CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 476 - 500 of 675
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00033 Race USA maternal category

Race(s) the participant/subject's mother most closely identifies with

Supplemental Demographics Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12421 Pulmonary gas exchange lowest oxygen saturation value

The lowest recorded oxygen saturation (SpO2) value

Supplemental Measures of Gas Exchange Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10740 Echocardiogram left ventricle ejection fraction measurement

Measurement of the fraction of blood pumped out of the left ventricles with each heart beat obtained by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12404 Respiratory oxygen use schedule daily hours value

Value of the number of hours of supplemental oxygen use per day

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12529 Biopsy and autopsy ragged red fibers estimated count

Ragged red fibers estimated number

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12912 Echocardiogram pericardial effusion abnormal indicator

Indicator of whether there is pericardial effusion or abnormality observed by echocardiogram

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12245 Symptom presentation type

Symptoms participant/ subject shows at presentation

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10970 Manual muscle testing date and time

Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C02498 Imaging scanner software version number text

Free-text field specifying the version number of the imaging scanner software

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C10772 Echocardiogram left atrial antero - posterior dimension z-score

Z-score calculated for the left atrial antero - posterior dimension measured with echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18839 Respiratory postural drainage use other text

The free-text field related to 'Respiratory postural drainage use frequency' specifying other text. Frequency of postural drainage use

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C17903 Biopsy and autopsy abnormalities on immunohistochemistry text

Text regarding abnormalities on immunohistochemistry

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18793 Medical history condition other text

The free-text field related to 'Medical history condition type', specifying other text. Pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18877 Echocardiogram right ventricle systolic pressure estimation type other text

The free-text field related to 'Echocardiogram systolic pressure estimation type' specifying other text. Type of technique used to estimate the right ventricular systolic pressure

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12255 Biopsy and autopsy central nuclei estimated fibers percent value

Estimated percent of fibers in central nuclei

Supplemental Muscle Biopsy and Autopsy Tissue Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C00202 Education school participation status

Status of participant/subject's current attendance at school

Supplemental Social Status Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

Supplemental Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12869 Echocardiogram left ventricular trabeculation location type

Type of location position of the trabeculation(s) in the left ventricular chamber as assessed by echocardiography

Supplemental Echocardiogram Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C18847 Respiratory support device other text

the free-text field related to 'Respiratory support device type' specifying other text. Type of respiratory support or assisted ventilation device used

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12728 Needle electromyography electrode type

Type of electrode used for the needle electromyography

Supplemental Electrophysiology Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12382 Respiratory tracheostomy tube brand style name

Name of the brand/style of the invasive tracheostomy device used by the participant/subject

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12843 Cardiac MRI ventricle end systolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C19676 Muscle disease hereditary type

Specify if muscle disease type is hereditary

Supplemental Medical History Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
C12340 Respiratory lung volume recruitment daily frequency

Frequency of daily use of the lung volume recruitment

Supplemental Respiratory Interventions Myotonic Muscular Dystrophy Myotonic Muscular Dystrophy
Displaying 476 - 500 of 675

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.