrial area measurement

Measurement of the left atrial area from the apical 4-chamber view obtained by echocardiography

 Supplemental Echocardiogram False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12333 Respiratory manual percussion use daily frequency

Frequency of use of manual percussion therapy on a daily basis

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17954 Cardiovascular Holter exam atrial dysrhythmia episode duration

Duration, in seconds, of the atrial dysrhythmia episode

 Supplemental Holter Examination False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19523 Muscle disease inflammatory type specify text

Specify text for type of inflammatory muscle disease

 Supplemental Medical History False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

 Supplemental Electrophysiology False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12260 Biopsy and autopsy perivascular inflammation type

Evidence of vascular damage includes damaged vessels in association with perivascular inflammation and the presence of fibrin thrombi located within vascular spaces

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12383 Respiratory tracheostomy tube size measurement

Measurement of the size of the tracheostomy tube

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12844 Cardiac MRI ventricle end systolic volume index measurement

Measurement of the selected ventricle's end systolic volume divided by the participant's body surface area in square meters

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

 Supplemental Social Status False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12874 Echocardiogram pulmonic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography

 Supplemental Echocardiogram False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12831 ECG atrioventricular block first degree status

Status of first degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported

 Supplemental Electrocardiogram (ECG) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12341 Respiratory lung volume recruitment session time

Time of lung volume recruitment use per session

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12268 Immunohistochemical stain used muscle biopsy and autopsy type

Which immunohistochemical stains were used on muscle biopsy?

 Supplemental Muscle Biopsy and Autopsy Tissue False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12391 Respiratory assessment type

Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment

 Supplemental Respiratory Interventions False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12852 Cardiac MRI atrium area measurement

Measurement of the area of the selected atrium as obtained by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 201 - 225 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.