CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 601 - 625 of 675
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10733 Echocardiogram right ventricular systolic dysfunction status

Status of right ventricular systolic dysfunction on the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12402 Respiratory oxygen use frequency

Frequency of use of supplemental oxygen

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19673 Family history relative decease indicator

Indicator for whether relative with the disease in question is deceased

Supplemental Family History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12910 Echocardiogram right atrial pressure measurement

Right atrial pressure measured by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12242 Biochemical or genetic test result value

Results of the biochemical or genetic test performed on the specimen

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19518 Country of origin name

Name of patient/participant's country of origin

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10746 Echocardiogram late mitral inflow velocity measurement

Measurement of the diastolic pressure difference between the left ventricle and left atrium (A) obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18837 Respiratory manual cough assist use other text

The free-text field related to 'Respiratory manual cough assist use frequency' specifying other text. Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17901 Elevated creatine kinase Indicator

Indicator of whether participant/subject experienced elevated creatine kinase levels

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C06358 Diabetes mellitus type

Type of diabetes mellitus

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17964 Cardiovascular pulmonic valve stenosis regurgitation comment text

The free-text field detailing the comments of the degree of stenosis and regurgitation for the pulmonic valve

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12253 Biopsy and autopsy atrophy or hyportrophy fiber shape type

Atrophic/ hypertrophic fiber shape

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12867 Echocardiogram left ventricular trabeculation status

Status of trabeculations in the left ventricle on the echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18845 Respiratory intrapulmonary percussive ventilation cup liquid other text

The free-text field related to 'Respiratory intrapulmonary percussive ventilation cup liquid type' specifying other text. Type of liquid in the intrapulmonary percussive ventilation cup

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19524 Diagnosis date

Date of diagnosis

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12261 Biopsy and autopsy inflammatory cell type

Type of inflammatory cells identified

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00215 Living with person relationship type

Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10584 Imaging phase resolution percentage value

The value in percent of the phase resolution used in imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12875 Echocardiogram mitral valve prolapse indicator

Indicator of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve as assessed by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12832 ECG atrioventricular block second degree status

Status of second degree atrioventricular (AV) block apparent on the electrocardiogram (ECG) being reported

Supplemental Electrocardiogram (ECG) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18809 Electrophysiology motor unit number estimation nerve other text

The free-text field related to 'Electrophysiology motor unit number estimation nerve type' specifying other text. Type of nerve where an electrical signal is measured with the MUNE (motor unit number estimation) technique

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 601 - 625 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.