CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 675
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12864 Echocardiogram left atrial dimension measurement

Dimension of the left atrium measured with echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18842 Respiratory high frequency chest wall oscillation system use other text

The free-text field related to 'Respiratory high frequency chest wall oscillation system use frequency' specifying other text. Frequency of use of the high frequency chest wall oscillation system

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12934 Cardiovascular Holter exam ventricular contraction count

Number of occurrences of the specific type of ventricular contraction

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental Laboratory Tests and Tracking Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12723 Electrophysiology repetitive nerve activation duration

Duration, in sec, of the activation technique used in the repetitive nerve study being recorded

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12376 Respiratory positive pressure initiation age value

Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, positive pressure device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12837 Cardiac MRI ventricle systolic function result

Result of the cardiac MRI evaluation of the selected ventricle's systolic function

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12335 Respiratory postural drainage use frequency

Frequency of postural drainage use

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18808 Electrophysiology motor unit number estimation method used other text

The free-text field related to 'Electrophysiology motor unit number estimation method used type' specifying other text. Type of method or technique used for MUNE (motor unit number estimation)

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17956 Cardiovascular ventricular dysrhythmia episode duration

Duration, in seconds, of the ventricular dysrhythmia episode

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01714 Pregnancy test not applicable reason

Reason that performance of a pregnancy test was not applicable to the participant/subject

Supplemental Laboratory Tests and Tracking Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12731 Needle electromyography motor unit action potential area measurement

The area value of the motor unit action potential (MUAP) measure during needle electromyography

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12385 Respiratory tracheostomy tube cuffed indicator

Indicator of whether or not the tracheostomy tube that the participant/subject uses has cuffs

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12846 Cardiac MRI left ventricle posterior wall thickness measurement

Measurement of the thickness of the posterior wall of the left ventricle as obtained by cardiac MRI

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10780 Electrophysiology anatomic site

Area of the body (e.g., nerve or muscle) where the type of electrophysiology study is performed

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12343 Respiratory lung volume recruitment inhale time value

Value for the inhale time setting for the lung volume recruitment device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

Supplemental Grip Strength Fatigue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12739 Electrophysiology neuromuscular jitter electrode type

The type of electrode used for the neuromuscular jitter test

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12855 Cardiac MRI myocardial scar result

Result of evaluation of the cardiac MRI for mycocardial scarring on the selected ventricle

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12784 Variant mutational analysis performed family member indicator

Whether the mutational analysis was performed on a family member

Supplemental Mutation Analysis Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12698 Electrophysiology motor nerve segment length measurement

The nerve segment length measured during the motor nerve conduction study

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12351 Respiratory high frequency chest wall oscillation system session time

Time of high frequency chest wall oscillation system use per session

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10685 Imaging slice orientation type

The slice orientation used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10864 Dynamometry hand held muscle test performed indicator

Indicator of whether the hand held dynamometry testing was done

Supplemental Hand Held Dynamometry Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12747 Electrophysiology motor unit number estimation surface motor unit action potential average value

Average surface motor unit action potentials (sMUAPs), estimated using the designated MUNE (motor unit number estimation) technique

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 176 - 200 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.