CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 76 - 100 of 736
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17506 Cardiac MRI result comment text

Results comments on the cardiac Magnetic Resonance Imaging results

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12704 Electrophysiology sensory nerve onset or peak latency value

The onset or peak latency measured during the sensory nerve conduction study

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12537 Imaging fat signal suppressor used method type

Type of method used to suppress fat signal in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12380 Respiratory negative pressure initiation age value

Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, negative pressure device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12338 Respiratory lung volume recruitment method type

Type of lung volume recruitment method used

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12756 Electrophysiology blood pressure response Valsalva phase II early result

The blood pressure response to valsalva maneuver during Phase II early

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12266 Biopsy and autopsy excessive intracellular lipid severity grade

Severe lipid storage pathology involves excess Oil Red O+ material that is easily identifiable on light microscopy and is evident on other stains including H and E. Mild lipid storage pathology is difficult to determine at the light microscopic level and may only be evident on Oil Red O stain or on electron microscopy.

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12916 Cardiovascular Holter exam stop date time

Date (and time, if applicable and known) the Holter examination of the participant/subject stopped

Supplemental Holter Examination Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12606 Health insurance private group type

Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12713 Electrophysiology blink reflex test ipsilateral R2 latency value

Duration of ipsilateral R2 latency in the blink reflex test

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site' specifying other text. Type of body part or anatomy scanned in the imaging study

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C08527 36-item Short Form Health Survey (SF-36) - Times energy score

Score of times having a lot of energy during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C08238 Imaging repetition gap value

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12863 Echocardiogram left atrium view type

The view from the left atrium on the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18841 Respiratory high frequency chest wall oscillation system vest other text

The free-text field related to 'Respiratory high frequency chest wall oscillation system vest type' specifying other text. Type of vest used

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12231 Laboratory name

Name of laboratory where assessment was performed

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00022 Ethnicity USA maternal category

Ethnicity the participant/subject's mother most closely identifies with

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C54234 Echocardiogram right ventricle IVSTd measurement

Right ventricular end - diastolic septal thickness (IVSTd) measured with echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C08535 36-item Short Form Health Survey (SF-36) - Expect worse health score

Score of how true or false surveyee perceived the statement: I expect my health to get worse, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10568 Imaging radio frequency coil channel count

Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12871 Echocardiogram aortic stenosis degree status

Assessment with echocardiography of whether there is stenosis of the aortic valve of the heart

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18849 Respiratory support negative pressure device delivery method other text

The free-text field related to 'Respiratory support negative pressure device delivery method type' specifying other text. Type of non-invasive, negative pressure delivery method supported by the device

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C21939 Pediatric Quality of Life Inventory (PedsQL) - Problem low energy difficulty scale

Scale of problems with low energy, as part of the Pediatric Quality of Life Inventory (PedsQL).

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10588 Imaging echo train length measurement

Measurement of the echo train length used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 76 - 100 of 736

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.